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Expert in the room
The power of storytelling as a force
for transformational change
Pip Hardy
Supported by
5th June 2015
Joining in today and beyond
• Please use the chat box to contribute continuously during the
web seminar and raising your h...
The team today
Session lead:
Jackie Lynton
@jackielynton
Presenter:
Pip Hardy
@PilgrimPip
Chat monitor:
Carol Read
@CarolL...
In 2003, Pip co-founded the Patient Voices
Programme in the hope of reminding all those
who design and deliver healthcare ...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
The power of storytelling as a force
for transformational change
Pip Hardy
Pilgrim Projects / Patient Voices School for He...
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The power of stories 2

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Our first Expert in the Room webinar explores how stories are an essential ingredient in transforming health and care.

Pip explains the rationale, how stories can be gathered and, most importantly, how the process puts people at the heart of care.

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The power of stories 2

  1. 1. Expert in the room The power of storytelling as a force for transformational change Pip Hardy Supported by 5th June 2015
  2. 2. Joining in today and beyond • Please use the chat box to contribute continuously during the web seminar and raising your hand to join the discussion • Please tweet using hashtag #SHCR and the handle @School4Radicals @theedgenhs • Join our Facebook group School for Health and Care Radicals • We will produce summaries of the discussions on each module using Storify and Pinterest and put on the website • Join in the Tweetchat each Wednesday at 4-5pm (GMT) using the hashtag #SHCR
  3. 3. The team today Session lead: Jackie Lynton @jackielynton Presenter: Pip Hardy @PilgrimPip Chat monitor: Carol Read @CarolLRead Twitter monitor: Kate Pound @kateslater2 Case study : Bev Rodgers
  4. 4. In 2003, Pip co-founded the Patient Voices Programme in the hope of reminding all those who design and deliver healthcare of our shared humanity and the need for kind, dignified, respectful, compassionate patient- centred care through the creation and sharing of digital stories of health and illness, hope and hopelessness, care and lack of it. The Programme is now one of the largest and longest-running digital storytelling projects in the world and won the 2010 BMJ award for Excellence in Healthcare Education. Pip has an MSc in Lifelong Learning and is currently working on a PhD investigating the potential of digital stories to transform healthcare. Pip Hardy
  5. 5. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015
  6. 6. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Welcome! Plan for the day • A bit of background • Why are stories so important? • What makes a good story? • Whose stories do you need to hear? • How can you use stories? • Finding your own story
  7. 7. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Where in the world are you?
  8. 8. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Where in the UK are you?
  9. 9. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Patient Voices patience, noun. calm endurance of pain or any provocation; perseverance patient, adj. having or showing patience voice, verb. give utterance to, express Concise Oxford Dictionary, 1964
  10. 10. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Patient Voices: a short history • Established in 2003 • ~1000 stories facilitated/recorded • ~600 stories released • ~130 workshops, plus some home visits! • ~15 Patient Voices stories WIP • ~1 million hits on the website annually • ~2000 hits per working day on PV website • ~40,000 stories viewed during the year • ~100 presentations • 6 papers published • 1 book published
  11. 11. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Patient Voices: where we work [[insert world map with workshops]]
  12. 12. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu There is more that unites us…
  13. 13. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Why tell stories? ‘We tell stories to entertain and to teach.’ Pascal
  14. 14. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The power of stories http://www.slideshare.net/amitkaps/fifth-elephant-2014-talk- crafting-visual-stories-with-data?sf3881865=1
  15. 15. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Stories make us human
  16. 16. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Stories and statistics ‘Statistics tell us the system’s experience of the individual, whereas stories tell us the individual’s experience of the system…’ Sumner, 2009
  17. 17. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Lies, damn lies and . . . 'As always in history, statistics give little insight into individual experience. That can only be gained by listening to stories.' Laurence Rees
  18. 18. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu People before numbers ‘If there is one lesson to be learnt, I suggest it is that people must always come before numbers. It is the individual experiences that lie behind statistics and benchmarks and action plans that really matter, and that is what must never be forgotten when policies are being made and implemented.’ Robert Francis 2010
  19. 19. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Stories and empathy ‘Stories promote empathy, which in turn prompts reflection and serves as the motivation for learning and acquiring new knowledge.’ Charon, 2002
  20. 20. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Tacit knowledge and ways of knowing ‘The things we know but don’t necessarily know that we know….’
  21. 21. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Transforming culture ‘Storytelling is the mode of description best suited to transformation in new situations of action.’ Schön, 1988
