Transforming health systems for chronic patients: The challenges of implementation (2-3 Junio 2010). Bilbao. Presentación del libro

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  • Editors made a Literature review to support the lead contributors and reviewed the drafts. T echnical support team : create a WEB Work team to develope each chapter…
  • Editors made a Literature review to support the lead contributors and reviewed the drafts. T echnical support team : create a WEB Work team to develope each chapter…
  • Cuestiones que podrían impulsar el diseño, la ejecución y la difusión de proyectos de colaboración a gran escala para enfrentarnos a los retos que supone la polipatología, en todos los niveles
  • Transforming health systems for chronic patients: The challenges of implementation (2-3 Junio 2010). Bilbao. Presentación del libro

    1. 1. Isac B 1 , Gosálvez D 1 , López A 1 , Contreras AJ 1 , Cabrera A 1 , Jadad AR 2 1 Andalusian School of Public Health, 2 University Health Network, Toronto University 1 Granada, Spain, 2 Toronto, Canada A Collaborative Book On Polypathology by the OPIMEC Community: the editing experience
    2. 2. <ul><li>Introduction </li></ul><ul><li>The approach </li></ul><ul><li>The output </li></ul><ul><li>Conclusions </li></ul>Contents
    3. 3. <ul><li>New phenomenon  “ polipathology “ </li></ul><ul><li>A collaborative virtual environment  www.opimec.org </li></ul><ul><li>A key meeting  Seville, March 2009 </li></ul><ul><li>Ten topic areas </li></ul><ul><li>The challenge  Would it be possible to co-create a book on polypathology, from scratch, within a year, with volunteer contributors from all over the world, using online social media and with no financial incentives ? </li></ul>Introduction
    4. 4. The Approach
    5. 5. 1. Why Multiple Chronic Diseases? Why now? What is going on around the world? AR. Jadad 2. The language of polypathology. M. Ollero, M. Bernabéu and M. Rincón 3. Prevention and health promotion. R. Smith, C. Rabadán-Diehl, A. Cravioto and A. Wall-Medrano 4. Management models. R. Bengoa, F. Martos and R. Nuño 5. Patient education and self-management support. P. McGowan P, K. Lorig, AR. Jadad 6. Primary care. M. Ollero, JM de la Higuera, M. Bernabeu and MA Ortiz 7. Supportive care and palliative care. A. Lee and O. Yew Jin 8. Integrative medicine. C Tamayo, A Arreaza and C Almonte 9. Socioeconomic implications. F. Martos and E. Herrera 10.Genomics, Robotics, Informatics/eHealth and Nanotechnologies. J.Lorca The approach: Areas
    6. 6. <ul><li>Use language accessible to different potential audiences </li></ul><ul><li>Disclose affiliations </li></ul><ul><li>Make explicit any personal or organizational bias </li></ul><ul><li>Avoid over-emphasizing or focusing on issues related to professional activities or organizational goals </li></ul><ul><li>Acknowledge, whenever possible, the work of all individuals and organizations </li></ul><ul><li>Contribute without financial or political incentives </li></ul>The approach: Principles
    7. 7. <ul><li>Vignette: a vision of the future using a 20- to 30-year horizon </li></ul><ul><li>Summary </li></ul><ul><li>Why is the topic important? </li></ul><ul><li>What do we know? </li></ul><ul><li>What do we need to know?   </li></ul><ul><li>What innovative strategies could fill the gap? </li></ul>The approach: Chapter structure
    8. 8. <ul><li>From authorship to contributorship to acknowledge the work of members of collaborative groups </li></ul><ul><li>Smith R. Authorship is dying: long live contributorship. BMJ. 1997; 315: 696. Available at: http://www.bmj.com/cgi/content/full/315/7110/696 </li></ul><ul><li>From Copyright to Copyleft to promote the exchange of works accesible to the public without restriction </li></ul><ul><li>So we use Creative Commons licenses </li></ul>The approach: intellectual property
    9. 9. The Output
    10. 10. Edition 1.0 Edition 2.0 Collaborative Global LIVE EDITION From edition 1.0 to 2.0 Editors Lead Contributors Support technicians Internet Campaign Comments New contributors Acknowledgments Permanent edition (PDF and paper) Moderators Managers and Community Managers Members New members Potential members Web Team Community On Line Work Collaborative creation
