End-user co-creation: how to reach excellence and impact

1. End-User Co-Creation - How to reach Excellence and Impact:
Marc Lange, Secretary General

2. EHTEL’s mission: the European eHealth Stakeholder Platform
05/01/202011th European Innovation Summit
Authorities
and Payers
UsersIndustry
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Article 3, §4 of the 1999 bylaws:
This forum is therefore designed to
improve the ties and the exchange of
contacts between the different
stakeholders of the healthcare sector,
and to ensure the timely exploitation of
appropriate information and
communication technologies, directly or
through their national and international
associations, in particular: 

3. Your health data available and shareable
when and where you need

4. Our key goals are
• To complement the current interoperability infrastructures
• With new technologies for health data exchange centered on the person,
• Based on a bottom-up approach that
• does not require the coordination by a superior authority
• and leaves more control of health data to the people
• To contribute to the digital transformation of health and care systems
and support patient empowerment policies
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VISION
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5. The project will release an open specification to securely exchange health data
using the InteropEHRate protocols between different persons’ S-EHRs, and different
applications of researchers and healthcare professionals of different countries.
Scenario 1
Device-to-device temporary sharing
InteropEHRate TECHNICAL APPROACH
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The prototype
of a mobile app

6. • Patients are in control of all personal health data and can collect, see and
share it with healthcare professionals, researchers or whoever they want.
• People are hence mediators for health data exchange that can also be
transferred privately and securely through device-to-device protocols.
• The patient is not locked with one vendor and may change the S-EHR app or
move data between cloud storages.
• The S-EHR app and cloud vendors may be different.
• The cloud storage can be used for emergencies, like a national EHR.
• InteropEHRate will define vendor-independent protocols for direct
communication with patients and vendor-independent criteria to be fulfilled by
the apps and service providers for secure storage of health data on mobile and
on cloud.
CORE FUNCTIONALITIES
Scenario 2
Emergency consultation
of S-EHR cloud
Scenario 3
Sharing of personal health data for research
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7. • Critical step: define an IT solution implementing an
effective model of data exchange and management
• In respect of medico-legal regulation
• In order to simplify the communication with final users,
the analysis of requirements is based on the specification of User Scenarios
• A “User Scenario” is a storyboard describing the interactions of different actors in a
particular situation to solve a specific problem.
• In medicine, scenarios are currently used in clinical practice for teaching, both for physicians and nurses
• User scenarios involve access, by authorized people, to health data of patients
coming from different European countries.
END-USER CO-CREATION
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8. • Critical step: define an IT solution implementing an
effective model of data exchange and management
• In respect of medico-legal regulation
• In order to simplify the communication with final users,
the analysis of requirements is based on the specification of User Scenarios
• A “User Scenario” is a storyboard describing the interactions of different actors in a
particular situation to solve a specific problem.
• In medicine, scenarios are currently used in clinical practice for teaching, both for physicians and nurses
• User scenarios involve access, by authorized people, to health data of patients
coming from different European countries.
END-USER CO-CREATION
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INNOVATION SUMMIT
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How?
Nurses, patients and doctors have met in focus
groups to discuss the requirements for each
scenario, to view the mock ups and to provide
suggestions on their improvements
Focus groups have been created in all pilot sites
(i.e. Italy, Belgium, Greece and Romania)

9. • The technology is only an enabler for e.g. transforming usual practices and
processes to the benefit of people, healthcare providers, researchers
• This is again an area where end-user co-creation matter and where health professionals, nurses in particular,
have a key role.
THE CASE OF DISRUPTIVE/TRANSFORMATIONAL INNOVATIONS
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Example of transformation digitally enabled Example of co-creation methodology

10. • For a technology to have a transformational potential, co-creation matters also with
businesses
• It is about creating innovation hubs and open ecosystems to develop new services relying on this open source
technology
• Co-creation with businesses also matter policy-wise to contribute to the emergence
of a fair data economy,
• Where people benefits from new services in exchange of data they agree to share
• To achieve this part of the work, InteropEHRate can count e.g. on the support of the
OPEN DEI project on digital platforms and innovation ecosystems.
THE CASE OF DISRUPTIVE/TRANSFORMATIONAL INNOVATIONS
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INNOVATION SUMMIT
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11. 11

12. OPENDEI – Presentation Date 12

13. OPENDEI – Presentation Date 13
OPEN DEI will promote and
sustain examples/good practices
in business models based on
participation, collaboration and
knowledge sharing

14. www.interopehrate.eu
THANK YOU
HAPPY to ENGAGE in CONVERSATIONS