Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.
A Great Good Thing:<br />A Story of a Man, a Mission, and the Making of a Movement <br />By Regina Holliday<br />
What is your favorite story?<br />My favorite favorite fairy tale is<br />Mother Hulda.<br />In this tale, a girl falls in...
Where does a story begin <br />                                and where does it end?<br />                      PhD<br />...
In 1978,  there was a little boy named Freddie <br />                                     who lived in Maryland.<br />And ...
14 years later,<br />Fred would meet Regina on stage in a scenic painting class atOklahoma State University.<br />We would...
Tides and tears,<br />days and years,<br />And new characters would enter <br />Our personal story.<br />
In September 0f 2001, as a nation recovered and people remembered,<br />I painted my first mural on the streets of Washing...
Everything we ever wanted…<br />    Resolutions January 2008:<br />1. Get Medical Insurance for the whole family<br />    ...
Fred was happy with his new job.<br />But he was very tired,<br />He went to the doctor and was diagnosed with hypertensio...
During the months of<br />January, February and March of 2009, <br />Fred was in constant pain.<br />He visited two Emerge...
On Friday March 13th, We went to the ER because Fred was in so much pain .<br />The waiting room was filled with stained g...
Fred was hospitalized on March 25th 2009 <br />for the administration of tests.<br />On March 27th, he was told while alon...
I asked everyone involved in Fred’s care about information on his case.  <br />What was the diagnosis?  What were the trea...
This is my husband’s medical record.<br />I was told it would cost <br />73 Cents<br />              per page <br />And we...
Need the book: Under the Dome <br />Regina emails book buyer 4-3-09<br />Buyer emails book rep. 4-3-09<br />Rep emails pub...
“During this hospital stay, how often was your pain well controlled?”<br />
When I eventually got a copy of Fred’s record and it was instrumental in guiding Fred’s care.  <br />                     ...
Why did we get more help and answers from   <br />Social Media <br />                               than from our local ho...
Facebook<br />as a Caring Bridge<br />
                      We fulfilled our final 2008 resolution on June 11th 2009.<br />We moved into a two bedroom apartment...
Painting Advocacy      meets        <br />Social Media<br />Street art is truly the first global art movement fuelled by t...
On Tuesday, October 20th 2009<br />We dedicated the Mural while singing <br />songs from Buffy the Vampire Slayer<br />Mus...
        The world of HCAHPS meets the little girl in me. <br />
Welcome to the Walking Gallery.<br />We bring the Patient Voice. <br />We bring new eyes and new vision.<br />We walk and ...
How would I change things as an artist?<br />I would wear the title given to me<br />As a red badge of courage, <br />As a...
When Walkers walk, the story lives and memories never die.<br />
A pre-school student can learn<br />how to care for others,<br />If that is what he is taught.<br />
And children, once silent, can march within a movement.<br />
I am glad that the child in me can tell the child in them,<br />Sometimes we must right on walls, Paint on clothes, and mo...
A painting for my <br />Mother-in-law Joan Holliday:<br />“The Best of Us.”<br />Within our minds and memories, <br />We a...
“The Great Good Thing” <br />Is remembering the story.<br />And telling it to others.<br />Let Patients Speak,<br />Let Wa...
Upcoming SlideShare
Loading in …5
×

The Great Good Thing

996 views

Published on

This is my presentation for Sharp Health Care on October 11-12, 2011.

