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Patient Online Programme: Detailed Coded Record Access
1. Patient Online
Programme
Dr Masood Nazir
National Clinical Lead, NHS England
www.ehilive.co.uk | 3-4 November 2015 | #ehilive
Detaile
d
Coded
Record
Access
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Patients and Public
Will be able to:
a) more effectively share in the responsibility for their health and welfare
b) have more convenient access to NHS Services
Clinicians/Practices
Will be able to devote more of their time to supporting the clinical needs of patients rather than
dealing with administrative and support tasks that patients can carry out for themselves
NHS
Will benefit from improved health outcomes for patients, increased patient satisfaction and reduced
administrative costs
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the demand on the NHS has increased significantly
increase in ageing population
increase in GP consultations from 260, 000, 000 to 360, 000, 000 per year
consultations becoming more complex due to factors such as multiple LTCs.
General practice only receives about 7.7% of the NHS budget.
General practice is facing the challenge of being overwhelmed with the workload, as well as
problems with recruitment and retention.
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18.5% Of activity takes
place at the weekend
On a typical weekday
47.1% of activity is either
before 08:00 or after 18:00
Every appointment booked and each prescription ordered is one less to deal with manually
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“(2A) A contractor must promote and offer to its registered patients, in circumstances where the
medical records of its registered patients are held on the contractor’s computerised clinical
systems, the facility for any such patient to access online all information from the patient’s medical
record which is held in coded form unless –
(a) in the reasonable opinion of the contractor, access to such information would not be in the
patient’s best interests because it is likely to cause serious harm to –
(i) the patient’s physical or mental health, or
(ii) the physical or mental health of any other person;
(b) the information includes a reference to any third party who has not consented to its
disclosure; or
(c) the information in the patient’s medical record contains a free text entry and it is not possible
under the contractor’s computerised clinical systems to separate that free text entry from
other information in that medical record which is held in coded form.”;
9. From April 2015, practices will be required to also offer
online access to all detailed information, i.e. information
that is held in a coded form within the patient’s medical record.
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For clarity - all this coded data will be from the day electronic records started i.e. no ‘date from’ option.
Some of the information in list above will depend on what your clinical system is able to routinely display.
Demographics
Allergies/Adverse
Reactions
Medication
(dose, quantity and last
issued date)
Immunisations
Results
(numerical values and
normal range)
Values (BP, PERF)
Problems/Diagnoses
Procedure Codes
(medical or surgical) and
codes in consultation
(signs, symptoms)
Codes showing referral made
or letters received
(no attachments)
Other Codes (ethnicity, QOF)
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OVERRIDING
PRINCIPLE
The coded record
must be MEANINGFUL
to the patient
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Safe & legal policies & procedures
•You do not need to share coded information if they feel harm to patients
•Assessment of access should be offered on a case by case basis
You can
Exclude free text
Set date from when you start sharing
free text & documents
(reducing workload to screen notes)
Exclude letters
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35 - 74
55 - 74
+55
Gender Age
Appointments
Prescriptions
Medical Records
Demographics
53%
86%
No
knowledge
No
usage
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Patient Receptionist Clinician Patient
Patient requests online
services
Registration process explained to
patient & form given to patient to
complete
Can be requested & enabled directly by
clinician in a face to face appointment, if
familiar with system & consents to
complete ID verification & registration
Patient leaves with
registration form & details
of how to access
Completes
registration process
for online services &
signs to accepts
terms & reference of
online services
• Acknowledges registration,
verifies ID (as appropriate)
• Registration form scanned into
notes accepting terms of access
to online services esp. MRV
• Enables appointments &
prescription requesting
• Tasks to clinician for MRV access
• Clinician receives task & screens
coded notes & makes decision to
enable MRV (making sure no third
party information or information that
may cause harm in coded notes)
• Enables detailed coded record view
• Patient notified directly by clinician or
via reception
Patient receives
notification of services &
progress to completing
registration to access
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Patient expert identification
Identify a patient online expert/owner within the Practice who is interested in promoting patient online
Opt-in & opt-out options
Include sign up to patient online services in the patient registration process – make this standard with
patient having to “opt out” if they do not want to use the service
Facilitator to encourage sign up
Use a facilitator to “floor walk” in waiting room areas during surgery hours, to encourage patients to sign
up (or provide a device that can be used discretely, to assist to sign patients to sign up whilst in the
waiting area)
Online services promotion
Restrict traditional ways for patients to access transactional services i.e. no longer take repeat
prescriptions over the telephone; release embargoed appointments online before surgery opening hours
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User group
Cartoon with thanks to the British Medical Journal
Patients and information are the two most
under-used resources in the NHS
Dr. Richard Fitton
21. 22
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The two key exceptions for access to information are:
is likely to cause serious harm to the physical or mental health, or condition, of the patient or
any other person;
may relate to, or be provided by, a third person who can be identified from the information
and has not consented to the disclosure.
