Even a childcan understandand appreciatehealthInformation.Both QuantitativeandQualitative.
When the abuse becomes too bad call this number.
1990Reporting to resultsofThe Sapulpa High SchoolWellness Check(I visit the principal’s office again)
14 years later,Fred would meet Regina on stage in a scenic painting class atOklahoma State University.We would talk of Stephen King’s Dark Tower.We would fall in love.
Fred and I married, worked and played together for many years.Fred continued his schooling and worked as video store clerk.In 2005,Fred would get a PhD in film studiesand would write his dissertationAbout “Buffy the Vampire Slayer.”In 1998,Freddie III joined the family gamefollowed bythe littlest player Isaac in 2006.
From 1994 onward,I was working full time in retail sales,but I would try to find time to paint.
I would paintneighborhood murals.I would alsoteach art at a local preschool.I would work in a toy store.
Everything we ever wanted…Resolutions January 2008:1. Get Medical Insurance for the whole family2. Get little Freddie into a special needs school3. Fred gets a job in his field4. Spend more time together as a family5. Get a two bedroom apartmentFreddie’sIEP Binder
Fred was happy with his new job.But he was very tired,He went to the doctor and wasdiagnosed with hypertension.
During the months ofJanuary, February andMarch of 2009,Status Lines…
On Friday March 13th, We went to the ER because Fred was in so much pain .We waited three hours before being sent home.
Fred was hospitalized on March 25th 2009for the administration of tests.On March 27th, he was told while alone thathe had “tumors and growths.”He was scared and confused and did not understand.His oncologist left town for the next four days to a medicalconference and was not reachable by phone or email.
What was the diagnosis? What were the treatment options? Would he get a pain consult?
After waiting for5days for a transferto another hospital for a second opinion,We were sent with an out of dateand incomplete medical recordand transfer summary.The new staff spent 6hours trying tocobble together a current medical recordUsing a telephone and a fax machine.
This is thevital clinical informationfrom Fred’s electronic medical record.Presented in the style ofthe Nutrition Facts Label.Then painted on the wall ofPumpernickel’s Deli inWashington, DC.
What about the chemotherapy?We were told an order for Sutent had been placed.It did not come. The hospital pharmacy kicked out the orderas it was too expensive.I would have to order it from a specialty pharmacy and havedelivered to our apartment.This painting is “Sutent in a Shadow Box.”It is a mixed media piece of pills & paper.It is priced at cost in homage of theretail price of the pills alone.17 pills $24,285.71
I am trying to talk with Christine Kraft and epatient Dave.Within one day were in email contactand then spoke on the phone.By ten o’clock May 4th 2009, I wastalking on the phone with Dave’sOncologist about my husband’s cancer.Why did we get more help and answers fromSocial Mediathan from our local hospital ?
On July 13, 2010 I had the honor ofspeaking before the assembled at HHS.I presented the patient voice withinMeaningful Use.There was another Regina there that dayDoctor Regina Benjamin, Surgeon Generalpresented her very gripping reason she supportedElectronic Medical Records adoption in the united States.
The Learning Health Systemand Chaordic OrganizationThe Patient-CenteredOutcomes Research Institute
2 year study at Primary care settings of Beth IsraelDeaconess Medical Center, Geisinger andHarborview90% patients responded they understood what theyhad read & were not bothered by it.1-2% were concerned/offended by the contents ofthe notes87% of those patients enrolled in this study didcheck the notes.Doctors said the study either only added a modestincrease in work or that it was negligible.80% Patients claimed greater adherence tomedication protocols due to access to the notes.
Prototype Consumer Reporting System for Patient Safety,When the abuse becomes too bad call this number.https://www.federalregister.gov/articles/2013/06/06/2013-13341/agency-information-collection-activities-proposed-collection-comment-request Public Comment Closes July
What happens to user experience when designers likeMichael Graves design wheelchairs?
Why not have CDS (clinical decision support) for patients?If a child’s toy can figure any item in the world in 20 questions, whyCan’t we have CPOE and CDS in every hospital and family practice?
Welcome to the Walking Gallery.Telling the patient story one jacket at a time.
Freddie grows beyond peering througha door crack to walking in a Gallery.
Isaac grows up.He joins the gallery as an artist.His jacket is named “Feelings.”Hemarches in a rally supportingpatient data access.In this year’s jacket he focusedon diabetes care.
Standing out and looking different,Can be uncomfortable or frightening.But is often needed for advocacy.You can take a negative and turnit into a POSITVE.
226 unique Walkers have joined the Walking Gallery wearing 251 jackets.The Gallery has representatives on five continents, but the majority of Walkersreside in the US. One artist creates the majority of the art, but new artists arejoining and currently make up 10% of content creation.The Gallery is promoted heavily on twitter, facebook and personal blogs.
Why can’t we ask Hallmarkto make hospice cards?Would that help us talkabout end of life?
Welcome to the Gallery. Welcome to the future.- @ReginaHolliday, #TheWalkingGallery