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This paper is a Patient Case Study and Report using my DiaCeph Test Non-Invasive Monitoring Method of Hydrocephalus & CNS Shunt Performance, which was obtained from a patient consult I provided in 2010.
I currently provide these consults around the world using paper forms & instructions of my DiaCeph neuro-diagnostic method, and via email, Skype, and telephone when available. This case study was from a patient in Maryland. In the last several years, I have provided consults in Israel, Moscow, Canada, Great Britain, and across the U.S.
The report was generated by manually inserting the patient data into custom Excel Charts, where I write up a report of my findings and interpretation of the data. I believe this methodology would be possible as a mobile phone app, and am looking for funding, stakeholders, and software developers to make it possible. I believe it would revolutionize hydrocephalus care & treatment around the world, where currently numerous diagnostic and shunt device challenges result in suboptimal outcomes and quality of life.
This particular patient has NPH, a type of hydrocephalus that primarily affects seniors, and which is often misdiagnosed as dementia and/or Parkinson's Disease.
I have personally been affected by hydrocephalus since an auto accident in 1992. I also performed diagnostic testing of hydrocephalus as a nuclear medicine technologist from 1976-1992. Now, as an affected patient, I set out to use my personal experiences & medical diagnostic knowledge to improve the way hydrocephalus is diagnosed and treated. I initially designed and patented the DiaCeph method in 1997 (Knobbe Martens Olsen & Bear), but was unable to obtain funding despite all of my efforts and formation of DiaCeph, Inc.
Since 1992, I have underwent 12 revisions, and faced a great deal of uncertainty in my care, with a great deal of confusion with my implanted CNS shunt devices. I have been utilizing the paper format of this methodology in my own care since 1998, and I believe the availability of DiaCeph as a mobile app would revolutionize hydrocephalus care around the world.
Hydrocephalus affects people of all ages, though largely more in children, where it is the No. 1 neurosurgical disorder affecting children today.
Please contact me at www.diaceph.com if you would like to help.