  22. 22. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu ‘… refers to all the ways in which human beings overcome their original barbarism, and through artifice, become fully human’. Samuel Pufendorf Culture ‘…the attitudes, feelings, values, and behaviours that characterise and inform society as a whole or any social group within it.’ Collins English Dictionary
  23. 23. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Changing culture • Open and transparent • Respectful and dignified • Kind and compassionate • Just and equal • Humane and connected • Trustworthy and blame- free • Continuous learning
  24. 24. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Sustaining culture • Good communication • Two-way flow of information • Sharing values • Sharing stories
  25. 25. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Communication ‘Assure a substantial flow of vital information … so that the information derived would be helpful to all and harmful to none.’ Rex Hardy, 1990
  26. 26. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Case study 1: a culture of safety ‘How can we create a culture of safety if we don’t know what one looks like?’ Association of Air Medical Services (AAMS) Survey
  27. 27. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Go around Cathy Jaynes 2006
  28. 28. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Go around Cathy Jaynes 2006
  29. 29. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Good stories are…. Effective Affective Reflective
  30. 30. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Several years later…. ‘In the meantime, one story at a time, we can leave a lasting impression with those who come behind us.’ ‘I felt the stories were so powerful and did a much better job than any other safety lecture in telling the true story.’ ‘The ability to share these, and other stories like them, is critical if organisations are to learn from mistakes and develop a just culture in which every voice can be heard.’ ‘Stories are essential in creating a culture where safety and humanity are prized and the values of intellectual, emotional and spiritual intelligence inform ‘the way we do things here.’
  31. 31. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu What makes a good story?
  32. 32. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu What makes a good story? ‘I’m sorry to have written you such a long letter – I didn’t have time to write a short one.’ Mark Twain ‘The foundation of a story is an emotional foundation – in other words, a good idea that moves.’ Yann Martel ‘Show, don’t tell.’ ‘Stories are always true: it’s the facts that mislead.’ Jeanette Winterson
  33. 33. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Change ‘All great literature is one of two stories; a man goes on a journey or a stranger comes to town.’ Leo Tolstoy
  34. 34. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu It’s not what you say…
  35. 35. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Story or anecdote? ‘Anecdote has no conflict, no crisis, no resolution.’ ‘In contrast to anecdote, story – at least in the literary sense – offers so much more: narrative arc, unification of action, irrevocable change. Meaning.’ Aaronson 2013
  36. 36. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Passages past dragons ‘No matter what form the dragon may take, it is of this mysterious passage past him, or into his jaws, that stories of any depth will always be concerned to tell….’ O’Connor, 1969
  37. 37. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Case study 2: a ward after the crisis Introducing Bev Rodgers, Ward Manager
  38. 38. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The problem • Very sick patients • Not enough beds • Not enough staff • Not enough time • Poor management • Records in disarray • Medical model of care • No one listens • Culture of fear
  39. 39. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The man in Bed 5 Mett 2013
  40. 40. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The man in Bed 5 Mett 2013
  41. 41. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Personal impact ‘It’s helped me get a lot off my chest – I’ve put it to bed now.’ ‘I didn’t realise how sad everyone was.’ ‘I’m still angry, but making the story helped me process those feelings and I’m not as angry now.’ ‘I feel like we’ve learned a lot about each other’s stories that we didn’t know before. This has brought home what the ward means to everyone.’
  42. 42. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu And now…
  43. 43. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Professional impact
  44. 44. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Professional impact
  45. 45. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Seven elements 1 Point 2 Dramatic question 3 Emotional content (authenticity) 4 Voice 5 Soundtrack 6 Economy 7 Pacing
  46. 46. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Point (of view)
  47. 47. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Dramatic question
  48. 48. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Emotional content (authenticity)
  49. 49. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Voice ‘One of the hardest things in life is having words in your heart that you can't utter.’ James Earl Jones
  50. 50. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Music / soundtrack
  51. 51. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Economy
  52. 52. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Pacing
  53. 53. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu A very short story For sale Baby shoes Never worn
  54. 54. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Case study 3: Dignity and respect
  55. 55. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The challenge Poor patient and staff satisfaction survey scores in relation to dignity, respect and communication
  56. 56. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu What happened? • 8 workshops over three years • 64 participants • 58 stories created • 67 stories released (to date)
