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Improving Health and Functioning Using
Mobile ICF (mICF) Technology
- the mobile ICanFunction App
Patricia WELCH SALEEBY1,...
Introduction
• An estimated 15% of population experience
limitations in activities and participation with 2-
4% severe lim...
WHO and ICF
• World Health Organization (WHO) aims at re-
engineering primary health care with emphasis
on community-based...
Current use of the ICF
• Major use has been in research on ICF
• Despite many initiatives to train clinicians
worldwide, t...
A global online survey for social
and health care specialists (n=1,198)
• Purpose was to assess needs requirements to
deve...
Results from the global
online survey
• Many people do not have experience in using the
ICF neither in research nor in cli...
International mICF Partnership
• An international collaborative of the Functioning
and Disability Reference Group of the W...
When “taking a history”
• Clinicians focus on pieces of information from
various sources (patient, family, professionals) ...
Linda and her son Erik
• Linda struggled with all the deprecating comments
her family members made about her son Erik duri...
I am Erik.
What works for me?
• Give me time to talk – I may
take longer but I have lots to say
• Let me eat what I can, w...
Short profile captures Erik’s
difficulties and strengths
09-05-2015 mICF International Partnership 11
Erik’s profile ICF i...
mICF International Partnership09-05-2015 12
Erik’s profile ICF items ICF codes
Learning to chew and
swallow food
Chewing
S...
Based on the underlying
coding with ICF
• Linda was able to get a nice printout to be shared with
her relatives
• Sharing ...
Connection with others
• She decided to connect with this family over the
secure chat to obtain more information
• By usin...
Approach – mobile
ICanFunction App (mICF)
• Easy to use, safe mobile solution for all people
• A person can share his/her ...
How will mICF be developed?
• Data will be patient-driven, facilitating shared
decision-making and well-coordinated, holis...
mICF International PartnershipTwitter: @ICFmobile 17
• Clinical studies will focus on older people, as
well as children an...
mICF International PartnershipTwitter: @ICFmobile 18
Funding Initiatives
mHealth solution based on
International Classific...
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mICF - mobile ICanFunction App

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A short overview of the developmental process and the goals for the mICF platform, using big data analytics based on patient-driven data.

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mICF - mobile ICanFunction App

  1. 1. Improving Health and Functioning Using Mobile ICF (mICF) Technology - the mobile ICanFunction App Patricia WELCH SALEEBY1, Olaf KRAUS de CAMARGO2, Stefanus SNYMAN3, Jaana PALTAMAA4, Joanne VALERIUS5, Kaija SARANTO6, Petteri WECKSTRÖM4, Thomas MARIBO7, Heidi ANTTILA8 Pacific Rim International Conference on Disability and Diversity May 19, 2015 1Southern Illinois University, United States of America, 2 McMaster University, Canada, 3 University of Stellenbosch, South Africa, 4 Jyväskylä University of Applied Sciences, Finland, 5 Oregon Health & Science University, United States of America, 6 University of Eastern Finland, Finland, 7 Rehabilitation Center Marselisborg, Aarhus University, Denmark, 8 National Institute for Health and Welfare, Finland mICF International Partnership 1
  2. 2. Introduction • An estimated 15% of population experience limitations in activities and participation with 2- 4% severe limitations (World Bank & WHO, 2001) • These needs are not easily transferred from patients to services nor interprofessionally • Potential consumers include all people as well as all social and health care organizations in the Americas, Europe, Africa, Asia and Australia mICF International PartnershipTwitter: @ICFmobile 2
  3. 3. WHO and ICF • World Health Organization (WHO) aims at re- engineering primary health care with emphasis on community-based, person-centered care • The International Classification of Functioning, Disability and Health (ICF), provides standardized information structure and common language across professionals, to describe the lived experience of a person’s real life situation mICF International PartnershipTwitter: @ICFmobile 3
  4. 4. Current use of the ICF • Major use has been in research on ICF • Despite many initiatives to train clinicians worldwide, the ICF has not been used in clinical practice (across professions) for multiple reasons • Several groups have started to investigate the feasibility of an electronic or a mobile version of the ICF in order to facilitate the clinical use • While it is not too difficult to transfer the classification into an electronic and searchable document, this would only be part of the overall process of using the ICF clinically mICF International PartnershipTwitter: @ICFmobile 4
