The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking

Pew Research Center's Internet & American Life Project
Pew Research Center's Internet & American Life Project"Fact tank" at Pew Research Center's Internet & American Life Project
The Rise of the e-Patient Understanding Social Networks and Online Health Information Seeking Lee Rainie, Director, Pew Internet Project 5.5.11 Institute for Healthcare Advancement Email:  [email_address] Twitter: @Lrainie
The story of e-patients (and netweavers) Trudy and Peter Johnson-Lenz
 
New social operating system (1): Networked Individualism ,[object Object],[object Object],[object Object],[object Object]
New social operating system (2): New kinds of patient communities ,[object Object],[object Object],[object Object],[object Object],[object Object]
Revolution #1  Internet and Broadband
 
70%  66%
Consequences for info ecosystem ,[object Object],Velocity Vibrance Valence / Relevance
Consequences for info ecosystem Explosion of creators and niches
Networked creators among internet users ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Each of the revolutions has changed health care searches and interactions (1)
Revolution #2  Wireless Connectivity
Cell phone owners – 85% adults 96 %  90%  85%  58%  Urban-84%  Suburban-86%  Rural-77%
2/22/2011
Mobile internet connectors – 57% adults 62%  59%  55%  Urban-60%  Suburban-60%  Rural-43%
Cell phones as social tools ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],2/22/2011
85% use cell phones 35% have apps 24% use apps All adults May 2010 and Nov 2010 surveys  1 in 4 adults use apps
55% of adults own  laptops  –  up from 30% in 2006 45% of adults own  MP3 players  –  up from 11% in 2005 50% of adults own  DVRs  –  up from 3% in 2002 42% of adults own  game consoles 7% of adults own  e-book readers  - Kindle 7% of adults own  tablet computer  – iPad doubled in 6 months
Consequences for info ecosystem Anywhere  Any device Presence Place Any time  Alone together
Mobile reaches a different audience ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],November 2010 survey
[object Object],[object Object],[object Object],Each of the revolutions has changed health care searches and interactions (2)
Revolution #3 Social Networking
The social networking pop. is diverse 2/22/2011 5x 5x 7x 5x
Online video 2/22/2011 ,[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],Each of the revolutions has changed health care searches and interactions (3)
How online searches affect decisions (1) ,[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],How online searches affect decisions (2)
What technology has done to social networks and the role providers can play in them ,[object Object],[object Object],[object Object],June 25, 2010
Where providers are best – 1 Accurate diagnosis
Where providers are best – 2 Info about prescription drugs
Where providers are best – 3 Info about alternative treatments
Where providers are best – 4 Recommendations about specialist
Where providers are best – 5 Recommendations about a medical facility
Where personal conn. are best – 1 Emotional support for dealing with illness
Where personal conn. are best – 2 Quick remedy for everyday health issues
Where personal conn. are OK – 3 Quick remedy for everyday health issues
What social networks do for patients: Why experts can be “nodes” ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Good news about new info ecology ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],41% 3%
Be not afraid
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The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking

Editor's Notes

  1. The Rise of the e-Patient: Understanding Social Networks and Online Health Information-Seeking   Lee Rainie Director, Pew Internet & American Life Project   Keeping track of where and how American adults are getting their health information is a critical first step in knowing how to reach them with usable and understandable information. This session will share the latest research, including new data on online health information-seeking, mobile devices in healthcare, and digital patient communities in the age of social networks.   Learning Objectives: After attending this session, attendees will be able to: Cite one statistic regarding how Americans are accessing health information online Discuss trends in the use of mobile devices in a health setting State one way to adapt your practice to reflect the new reality of digital information usage
  2. Rise of broadband at home was transformative – internet becomes a central info and communications hub in the home after the switch from dial-up. People do more stuff online; privilege the internet over other info sources in many cases; report better outcomes from internet use, and, most importantly become content creators. Two thirds of adults and 80% of teens are content creators. This is the big change the internet has introduced to media landscape. Probably take a minute to say this.
  3. The info ecology changes thanks to rise of internet/broadband. Volume of information rises 20-30% per year. Never had anything close to this in human history. Velocity of information increases, especially in groups. Personally relevant news speeds up as people customize personal feeds, alerts, listservs, group communications. Vibrance of information/media increases as bandwidth increases and computing power grows so media experiences become more immersive and compelling Valence/relevance of information grows in the era of the “Daily Me” and “Daily Us” and custom feeds. 2 mins
  4. Perhaps biggest change in info ecology is the democratization of media – and proliferation of niches. The Long Tail becomes reality for media and brands.
  5. This is the way Pew Internet measures content creation….
  6. 9% of cell phone users have software applications or “apps” on their phones that help them track or manage their health. Some 15% of those ages 18-29 have such apps.
  7. The change wrought by mobile is that people are perpetually connected and pervasively available. It means that media and people are available anywhere with any device on any of three screens. Quick tout of Nielsen 3-Screen research (unless you want to do that) and how this shifts the venues and times of people’s encounters with media. Consumers run the playlist now, not the media companies. This changes people’s sense of place (and placelessness) and present. They can be with any one at any time and this creates the reality of “absent presence”.
  8. More than a quarter of American adults – 26% – used their cell phones to learn about or participate in the 2010 mid-term election campaign.   In a post-election nationwide survey of adults, the Pew Research Center’s Internet & American Life Project found that 82% of adults have cell phones. Of those cell owners, 71% use their phone for texting and 39% use the phone for accessing the internet. With that as context, the Pew Internet survey found that: 14% of all American adults used their cell phones to tell others that they had voted. 12% of adults used their cell phones to keep up with news about the election or politics. 10% of adults sent text messages relating to the election to friends, family members and others. 6% of adults used their cells to let others know about conditions at their local voting stations on election day, including insights about delays, long lines, low turnout, or other issues. 4% of adults used their phones to monitor results of the election as they occurred. 3% of adults used their cells to shoot and share photos or videos related to the election. 1% of adults used a cell-phone app that provided updates from a candidate or group about election news. 1% of adults contributed money by text message to a candidate or group connected to the election like a party or interest group.  If a respondent said she or he had done any of those activities in the last campaign season, we counted that person in this 26% cohort. Throughout this report we call this group “mobile political users” or the “mobile political population.”