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ICF as a tool to translate problems into the realm of functioning

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Part 1 of Mini-Symposium "Connecting 'Patient-Reported Problems' to 'Patient-Reported Outcomes' using the ICF at the 30th Annual Meeting of the European Academy of Childhood Disability in Tbilisi, Georgia

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ICF as a tool to translate problems into the realm of functioning

  1. 1. Connecting 'Patient-Reported Problems' to 'Patient-Reported Outcomes' using the ICF Mini-Symposium, May 31st, 2018 In order of appearance: Olaf Kraus de Camargo (@DevPeds) Jennifer Johannesen (@jenjohannesen) Gabriel M. Ronen Liane Simon
  2. 2. Outline 1. ICF as a tool to translate problems into the realm of functioning 2. How can I ensure that discussing a problem from the ICF perspective will not be another “paternalistic approach” or a diversion from the true needs of my child? 3. ICF as a tool to choose outcomes 4. Problems we don't talk about - the hidden goals of professionals
  3. 3. ICF as a tool to translate problems into the realm of functioning • Functioning: “umbrella term encompassing all body functions, structures, activities and participation; similarly, ‘disability’ serves as an umbrella term for impairments, activity limitations and participation restrictions” (WHO, 2001) • ICF Framework: is a “systems model”, i.e. “the system can fail even if all subparts are intact and working properly” (Wade and Halligan 2017). • “Applied to the ICF, even the presence of all functions, structures, activities and participation items represented in the ICF categories does not necessarily lead to people having successful functioning." (Stallinga, in press)
  4. 4. A Functioning System https://youtu.be/V4f_1_r80RY
  5. 5. The ICF Framework WHO, 2001
  6. 6. Body Functions and Structures Activities Participation Environmental Factors Personal Factors Health conditions ICD10: • Periventricular leukomalacia • Encephalopathy after kernicterus • Bilateral severe hearing loss • Vision impairment • Cerebral Palsy (GFMCS III) • female, 5 yrs • Refugee • Ex-preemie • Good humoured • Curious • Fear of health professionals Strengths Impairments Left hand motor control Brain (Cognition, motor control) Sleeps well Hearing Vision Articulation Strengths Limitations Indicate needs with eye gaze Speaking Holding objects with her left hand Hand use Listening Walking Strengths Restrictions Complete Puzzles Dressing Drawing Eating Scooting on the floor Hygiene Plays with toys Expressing needs verbally Facilitators Barriers Hearing Aids Stairs Family Small living space Helmet Lack of knowledge of family how to introduce assistive devices Toilet Seat Paula
  7. 7. Paula
  8. 8. Paula
  9. 9. Paula
  10. 10. Paula
  11. 11. Paula
  12. 12. •Periventricular leukomalacia •Encephalopathy after kernicterus •Bilateral severe hearing loss •Vision impairment •Cerebral Palsy (GFMCS III) Health conditions ICD10:Paula
  13. 13. improve understanding of communication device increase autonomy teach parents the use of assistive devices model the use for Paula, normalize technology enrol Paula in swimming program increase fitness, fun and friendships without having to walk • Brain (Cognition, motor control) • Articulation • Hand use • Expressing needs verbally • Lack of knowledge of family how to introduce assistive devices • curious • Fear of health professionals enrol Paula in swimming program activity not focused on language teach using technology to operate toys, surf internet she is curious and has fun learning new skills increase social network of family reduce the burden on the parents https://goo.gl/3RYmfV Paula
  14. 14. References (in order of appearance) • World Health Organization. (2001). International Classification of Functioning, Disability and Health: ICF. Geneva, Switzerland: World Health Organization. • Wade, D. T., & Halligan, P. W. (2017). The biopsychosocial model of illness: a model whose time has come. Clinical Rehabilitation, 31(8), 995–1004. https://doi.org/10.1177/0269215517709890 • Stallinga H. in: Kraus de Camargo, O., Simon, L., Ronen, G. M., & Rosenbaum, P. L. (Eds.). (in press). ICF - The International Classification of Functioning, Disability and Health - Family, Community and Clinical Applications. London, UK: Mac Keith Press, London. • National Geographic “Flight of Starlings” (2016): https://youtu.be/V4f_1_r80RY • F-words Tool by CanChild: https://goo.gl/3RYmfV

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