  5. 5. A global online survey for social and health care specialists (n=1,198) • Purpose was to assess needs requirements to develop a mICF to collect patient-centered data for clinical decision-making • Conducted June-December 2014 in 40 countries, via a “snowball” system • English, Afrikaans, Chinese, Danish, Dutch, Finnish, French, German, Japanese, Korean, Mongolian, Portuguese (Brazil), Portuguese (Portugal), Spanish and Thai mICF International PartnershipTwitter: @ICFmobile 5
  6. 6. Results from the global online survey • Many people do not have experience in using the ICF neither in research nor in clinical practice • Even among those who are familiar with the ICF: only 30-50% would always ask about personal or environmental factors • Nearly all wanted to use electronic devices for collecting and reporting health data • Most benefits were seen in improved patient care with better supported clinical reasoning, decision- making about interventions, and in monitoring functional health over time mICF International PartnershipTwitter: @ICFmobile 6
  7. 7. International mICF Partnership • An international collaborative of the Functioning and Disability Reference Group of the WHO’s Family of International Classifications Network was established to investigate the development for a mobile application for the ICF (mICF) • Included in the WHO-FIC FDRG strategic work plan • 248 collaborators from 48 countries to develop • User-friendly ICanFunction (mICF) health service platform to conceptualise health and wellbeing as a dynamic interaction between a person’s health condition, functioning and contextual factors mICF International PartnershipTwitter: @ICFmobile 7
  8. 8. When “taking a history” • Clinicians focus on pieces of information from various sources (patient, family, professionals) that help them to understand what is going on • Putting many pieces together can help to make a more accurate diagnosis • One of the challenges for clinicians is to find the balance between collecting all the right pieces of information to make a diagnosis and paying attention to the unique stories of individual patients’ daily lives • Good patient care takes them both into account! mICF International PartnershipTwitter: @ICFmobile 8
  9. 9. Linda and her son Erik • Linda struggled with all the deprecating comments her family members made about her son Erik during the celebrations on the long weekend • He did not eat as other kids his age, did not behave like them or play like them. Tired of all the “well- meant” advice of how to educate and raise her child and not having a diagnosis to explain easily to others Erik’s differences, … • She started describing his strengths and struggles in the “mICF PROFILE BUILDER” to share a description of her son that might help others to better understand, accept and include him in future family gatherings mICF International PartnershipTwitter: @ICFmobile 9
  10. 10. I am Erik. What works for me? • Give me time to talk – I may take longer but I have lots to say • Let me eat what I can, when I can … I know what foods are safe for me, and forcing me to eat won’t help • If I am acting poorly, let my mom deal with it. • If I get overwhelmed by sensory input (noise, sight, touch), my behaviour may look inappropriate, but it is my reaction to an overwhelming situation. Please give me time alone. mICF International PartnershipTwitter: @ICFmobile 10 Things I am learning: • Learning to chew and swallow food; Learning to talk clearly; Learning to play well with my friends What I like doing: • Playing with my sister; Staying close to mom; Running around; Pretend play with my toys; Helping mom vacuum and clean. What is important for me? • Good sensory regulation; Proper nutrition with PediaSure®; People who are patient with me. What people say about me? • Busy; Adorable; Smart; Funny; Hyper; Small; Doesn’t eat; Hard to Understand
  11. 11. Short profile captures Erik’s difficulties and strengths 09-05-2015 mICF International Partnership 11 Erik’s profile ICF items ICF codes Give me time to talk – I may take longer but I have lots to say Articulation functions b320 Let me eat what I can, when I can … I know what foods are safe for me, and forcing me to eat won’t help Ingestion functions Swallowing Individual attitudes of extended family members b510 b5105 e415 If I am acting poorly, let my mom deal with it. Managing one's own behaviour Individual attitudes of immediate family members d250 e410 If I get overwhelmed by sensory input (noise, sight, touch), my behaviour may look inappropriate, but it is my reaction to an overwhelming situation. Please give me time alone. Handling stress and other psychological demands Sound quality Light Tactile perception Auditory perception Visual perception Individual attitudes of extended family members d240 e2501 e240 b1564 b1560 b1561 e415
