care.data conference,
QMUL, 5th April 2013
Previous NHS structure
Health and Social
Care Act 2012
The ‘new’ NHS
GPES-Q
GPET-E
HSCA s259
requires
care.data
Patient-level Identifiable Data (PID)
including NHS number, postcode,
DoB, gend...
who gets your data?
“This addendum proposes that applications
may be considered by the HSCIC from all
organisations, subje...
THANK YOU
Phil Booth
Coordinator, medConfidential
coordinator@medconfidential.org
www.medconfidential.org
medConfidential slides for care.data conference at QMUL, 5/4/14
medConfidential slides for care.data conference at QMUL, 5/4/14
medConfidential slides for care.data conference at QMUL, 5/4/14
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medConfidential slides for care.data conference at QMUL, 5/4/14

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medConfidential slides for care.data conference at QMUL, 5/4/14

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medConfidential slides for care.data conference at QMUL, 5/4/14

  1. 1. care.data conference, QMUL, 5th April 2013
  2. 2. Previous NHS structure
  3. 3. Health and Social Care Act 2012
  4. 4. The ‘new’ NHS
  5. 5. GPES-Q GPET-E HSCA s259 requires care.data Patient-level Identifiable Data (PID) including NHS number, postcode, DoB, gender & ethnicity HSCIC Your GP NHS England The Commissioning Board GPES IAG Independent Advisory Group HSCA s254 directs data linkage, pseudonymisation, passing on & sale DAAG Data Access Advisory Group CAG Confidentiality Advisory Group CES GPET-Q aggregate statistics, Open Data Section 251 approval CPRD Clinical Practice Research Datalink PID including free text
  6. 6. who gets your data? “This addendum proposes that applications may be considered by the HSCIC from all organisations, subject to their eligibility as determined through the HSCIC’s governance processes. Such organisations may include research bodies, information intermediaries, companies, charities, and others.” - care.data addendum, September 2013
  7. 7. THANK YOU Phil Booth Coordinator, medConfidential coordinator@medconfidential.org www.medconfidential.org

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