After stroke - get a life


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After stroke - get a life

  1. 1. Improving Stroke Peoples Lives – Promoting Independence Phil Collis – Stroke Survivor Tel: 0785 285 6498 email:
  2. 2. Stroke Support <ul><li>The range of support someone may need after a stroke are based around </li></ul><ul><li>Re – enablement </li></ul><ul><li>Care & support </li></ul><ul><li>Mental health & emotional well – being </li></ul><ul><li>Communication </li></ul><ul><li>Practical help </li></ul><ul><li>Short break provision </li></ul>Tel: 0785 285 6498 email:
  3. 3. Every Individuals Stroke is Different <ul><li>The support people will need will vary, from intensive one to one support, through less intensive support, moving on through peer & community support leading to access to life & opportunities. </li></ul><ul><li>Support needs will vary & times of support will vary depending on individual needs & progress. </li></ul><ul><li>When people are back in the community many outside influences can have positive or negative effect on recovery. </li></ul><ul><li>People will need to access a wide range of community services that can lead to greater independence and empower people to make decisions that motivate better recovery and integration into the social world. </li></ul>Tel: 0785 285 6498 email:
  4. 4. My Predicament <ul><li>Where can I find information and advice? </li></ul><ul><li>What happens when therapy services stop? </li></ul><ul><li>What happens if I deteriorate prior to clinical follow up? </li></ul><ul><li>Maybe if I talked to other stroke people it might help? </li></ul><ul><li>What happens when personal circumstances change? </li></ul>Tel: 0785 285 6498 email:
  5. 5. An example of how we can change community stroke support <ul><li>We need to provide the right support to optimise recovery and independence through engaging with people and all services. </li></ul><ul><li>A single point of contact to access community services and information. </li></ul><ul><li>Engaging with Stroke survivors & carers on their needs </li></ul><ul><li>Bridging the gaps in services working closely with health professionals and social services to ensure services are coordinated and needs are being met </li></ul><ul><li>Supporting stroke care pathway </li></ul><ul><li>Facilitate a seamless transition from receiving mainstream rehabilitation services, to being actively involved, making independent and autonomous choices in progressing or maintaining personal health and well being through use of community based services. </li></ul><ul><li>continued…. </li></ul>Tel: 0785 285 6498 email:
  6. 6. Community Stroke Support <ul><li>A person centred service to best meet individual needs and goals. </li></ul><ul><li>Use of cognitive behavioural techniques and skills </li></ul><ul><li>Provision of support for families and carers with input to improve services </li></ul><ul><li>Assisting with long term assessment needs </li></ul><ul><li>Training front line staff, care home staff in stroke awareness etc. </li></ul><ul><li>Enable access to peer support, counselling and emotional support </li></ul><ul><li>Support provision at assessments and reviews </li></ul><ul><li>Encouraging and developing post stroke back into community life </li></ul><ul><li>A source of advice/advocacy . </li></ul>Tel: 0785 285 6498 email:
  7. 7. How can we make it work? <ul><li>In the short term the success of community stroke support will be evident through: </li></ul><ul><li>Continuing stroke survivor engagement to have input into changing services to best meet needs. </li></ul><ul><li>Promote Service user reviews & satisfaction surveys </li></ul><ul><li>Record of individual goals negotiated </li></ul><ul><li>Referrals to appropriate services </li></ul><ul><li>Report on areas where gaps have been identified and peoples needs unmet. </li></ul><ul><li>Less need to access traditional health & social care services. </li></ul>Tel: 0785 285 6498 email:
  8. 8. Stroke Survivor Issues <ul><li>Ensuring economic well being. </li></ul><ul><li>Access to employment, education, volunteering. </li></ul><ul><li>Enabling people to access exercise, hobbies etc. </li></ul><ul><li>Information and access to transport. </li></ul><ul><li>Respect, dignity and safeguarding. </li></ul><ul><li>Access to community stroke/similar peer support </li></ul><ul><li>Information and sign posting about stroke and other community services </li></ul><ul><li>Carers access to support services in the community. </li></ul><ul><li>Networking and social media. </li></ul>Tel: 0785 285 6498 email:
  9. 9. Contact details <ul><li>Phil Collis </li></ul><ul><li>[email_address] </li></ul><ul><li>Mobile : 0785 285 6498 </li></ul><ul><li>Skype: philcollis1 </li></ul>Tel: 0785 285 6498 email: