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Public and patient engagement

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Workshop PPIE Steering commitee, 04.04.2019
LBG Open Innovation in Science Center

Published in: Science
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Public and patient engagement

  1. 1. www.ois.lbg.ac.at Levels of “participation“ Arnstein, ladder of participation, 1969 White et al., Stufenmodell der Partizipation, 2010 EMPOWERMENT CONTROL information consultation participation collaboration partnerships decision-making self-organisation
  2. 2. www.ois.lbg.ac.at How to involve? https://www.invo.org.uk/ National Institute of Health Research PARTICIPATION INVOLVEMENT ENGAGEMENT Citizens and patients take part in research studies. e.g., being recruited in clinical trials, completing questionnaires, participating in focus groups. Information & knowledge about research is provided & disseminated. e.g., dissemination of research results to public (via media, social media), raising awareness of research through media, science festivals/open day at universities/research centres. Citizens and patients are actively involved in research. e.g., as grant holders or co-applicants, identifying research priorities, agenda setting, members of a project advisory or steering group, co-developing of patient information or materials, undertaking interviews with participants, carrying out research.
  3. 3. www.ois.lbg.ac.at Involvement in the research process Tell Us! Crowdsourcing on Mental Health & Accidential injuries (OIS Center 2015, 2018) Collaborative writing Crowd research @MIT (Vaish, 2017) Dissemination Research agenda Study design Data collection Data analysis Peer evaluation designing & conducting interviews with/by youth (Powers & Tiffany, 2006) Stallcatchers gamified approach Alzheimer (Wired, 2017, SciStarter 2019) Advisory board public & patient representatives

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