14 years later,Fred would meet
Regina on stage in a scenic painting class atOklahoma State University. We would talk of Stephen King’s Dark Tower. We would fall in love.
Fred andI married, worked and
played together for many years.Iworked in a toy store.Fred continued his schooling and worked as video store clerk. In 2005, Fred would get a PhD in film studies and would write his dissertation About “Buffy the Vampire Slayer.” In 1998, Freddie III joined the family game followed by the littlest player Isaac in 2006.
Everything we ever wanted… Resolutions
January 2008:1. Get Medical Insurance for the whole family 2. Get little Freddie into a special needs school 3. Fred gets a job in his field 4. Spend more time together as a family 5. Get a two bedroom apartment Freddie’s IEP Binder
The Last Primary Doctor’s Appointment:
A Very Short PlayRegina: “I didn’t see you weigh him.”PA: “We don’t always weigh our patients”Doctor: “Mr. Holliday do you think maybe you are depressed?”Fred: (Looks up at Doctor with a look of dismay.)Regina: “Of course he is depressed. He is in excruciating pain. We want an MRI.… I am worried about his kidneys.”
Fred was hospitalized on March
25th 2009 for the administration of tests.On March 27th, he was told while alone thathe had “tumors and growths.”He was scared and confused and did not understand.His oncologist left town for the next four days to a medicalconference and was not reachable by phone or email.
After waiting for 5 days
for a transferto another hospital for a second opinion,We were sent with an out of dateand incomplete medical recordand transfer summary.The new staff spent 6 hours trying tocobble together a current medical recordUsing a telephone and a fax machine.
Facebook: a PHR withPrivacy Issues?In
the seven months prior todiagnosis, 10.7% of FredHolliday’s Status PostsRelated aspects of his currentmedical condition…He exhibited all of the most commonsymptoms of Renal Cell Carcinoma… 5And he listed of them on Facebook.
I am trying to talk
with Christine Kraft and epatientDave. Why did we get more help and answers from Social Media than from our local hospital ? Within one day were in email contact and then spoke on the phone. By ten o’clock May 4th 2009, I was talking on the phone with Dave’s Oncologist about my husband’s cancer.
On July 13, 2010 I
had the honor of speaking before the assembled at HHS. I presented the patient voice within Meaningful Use.There was another Regina there that dayDoctor Regina Benjamin, Surgeon Generalpresented her very gripping reason she supportedElectronic Medical Records adoption in the united States.
On September 13th 2011,I met
Regina once again. This was the launch ofthe Consumer e-Health ProgramThe “I” in HITat the Department of Health and Human Services.
As of July 2012, 155
unique Walkers have joined wearing 170 jackets.The Gallery has representatives on five continents, but the majority ofWalkers reside in the US.One artist creates the majority of the art, but new artists are joining andcurrently make up 14% of content creation.The Gallery is promoted heavily on twitter, facebook and personal blogs.