Designing and Implementing Peer Support Groups <br />    for <br />Families Facing Serious Illness from the Point of Diagn...
Framework for today<br />Designing peer support program dealing with illness<br />Branding and marketing the program<br />...
From the point of diagnosis, illness affects the whole family. <br />A program of Hope and Healing<br />
Tender Living Care Program began in 1993<br />Initiated by a mom who had cancer<br />Several organizations in town support...
Design of the Program<br />Peer support groups that meet for one evening a week for 8 week sessions with 2 week break betw...
Branding the Program<br />Create separate logo, mailing stamp, etc…<br />Cautious of term “Anticipatory Grief” <br />Offer...
Marketing the Program:		Direct Service Provider E-list<br />Create E-List of Direct Service Providers<br />		Hospices<br /...
Marketing the Program:                            Press Releases<br />Press Releases<br />Distribute at 6 weeks and at 3 w...
Marketing the Program			Miscellaneous<br />Outreach presentations<br />Schools, Community<br />Media – TV, Radio, Print<br...
Volunteers<br />
Supporting Volunteers<br />At start up volunteers needed to have Bereavement Program experience<br />30 Hour Training  <br...
Families<br />
Helping Families<br />Phone call/s<br />TLC Packet: Handouts and Book<br />Intake/Family Meeting: feely hearts & quilts<br...
Children<br />
How do we help children?<br />Tell the truth<br />Listen to their feelings and help them express them safely<br />Support ...
Common Concerns of Children<br />How will my life be affected?<br />Did I cause this?<br />Can I catch this?<br />Will thi...
What We Know About Children<br />Children  have an innate wisdom and drive that can help them find their way through diffi...
When there is a death….		 The	Family<br />Ask family if information can be shared with other families and volunteers if NO...
When there is a death	Other families<br />Contact families in groups to notify them of the death if appropriate<br />Share...
When there is a death		The Volunteers<br />Contact volunteers to inform them<br />May attend wake/funeral if helpful for t...
Self Care: Lessons Learned<br />Take the time to feel your feelings<br />Attend wakes/funerals<br />Journal<br />Volcano R...
Resources:<br />carol@cgcmaine.org<br />www.cgcmaine.org<br />Bibliography<br />Articles<br />A Family’s Journey<br />
602 c Sylvester presentation
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602 c Sylvester presentation

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602 c Sylvester presentation

  1. 1.
  2. 2. Designing and Implementing Peer Support Groups <br /> for <br />Families Facing Serious Illness from the Point of Diagnosis<br />
  3. 3. Framework for today<br />Designing peer support program dealing with illness<br />Branding and marketing the program<br />Supporting families, volunteers and yourself <br />
  4. 4. From the point of diagnosis, illness affects the whole family. <br />A program of Hope and Healing<br />
  5. 5. Tender Living Care Program began in 1993<br />Initiated by a mom who had cancer<br />Several organizations in town supported start up and sent referrals<br />Home visits done initially until numbers were large enough for groups<br />
  6. 6. Design of the Program<br />Peer support groups that meet for one evening a week for 8 week sessions with 2 week break between sessions<br />Groups divided by age for children ages 3-18, Young Adults 19-30, Care giving Adults, Adults with Illness<br />Two facilitators per group room, two Team Coordinators, Program Coordinator, Consultant<br />Meets earlier in the evening than our Bereavement Program<br />Families are called weekly for check in/reminder of groups<br />
  7. 7. Branding the Program<br />Create separate logo, mailing stamp, etc…<br />Cautious of term “Anticipatory Grief” <br />Offer support from time of diagnosis<br />Separate from your Bereavement Program<br />Allow families to get support without having to face the fact that their illness might lead to death<br />Mindful of word choices and setting choices<br />
  8. 8. Marketing the Program: Direct Service Provider E-list<br />Create E-List of Direct Service Providers<br /> Hospices<br /> Illness Foundations<br /> Doctor’s Offices<br /> Hospitals <br /> Cancer Centers, Dialysis Centers, Etc<br />Email Updated Session Flyers 4-6 weeks before session begins for display/distribution<br />
  9. 9. Marketing the Program: Press Releases<br />Press Releases<br />Distribute at 6 weeks and at 3 weeks before program begins<br />Keep separate from Bereavement Program Information<br />
  10. 10. Marketing the Program Miscellaneous<br />Outreach presentations<br />Schools, Community<br />Media – TV, Radio, Print<br />Volunteers<br />
  11. 11. Volunteers<br />
  12. 12. Supporting Volunteers<br />At start up volunteers needed to have Bereavement Program experience<br />30 Hour Training <br />Offer Pre Group and Post Group to process things from group that came up for them<br />Additional phone/email support<br />Offer Trainings for additional skills<br />
  13. 13. Families<br />
  14. 14. Helping Families<br />Phone call/s<br />TLC Packet: Handouts and Book<br />Intake/Family Meeting: feely hearts & quilts<br />Welcome Packet<br />First Night<br />Follow up and ongoing support<br />
  15. 15. Children<br />
  16. 16. How do we help children?<br />Tell the truth<br />Listen to their feelings and help them express them safely<br />Support their interests<br />Support for the adults in their lives<br />
  17. 17. Common Concerns of Children<br />How will my life be affected?<br />Did I cause this?<br />Can I catch this?<br />Will this happen to me?<br />
  18. 18. What We Know About Children<br />Children have an innate wisdom and drive that can help them find their way through difficult times.<br />Each child will have a different way of finding their way through and a different timing.<br />Loving, caring and attentive adults can help children in their process of dealing with these difficult times<br />
  19. 19. When there is a death…. The Family<br />Ask family if information can be shared with other families and volunteers if NOT in paper<br />Attend wake/funeral if possible<br />Provide the family an opportunity for them to return to TLC for their goodbye night/ritual<br />Help transition the family to Bereavement when time is right for them<br />
  20. 20. When there is a death Other families<br />Contact families in groups to notify them of the death if appropriate<br />Share wake/funeral details if appropriate<br />Notify them if and when family is coming back for their last night with TLC.<br />Support: Additional support and sensitivity to families who are dealing with terminal prognosis<br />
  21. 21. When there is a death The Volunteers<br />Contact volunteers to inform them<br />May attend wake/funeral if helpful for them<br />Check in and provide additional support if necessary<br />Periodically create Memorial Nights for volunteers to honor those who have died and their families<br />
  22. 22. Self Care: Lessons Learned<br />Take the time to feel your feelings<br />Attend wakes/funerals<br />Journal<br />Volcano Room<br />Share with others <br />Get support when you need it<br />
  23. 23. Resources:<br />carol@cgcmaine.org<br />www.cgcmaine.org<br />Bibliography<br />Articles<br />A Family’s Journey<br />

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