  57. 57. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu What happened? • friendships and support networks established www.pilgrimprojects.co.uk © Pilgrim Projects Limited www.patientvoices.org.uk
  58. 58. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu How are the stories being used? • Stories shown at the start of every Board meeting • used in recruitment and selection interviews www.pilgrimprojects.co.uk © Pilgrim Projects Limited www.patientvoices.org.uk
  59. 59. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu How are the stories being used? • induction and staff training • public screenings to raise public awareness of mental health www.pilgrimprojects.co.uk © Pilgrim Projects Limited www.patientvoices.org.uk
  60. 60. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu How are the stories being used? • strengthening the patient voice • reminding staff, patients and carers of our shared humanity www.pilgrimprojects.co.uk © Pilgrim Projects Limited www.patientvoices.org.uk
  61. 61. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Guides ComfortWarning Markers What stories do they tell?
  62. 62. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu What’s changed? • patient-led ‘dignity walks’ • more confident patients and staff, able to tell their stories • increased involvement of patients and carers in creation of care plans • greater recognition of ‘experts by experience’ • more engagement with family members
  63. 63. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Impact on the organisation • Reduction in complaints related to care (45%) • Reduction in complaints related to staff issues (9%) • Reduction in complaints related to communication (22%) • Reduction in CNST claims (50%) • Reduction in management costs
  64. 64. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Impact on the organisation • Reduction in staff time spent investigating complaints • Improvements in patient/carer communication and relationships = better care and increased confidence • Overall quality of care is good/excellent • 95% of 2018 patients would recommend the Trust
  65. 65. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Impact on storytellers ‘It's reminded me of how our creativity connects with part of our soul - how wonderful it is to be part of something that does not have measurable targets or hard matrices.’ A storyteller
  66. 66. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Transformation ‘People reach greater maturity as they find the freedom to be themselves and to claim, accept and love their own personal story, with all its brokenness and its beauty.’ Vanier 2004
  67. 67. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu A decisive moment
  68. 68. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Connection ‘Only connect the prose and the passion ... Live in fragments no longer.’ Forster 1910
  69. 69. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Context
  70. 70. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Crisis
  71. 71. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Closure ‘We shall not cease from exploration, and the end of all our exploring will be to arrive where we started and know the place for the first time.’ T. S. Eliot ‘What we call the beginning is often the end. And to make an end is to make a beginning. The end is where we start from.’ T. S. Eliot
  72. 72. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Stories, values and identity Identity Stories Values ‘It's like everyone tells a story about themselves inside their own head. Always. All the time. That story makes you what you are. We build ourselves out of that story.’ Patrick Rothfuss ‘We know what we are, but not what we may be.’ William Shakespeare ‘Our bodies are made of stardust; our souls are made of stories.’ Rev. Thomas Rhodes ‘It is only in the narrative mode, that one can construct an identity and find a place in one's culture.’ Bruner, 1986
  73. 73. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Creating ourselves ‘Narrative is radical, creating us at the very moment it is created.’ Toni Morrison 1993
  74. 74. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Stories change lives ‘We think we tell stories, but stories often tell us, tell us to love or to hate, to see or to be blind. Often, too often, stories saddle us, ride us, whip us onward, tell us what to do, and we do it without questioning. The task of learning to be free requires learning to hear them, to question them, to pause and hear silence, to name them, and then to become the storyteller.’ Rebecca Solnit, The Faraway Nearby, 2013:4)
  75. 75. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Vulnerability, courage and resilience What they don’t teach you in medical school….
  76. 76. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu An education Powell, 2008
  77. 77. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu An education Powell, 2008
  78. 78. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu EAR Was it: Effective? Affective? Reflective?
  79. 79. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The culture of the mind… ‘The culture of the mind must be subservient to the culture of the heart.’ MK Gandhi
  80. 80. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The stories are all one ‘Each affects the other and the other affects the next and the world is full of stories and the stories are all one.’ Albom 2004
  81. 81. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu If you’d like to know more… Published by Kingsham Press www.kingshampress.com Paperback: http://bit.ly/1IoAYAX Kindle: http://amzn.to/165zTzg
  82. 82. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu The sleepless ones
  83. 83. The power of storytelling as a force for transformational change Pip Hardy Pilgrim Projects / Patient Voices School for Health and Care Radicals Expert in the room 5th June 2015 www.pilgrimprojects.co.uk ©2015 Pilgrim Projects Limited www.patientvoices.eu Thank you pip@pilgrimprojects.co.uk www.patientvoices.org.uk @PatientVoicesUK @PilgrimPip

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