    11. 11. <ul><li>Editors : </li></ul><ul><ul><li>First literature review </li></ul></ul><ul><ul><li>Review chapter drafts and approve its version 1.0 </li></ul></ul><ul><ul><li>Produce, with the lead contributors, a list of potential contributors </li></ul></ul><ul><ul><li>Produce the version 2.0 including the comments reviewed </li></ul></ul><ul><ul><li>Judged by consensus with lead contributors who is to be considered a ”contributor” </li></ul></ul><ul><ul><li>One is the guarantor and another coordinates the support team </li></ul></ul><ul><li>Chapter l ead contributors : </li></ul><ul><ul><li>produce the draft and version 1.0 </li></ul></ul><ul><ul><li>Produce, with the editors, a list of potential contributors </li></ul></ul><ul><ul><li>Approve the version 2.0 </li></ul></ul>The output: Roles (I)
    12. 12. <ul><li>Support Team : </li></ul><ul><ul><li>Create, manage and dinamize Work teams online related to each chapter </li></ul></ul><ul><ul><li>Prepare the Internet campaign </li></ul></ul><ul><ul><li>Provide technical assistance </li></ul></ul><ul><ul><li>Facilitate the production of the chapters and the communication between people involved </li></ul></ul><ul><li>Contributors : make substantive comments that lead to changes in the chapters </li></ul><ul><li>Acknowledgments : make other insightful comments </li></ul>The output: Roles (II)
    13. 13. <ul><li>Messages adapted to the language, area of interest and contents of each of the recipients </li></ul><ul><li>Time available for contributions: December 2009 to March 2010; at least 2 months per chapter </li></ul><ul><li>People targetted: 550 </li></ul><ul><li>Banners on websites </li></ul>The output: Internet campaign <ul><li>References on Blogs of lead contributors: </li></ul><ul><ul><li>http://blogs.bmj.com/bmj/2010/01/26/richard-smith-on-a-chance-to-collaborate-on-a-book-on-complex-chronic-disease/#comments. </li></ul></ul><ul><ul><li>http://www.jlorca.es/2010/01/27/redaccion-de-libro-a-modo-web-2-0/ </li></ul></ul><ul><li>Optimization of the OPIMEC platform for top search engines </li></ul><ul><li>Creation of a space on Facebook </li></ul>
    14. 14. <ul><li>More than 13,000 visits from people in 80 different countries </li></ul><ul><li>235 comments on the chapters from 55 people and 18 countries. </li></ul><ul><li>Chapters with most comments: </li></ul><ul><ul><li>Health promotion and prevention </li></ul></ul><ul><ul><li>Patient education and self-management </li></ul></ul><ul><ul><li>The language of polypathology </li></ul></ul><ul><ul><li>Socioeconomic implications </li></ul></ul>The output: Participation
    15. 15. June of 2010: the entire edited version is available as a free hard copy or in PDF, for free download at www.opimec.org . Chapters will also continue to be available at www.opimec.org , as a “live” version. The final output
    16. 16. Conclusions
    17. 17. <ul><li>It is essential to have a clear common goal, a diverse editorial group, and institutional support </li></ul><ul><li>Matching versions of the same document in multiple languages is difficult </li></ul><ul><li>Firm deadlines for contributions must be set and enforced </li></ul><ul><li>Technological glitches are unavoidable </li></ul><ul><li>Copyleft and contributorship are viable options </li></ul>What did we learn during the process?
    18. 18. What offers this book? <ul><li>Easy access to the best knowledge available in ten main areas related to polypathology </li></ul><ul><li>Questions that could drive collaborative projects to meet the challenges of polypathology </li></ul>What does this book give us?
    19. 19. We have proved that we can work across traditional boundaries, as we contribute to a common agenda Conclusion We must scale up the level of our commitment to create and implement the mighty interventions that are required to overcome the challenges we face together and …
    20. 20. Thank you for your attention and support See you at: www.opimec.org

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