Freda Lacey of PAVO spoke at the All Wales Residential Participation Network 2012 about the Making a Difference Together event and its success in engaging service users with mental health issues.
Siaradodd Freda Lacey o PAVO yn Rhwydwaith Cyfranogaeth Breswyl Cymru Gyfan 2012 am y digwyddiad Gwneud Gwahaniaeth Gyda'n Gilydd a'i lwyddiant o ran ymgysylltu gyda defnyddwyr gwasanaeth sydd â phroblemau iechyd meddwl.
Making a Difference Event Together / Digwyddiad Gwneud Gwahaniaeth Gyda'n Gilydd
Freda Lacey Mental HealthDevelopment and Participation
• Who are we?• General issues regarding Participation• Recent Participation Case Study – Overview of event – Getting people involved/engaged – Results – Highlight two people’s experience – Next steps• Any questions?
Who are we?Powys Association of VoluntaryOrganisations (PAVO) is an interdependentintermediary body whose purpose is toempower and equip the third sector inPowys, enabling it to deliver its aims andobjectives effectively, and to represent andfacilitate the engagement of the third sectorat all levels of the strategic planning process.
• General issues regarding Participation • Understanding people – Stakeholder Analysis • Overwhelming number of “participation” activities? – What’s in it for me? (WIFM) • Language – Keep it Short and Simple (KISS) • How to reach the “Silent Majority” – Is this possible? • Statutory jadedness, how to collaborate? • When to wield pressure and when to massage need? • Transportation, geographic issues
Recent Participation Event – May 16th, Newtown“MAKING A DIFFERENCE TOGETHER” THROUGH STRONGER IN PARTNERSHIP
Keynote Speaker Eleanor LongdenMentioned as a key contributor to success of event
The Making of a “Schizophrenic” Cause Eleanor Longden Sexual abuse Physical and emotional harm Lack of protection No escape Denial Betrayal Powerlessness Effect Hearing voices Self-injury Dissociation Unusual beliefs - „delusions‟
Exerpt from Eleanor‟s mental health assessment notes
% of Population With Experience 0 2 4 6 8 10 12 14 16 18 20 Bl ue ey es He 17 a rs vo ice s 13 Dy s le x ia 10 Le ft- ha nd ed 10 Bi se xu al 8 He a rt d ise as e 7 Ve g et ar ia n 6 Re d ha ir 4 Ha s a Ph D 3 St a m m er s 1 Hearing Voices and Human Variation* Data limited to Western, industrialised nations
DVD available fromwww.workingtorecovery .co.uk
Participation Exercise – A Journey of 1000 miles begins with a single step (Lao Tzu)
Participation Exercise – Journey to Wall of Discovery – Words to Inspire
Hope Belonging Power ControlResponsibility Motivation Inspiration Choice Recovery
(Feedback from participant)Good morning Freda,I came home yesterday absolutely shattered but full of hope. I learnt more yesterday aboutMental Health and indeed myself in what seemed like a few very short hours, than all of my tenyears fighting the illness and the system.I dont normally write letters of praise but you and your team have taken the system and given it agood old shake up and to give us "a voice" - fantastic! Until yesterday I thought I was a "Victim"I want to keep this short, I have to mention "Eleanor Longden", when she stood up andintroduced herself and said "I will be talking to you all for 45 minutes" I thought oh god, 45minutes, how wrong could I be! I could have listened to that brave and courageous lady all day.It was a privilege and an honour to witness.Lastly, my Wife Helen has organised trade and direct selling events etc for 24 years and I knowthe hard work that goes into an event such as this. What impressed me was the "loose format".The fact that all of the Survivors, who like me struggle at social events, it is a great testament toyou and your team that we were still there for the close of the event. Thanks again, John 52 - Bi-Polar but not stupid :)Freda, if you could make it happen, I would like this letter printed in a trade publication or localpress, somewhere that it might do some good for others. I think at long last I dont feel ashamedof my illness!
Participation ResultJane is now involved in speaking about her experiences and participates in on-going work with the Police
Next Steps?• John – Event and Report consultation, photography and publicity• Jane – Advising Police Confidence and Equality Group, Care Planning• Participation – Four people who use services involved post event• Report – Four people who use services involved in writing report• Future events – World Mental Health Week, October 2012 Participation IS a risk worth taking
To RiskTo laugh is to risk appearing a fool,To weep is to risk appearing sentimentalTo reach out to another is to risk involvement,To expose feelings is to risk exposing your true selfTo place your ideas and dreams before a crowd is to risk their lossTo love is to risk not being loved in return,To hope is to risk despair,To try is to risk failure.But risks must be taken because the greatest hazard in life is to risknothing.The person who risks nothing, does nothing, has nothing, is nothing.They may avoid great suffering and sorrow,But they cannot learn, feel, change, grow or live.Chained by servitude, they are a slave who has forfeited all freedom.Only a person who risks is truly free…..William Arthur Ward
Any Questions? Freda.Lacey@pavo.org.uk Tel: 01597 828668