The Great Good Thing

  1. 1. A Great Good Thing:<br />A Story of a Man, a Mission, and the Making of a Movement <br />By Regina Holliday<br />
  2. 2. What is your favorite story?<br />My favorite favorite fairy tale is<br />Mother Hulda.<br />In this tale, a girl falls into a well <br />And performs many good deeds.<br />One of my favorite books is <br />“The Great Good Thing”<br />In that tale, a girl falls into a well of memories.<br />
  3. 3. Where does a story begin <br /> and where does it end?<br /> PhD<br /> Father<br /> Husband<br /> Professor of Film<br /> Video Clerk<br /> Writer<br /> Son<br />Regina Sue McCanless<br />Wife<br />Mother<br />Daughter<br />Sales Clerk<br />Art Teacher<br />Caregiver<br />Widow<br />Artist<br />Poet<br />Frederick Allen Holliday II, PhD<br />
  4. 4. In 1978, there was a little boy named Freddie <br /> who lived in Maryland.<br />And many miles away in Oklahoma, <br /> lived a little girl named Regina.<br />And though miles would separate them,<br />Storieswould connect them.<br />
  5. 5. 14 years later,<br />Fred would meet Regina on stage in a scenic painting class atOklahoma State University.<br />We would talk of Stephen King’s Dark Tower.<br />Wewould fall in love.<br />
  6. 6. Tides and tears,<br />days and years,<br />And new characters would enter <br />Our personal story.<br />
  7. 7. In September 0f 2001, as a nation recovered and people remembered,<br />I painted my first mural on the streets of Washington, DC. <br />“Children Reading a Book.” It seemed safe. It was pretty. But there is always more to a story.<br />
  8. 8. Everything we ever wanted…<br /> Resolutions January 2008:<br />1. Get Medical Insurance for the whole family<br /> 2. Get little Freddie into a special needs school<br /> 3. Fred gets a job in his field<br /> 4. Spend more time together as a family<br /> 5. Get a two bedroom apartment<br />Freddie’s<br />IEP Binder<br />
  9. 9. Fred was happy with his new job.<br />But he was very tired,<br />He went to the doctor and was diagnosed with hypertension.<br />
  10. 10. During the months of<br />January, February and March of 2009, <br />Fred was in constant pain.<br />He visited two Emergency Departments<br />and was sent home.<br />He visited his Doctor’s office<br />many times.<br />He was given pain pills each time.<br />Often he posted a Facebook status relating to his health<br />
  11. 11. On Friday March 13th, We went to the ER because Fred was in so much pain .<br />The waiting room was filled with stained glass windows and lovely blue couches.<br />And Daddy waited, Mommy waited, Freddie waited and Isaac waited.<br />And after 3 hours of waiting,<br />they sent us home with pain medication.<br />
  12. 12. Fred was hospitalized on March 25th 2009 <br />for the administration of tests.<br />On March 27th, he was told while alone that<br />he had “tumors and growths.”<br />He was scared and confused and did not understand.<br />His oncologist left town for the next four days to a medical <br />conference and was not reachable by cell phone. <br />
  13. 13. I asked everyone involved in Fred’s care about information on his case. <br />What was the diagnosis? What were the treatment options? Would he get a pain consult?<br />For asking questions, Fred’s oncologist called me “Little Miss A-type personality.”<br />
  14. 14. This is my husband’s medical record.<br />I was told it would cost <br />73 Cents<br /> per page <br />And we would have to wait 21 days to get a copy.<br />
  15. 15. Need the book: Under the Dome <br />Regina emails book buyer 4-3-09<br />Buyer emails book rep. 4-3-09<br />Rep emails publisher 4-3-09<br />Publisher gets approval from <br />Stephen King 4-3-09<br />Publisher mails it. Arrives 4-7-09<br />Fred reads book 4-7-09 through 5-1-09<br />Under the Dome is published Nov. 2009 <br />“She must not have tried very hard to get the record….”<br />Comparing access to an unpublished book by Stephen King <br />to accessing the <br />Electronic Medical Record while hospitalized. <br />
  16. 16. “During this hospital stay, how often was your pain well controlled?”<br />
  17. 17. When I eventually got a copy of Fred’s record and it was instrumental in guiding Fred’s care. <br /> I used this information to create an easy to understand “face-sheet.”<br />This was the “Medical Facts Mural.” <br /> Then I painted it on a wall in Pumpernickel’s Deli in Washington, DC <br /> for all of our neighbors to see…<br />
  18. 18. Why did we get more help and answers from <br />Social Media <br /> than from our local hospital ?<br />I got on Twitter on May 3rd to find Christine Kraft and e-Patient Dave to talk to them about kidney cancer.<br />Within one day were in email contact and then spoke on the phone.<br />By ten o’clock May 4th 2009, I was talking on the phone with Dave’s Oncologist about my husband’s cancer.<br />
  19. 19. Facebook<br />as a Caring Bridge<br />
  20. 20. We fulfilled our final 2008 resolution on June 11th 2009.<br />We moved into a two bedroom apartment so I could care for Fred in home hospice.<br /> He died six days later on June 17th, 2009<br />
  21. 21. Painting Advocacy meets <br />Social Media<br />Street art is truly the first global art movement fuelled by the Internet. <br /> –Marc and Sara Schiller, Wooster Collective, 2010<br />
  22. 22. On Tuesday, October 20th 2009<br />We dedicated the Mural while singing <br />songs from Buffy the Vampire Slayer<br />Musical “Once More With Feeling.” <br />When ended the night singing our question,<br />“Where <br /> do we go <br /> from here?”<br />
  23. 23. The world of HCAHPS meets the little girl in me. <br />
  24. 24. Welcome to the Walking Gallery.<br />We bring the Patient Voice. <br />We bring new eyes and new vision.<br />We walk and spread the word.<br />
  25. 25. How would I change things as an artist?<br />I would wear the title given to me<br />As a red badge of courage, <br />As a Scarlet Letter.<br />I would speak out across the nation.<br />Sometimes, I would be the only patient <br />speaker in the room.<br />I would explain how patients and caregivers feel in the hospital, and I would do that with <br />Art with a capital “A.” <br />
  26. 26. When Walkers walk, the story lives and memories never die.<br />
  27. 27. A pre-school student can learn<br />how to care for others,<br />If that is what he is taught.<br />
  28. 28. And children, once silent, can march within a movement.<br />
  29. 29. I am glad that the child in me can tell the child in them,<br />Sometimes we must right on walls, Paint on clothes, and mount the stage.<br />
  30. 30. A painting for my <br />Mother-in-law Joan Holliday:<br />“The Best of Us.”<br />Within our minds and memories, <br />We are the heroes of the tale.<br />All those we have loved and lost populate our dreams and stories.<br />
  31. 31. “The Great Good Thing” <br />Is remembering the story.<br />And telling it to others.<br />Let Patients Speak,<br />Let Walkers Walk,<br />Let Artists Paint,<br />What is the beginning <br />and ending of a story?<br />Well, it begins at the beginning<br />And I am not sure it ever ends.<br />

×