  12. 12. mICF International Partnership09-05-2015 12 Erik’s profile ICF items ICF codes Learning to chew and swallow food Chewing Swallowing b5102 b5105 Learning to talk clearly Articulation functions b320 Learning to play well with my friends Shared co-operative play d8803 Playing with my sister Shared co-operative play d8803 Staying close to mom Physical contact in relationships d7105 Running around Running d4552 Helping mom vacuum and clean Helping to do housework d6406 Good sensory regulation Perceptual functions b156 Proper nutrition with PediaSure® Food e1100 People who are patient with me Attitudes e4 Busy Energy and drive functions b130 Adorable Personal factor Personal strength Smart Personal factor Personal strength Funny Personal factor Personal strength Hyper Energy and drive functions b130 Small Height percentile Doesn’t eat Appetite b1302 Hard to Understand Articulation functions b320
  13. 13. Based on the underlying coding with ICF • Linda was able to get a nice printout to be shared with her relatives • Sharing the anonymised profile on the “mICF WEBSPACE” revealed that there was another boy with similar issues living in the same town • His parents had uploaded his profile on the protected webspace and also indicated that he benefitted significantly from using text-to-speech software that not only helped him learn to read but through the voice recognition software was also able to provide feedback to their son on his articulation, helping him to improve his intelligibility in a playful and non- judgmental way Twitter: @ICFmobile mICF International Partnership 13
  14. 14. Connection with others • She decided to connect with this family over the secure chat to obtain more information • By using the App this mother was able to better articulate her son’s needs and strengths and also obtain automatic recommendations based on the functional profile of her son • If parents try to find help for their children on Webpages or in chat rooms they usually feel overwhelmed by the deluge of information and the need to filter out what is applicable to their own child and their specific family needs mICF International PartnershipTwitter: @ICFmobile 14
  15. 15. Approach – mobile ICanFunction App (mICF) • Easy to use, safe mobile solution for all people • A person can share his/her own functional needs (problems and strengths) and thus ease the conversation with professionals • The professionals get easy and quick summary for the rehabilitation or service plan, and can follow-up changes • Minimize need for repeat data collection: time-savings • A solution that bases on international standard to describe each person’s functioning as a dynamic interaction between the person’s health condition, functioning, and environmental and personal factors  comprehensiveness, transferability mICF International PartnershipTwitter: @ICFmobile 15
  16. 16. How will mICF be developed? • Data will be patient-driven, facilitating shared decision-making and well-coordinated, holistic, continuity of care across various service settings • Personal health data will be processed securely, informing a patient-empowering bio-psycho-social approach • Big data analytics will enable personalised, predictive care • Proof-of-concept validation across the globe include low-and middle income countries mICF International PartnershipTwitter: @ICFmobile 16
  17. 17. mICF International PartnershipTwitter: @ICFmobile 17 • Clinical studies will focus on older people, as well as children and adults with chronic diseases • State-of-the-art service design will entail iterative in-market experimentation, and impact and economic evaluation • An extensive dissemination strategy, in close collaboration with the International mICF Partnership, will focus on change management, allowing new patient pathways and interprofessional collaboration • Lean, agile commercialization will ensure sustainability and the development of new business and service solutions adhering to ethical and legal regulations
  18. 18. mICF International PartnershipTwitter: @ICFmobile 18 Funding Initiatives mHealth solution based on International Classification of Functioning, Disability and Health The mobile ICanFunction App (mICF) Horizon 2020 PHC-25 Call Coordinator: THL 3,5 years: 1.1.2016-30.6.2019 Twitter @ICFmobile Facebook ICanFunction

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