UK NSC stakeholder event 2017 Anne Mackie presentation

1. Evaluation: turning ideas and
requests into practice
ProfAnne Mackie
Public Health England leads the NHS Screening Programmes

2. New idea 1
• Proposal (modification or new)
• Review against criteria. Literature and consultation
• Meets them all (AAA)
• UK NSC recommendation
• Ministerial agreement
• Money
• Pilot
• Early implementation learn, learn, learn
2 Evaluation: turning ideas and requests into practice

3. AAA
• Several randomised controlled trials (RCTs)
• Programmes underway as part of the RCT (effectively pilots)
• Phased (slow) national roll out
3 Evaluation: turning ideas and requests into practice

4. New idea 2
• Proposal (modification or new)
• Review against criteria. Literature and consultation
• Meets some but important details missing (test, natural history, treatment)
• UK NSC recommendation
• Ministerial agreement
• Discussion re; primary research
4 Evaluation: turning ideas and requests into practice

5. New idea 3
• Proposal (modification or new)
• Review against criteria. Literature and consultation
• Meets very nearly all but important (UK) info missing and
• research not possible or appropriate (no new knowledge, numbers too
small, can only find out by running screening )
• UK NSC recommendation to do an evaluation or pilot
• Ministerial agreement
• Money
• Evaluation or pilot (with as much formal academic and research competent
support as possible)
• Back to UK NSC for formal recommendation or not
5 Evaluation: turning ideas and requests into practice

6. Examples
• MCADD
• Bloodspot extension
• NIPT
• SCID
6 Evaluation: turning ideas and requests into practice