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Movement Disorders research - Patient experience survey 2016

Patient feedback and views on their participation in the research programme for movement disorders.

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Movement Disorders research - Patient experience survey 2016

  1. 1. What were the best or most positive aspects of your research experience? Stephen Harwood Patient and Public Involvement Officer Movement Disorders Research Email: rf-movementdisorders@nhs.net Tel: 0207 7940500 x 36927 Mobile: 0787 107 4774 “That everything about the research is explained in detail and there is no rush.” “Having time to be fully assessed and listened to.” Movement Disorders research Patient experience survey 2016 Some of your views “Feeling that I am making a positive contribution.”
  2. 2. What benefits did taking part in the research give you? Stephen Harwood Patient and Public Involvement Officer Movement Disorders Research Email: rf-movementdisorders@nhs.net Tel: 0207 7940500 x 36927 Mobile: 0787 107 4774 “A feeling that I'm helping to improve the situation, albeit in a small way.” “None directly but it may benefit me or my family in the future.” Movement Disorders research Patient experience survey 2016 Some of your views “It gives me more of an insight into my condition.” “I do feel positive about contributing and the fact that research is going on is all very positive.”
  3. 3. Movement Disorders research Patient experience survey 2016 Some of your views Any part of the research process you did not enjoy? Stephen Harwood Patient and Public Involvement Officer Movement Disorders Research Email: rf-movementdisorders@nhs.net Tel: 0207 7940500 x 36927 Mobile: 0787 107 4774 “Taking of my blood sample.” “Coping with the tiredness from taking part.”
  4. 4. Movement Disorders research Patient experience survey 2016 Some of your views What helped you decide to take part in research? Stephen Harwood Patient and Public Involvement Officer Movement Disorders Research Email: rf-movementdisorders@nhs.net Tel: 0207 7940500 x 36927 Mobile: 0787 107 4774 “If my participation can help to improve treatment or achieve a better understanding of the illness, then I'm happy to participate.” “I feel that if my contribution may make a difference then I should take part.” “I think that taking part in research is something I can give when my condition is trying to take things from me.”

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