Commitment for carers

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Presentations from the Commitment for Carers meeting held in London on 5 December 2013
#NHSThinkCarer
organised by NHS Improving Quality and NHS England

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Commitment for carers

  1. 1. NHS Improving Quality and NHS England Welcome Commitment for Carers Thursday 5 December
  2. 2. No Fire Alarm scheduled today If Alarm rings please make your way safely to the EXIT, a member of the hotel staff will direct you to the meeting point FREE WiFi is available to all delegates Conference name: NHS2 Password 123KLJ Join us live on Twitter #NHSThinkCarer http://www.nhsiq.nhs.uk/improvementprogrammes/experience-of-care/commitment-for-carers.aspx All refreshments during the day will be served in the foyer outside Booker & Turner Suites Hearing Loop available Photographs will be taken during the meeting
  3. 3. Better Outcomes for Carers and those they support - Developing Commitment to Carers across the NHS and Social Care Philippa Russell, Chair, Standing Commission on Carers E-mail: prussell@ncb.org.uk
  4. 4. ‘Recognised, valued and supported’ – WELCOME to an ambitious day committed to improving outcomes for carers. Our aims are: To improve understanding of the health service responsibilities towards carers as set out in the Mandate and the Carers Strategy Refresh.  To recognise and value carers’ voices and expertise.  To determine the health service’s role in supporting carers.  Identifying the barriers which prevent optimum support for carers.  Reaching a consensus on next steps to improve carers’ experience and support and agreeing commitments to achieve these goals..
  5. 5. ‘Caring is not a career choice – we are here because we care but it’s hard sometimes. Remember there is usually a family behind the patient! Use us, respect us or lose us!’ [Family Carer, 2013]
  6. 6. Understanding 2lst Century carers - WHO cares? [Office for National Statistics, 2012, Carers UK, 2013]  5.4 million carers in England 500,000 dementia carers [9 million expected by 2037]  Greatest rise in those providing 20 hours or more a week (now 2.1 million people]  Numbers of carers providing 50 hours or more care a week [now 1,360,000 people].  74% of carers report impact on their own physical health, 94% on their mental health.
  7. 7. ‘Putting people first’: Understanding the real (often hidden and diverse) lives of carers
  8. 8. Developing commitments to carers: the background to this event    A survey of carers‟ own views on their relationships with the health services. Blogs and a webinar – and tweeting! Raising the profile of carers as partners across the health services – and some key messages about what carers want.
  9. 9. Between October and November 2013 NHS Improving Quality ran a survey of carers in the U.K. 300 CARERS RESPONDED AND TOOK THE SURVEY 215 carers undertaking the survey were aged 30 to 65 Average carer looks after 1.4 people The majority of carers looked after: 1. Children (97) 2. Parents (94) 3. Spouses (79) 1 85 4 44 142 “Help me help the people I care for” 198 carers feel they have had no help sign-posting them to relevant information and advice 95 that did have help mainly got it from charities and / or support groups Majority of carers made aware of survey from: 1. Support groups (65) 2. Twitter (56) 3. Charities (54)
  10. 10. Managing the Web of Care (Last 7 yrs) Care team 2 live-in carers (alternating weekly) Replacement carer [Some night nursing – Health] Emergency carers & Barbara Out-ofHours Doctors/ Paramedics Continence Adviser Consultant District Nurses GP Dietician Dementia Advisory Nurse? Malcolm & Barbara Oxygen service Alzheimer’s Soc outreach worker Community Dentist Occupational Therapist Social Worker Direct Payments Team; Rowan Org. Speech & Language Adviser Wheelchair Service Alternating Mattress technician Equipment Service Physiotherapist
  11. 11. Family Carers – no longer a ‘secret army’ but expert partners within a new NHS and social care system! ‘Resilience – a new metric for primary care and indeed the new NHS? There is more to medicine than medication. Let’s design and incentivise the promotion of individual carer, family, patient and whole family resilience for better health.’ [Dr Trevor Thompson (University of Bristol), Society for Academic Primary Care Conference, 2012]
  12. 12. Domain 2 • “Enhancing the quality of life for people with long-term conditions. Dr Martin McShane Director – Domain 2 12 NHS England Savoy conference
  13. 13. Challenges 13
  14. 14. What the people we serve want wants…. My goals/outco mes Emergencie s Transitions Communicat ion Person centred coordinated care “My care is planned with people who work together to understand me and my carer(s), put me in control, co-ordinate and deliver services to achieve my best outcomes” Care planning Information Decisionmaking 14
  15. 15. What’s the job? Our Mission is: What do we mean by high quality care? How will we measure Reducing premature success? mortality What will My care my care and treatment will be organised look and I will feel around me as a person feel like? to supported keep healthy and spot any problems at an early stage High Quality Care for Allnow and for future generations Good Patient Experience Clinically Effective Enhancing quality of life for people with long term conditions Safe Ensuring people have a positive Helping experience of Treating people to treatment people in a safe recover from and environment & episodes care protecting them of ill Health or from avoidable harm following injury I will feel my safety is I will get the best possible everyone’s paramount treatment in the most concern, but if things appropriate setting My I will do go wrong and be fully preferences I will feel always people will be supported to will be listened in control of be treated with honest recover to and the feedback I managing compassion, with provide will be acted my own condition(s) dignity and me upon respect
  16. 16. Long Term Conditions Community Carers Professions Person 16
  17. 17. Plan Organisational & clinical processes Act Engaged, informed individuals & carers Personcentred, coordinat ed care Health & care profession als committe d to partnershi p working Do Commissioning Study 17
  18. 18. Culture devours strategy… What we see and attempt to address What we don‟t see and don‟t know how to address Individual behaviours Mindsets and beliefs Value s Needs (met or unmet) SOURCE: Scott Keller and Colin Price, „Performance and Health: An evidence-based approach to transforming your organisation’, 2010.
  19. 19. Final thought The good physician treats the disease; the great physician treats the patient who has the disease. William Osler 19
  20. 20. 20
  21. 21. Who are the carers?
  22. 22. NHS Improving Quality and NHS England Tea & Coffee Back in 15 minutes
  23. 23. NHS Improving Quality and NHS England Group Activity 1 What are we currently doing to support carers?
  24. 24. NHS Improving Quality and NHS England Group Activity 2 What are the barriers to improving: (a) Health services supporting the carer as an individual? (b) Health services supporting the individual to care for another/multiple people?
  25. 25. NHS Improving Quality and NHS England Lunch 13.15 – 14.15
  26. 26. NHS Improving Quality and NHS England Group Activity 3 What are the priorities for NHS England/healthcare?
  27. 27. NHS Improving Quality and NHS England Tea & Coffee Back in 15 minutes
  28. 28. NHS Improving Quality and NHS England Thank You for your contribution and participation today Have a safe journey Home

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