“It is unnerving to think that patients may see test results before you do”
– West Midlands General Practitioner
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Practice must comply with data protection act
All staff who process/enable access must have had training in policy & procedures
(awareness of risks)
If there was a complaint – ICO would want to check that practice had safe policy &
procedures in place
Practice should communicate at what stage they are at in process of offering access
(this should not detract from completing subject access request where this is appropriate)
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Details on how to screen
notes before access
Tools/protocols/templates
for automation
Letters / attachments
guidance (inc. DocMan)
Declining access to
records guidance
Detailed setup guideSystem functionality
explanation
Guidelines for
practice and checklist
Sensitive codes guidance
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www.england.nhs.uk/patient-online elearning.rcgp.org.uk/patientonline
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Benefits &
Evidence
Guidance &
Support
System &
GPSoC
Functionality
Track
Progress
National
Implementation
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www.england.nhs.uk/patient-online
england.patient-online@nhs.net
#patientonline
“Alone we can do so little;
together we can do so much.”
- Helen Keller
For Example
Diagnosis codes – Asthma, Suspected UTI, Viral illness (in readcodes this is mainly the codes starting with a letter eg H33)
Codes about signs and symptoms – anything patient reports or doctor finds – cough, vomiting, abdominal tenderness, normal heart sounds
Procedure codes – operations, injections, ear syringing, dressings etc – anything we do to the patient
Administrative codes – everything else! – ethnicity, occupation, recalls, QOF codes, exemption codes, referrals (8H…), letter to patient, etc etc
Practice Level Configuration
All coded data
Patient Level Configuration
Control to enable this option set on by default
Desirable Requirements
Control to enable this option to be evaluated in each system ? Enabled on case by case basis
Acknowledging workload for practices
Safe & legal policies & procedures
You do not need to share coded information if they feel harm to patients
Access should be offered on a case by case basis
You can
Exclude free text
Exclude letters
Set date from when you start sharing free text & documents ( reducing workload to screen notes)
Patient experience of in-hours GP services varies between different demographic groups and geographical areas. National results can mask this variance. Much of the variation can be explained by patient-level characteristics, in particular a person’s age or working status.
Patients who book appointments online are more likely to be female or aged 35 to 74, while patients who order repeat prescriptions online are more likely to be female or aged 55 to 74. Patients who access medical records online are likely to be male or aged 55 or over.
More than half (53%) of all patients don’t know whether online services are provided by their practice and the majority of patients (86%) don’t use online services. The strongest association between awareness and use of online services relates to ordering repeat prescriptions.
Patients who use online services tend to report a more positive experience of access to their surgery. However, this should be considered in context with other factors such as a patient’s age, gender or work status.
Identify a patient online expert/owner within the Practice who is interested in promoting patient on line
Use a facilitator to “floor walk” in waiting room areas during surgery hours, to encourage patients to sign up
Provide a device that can be used discretely, to assist to sign patients to sign up whilst in the waiting area
Include sign up to patient online services in the patient registration process – make this standard with patient having to “opt out” if they do not want to use the service
Restrict traditional ways for patients to access transactional services. i.e. no longer take repeat prescriptions over the telephone; release embargoed appointments online before surgery opening hours
What are we likely to need to do in 2015/16 to secure delivery of commitments to online access to detailed coded information (Practices)?
Develop guidance/a support programme for practices in how to meet their commitments under the GMS contract
Carry out research/evidence gathering and presentation that will persuade practices of the benefits and value of offering this service
Establish ways of working with the system suppliers and clarify what GPSoC functionality will deliver
Assign implementation resources to work with practices across the UK
Develop a definition of success with associated monitoring system to track progress throughout the year