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Unique Populations - 2019 CURE OM Symposium

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Unique Populations - 2019 CURE OM Symposium

  1. 1. Uveal Melanoma in Young Females, NC and AL Michael W Brennan, MD NC Society of Eye Physicians and Surgeons International Envoy, American Academy of Ophthalmology
  2. 2. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Financial Disclosure  No financial disclosure or conflict of interest
  3. 3. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Huntersville, NC  With “variable” epidemiological constraints(time and space), slightly more than 20 patients diagnosed within 15 years.  Unusually young and female dominant
  4. 4. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 RESPONSE  Patient, Family and Community “Care”  County and State; NC Society of Eye Physicians and Surgeons; National/International • Media alerts—dilated exams • NC Universities/Referral Universities • CDC, Global Eye Societies • Legislative Grant  Geospatial Analysis  Genetic complement (Counseling, BAP1)  Genome Sequencing of Tumor Tissue
  5. 5. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Professional Partnerships  Maintain Contact/Commuication with Patients/Families • Regional Continuity Commission • Media, Universities, DHHS • Mecklenburg County Epidemiology • Advocacy mobilized, focused  Columbia-Miami Genome Sequencing  Auburn/Alabama--NC Alliance  State Government—New Legislation**
  6. 6. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Geospatial Analysis
  7. 7. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Findings  Geospatial Analysis • Distribution of total population away from suspect High School • NO definitive environmental toxic intersection • Community will expand and continue Oversight  Genetics • No known family history • All tested -BAP1 negative  Genetic counseling • Most appreciated interaction  Genome Sequencing — in progress**
  8. 8. WWW.AAO.ORG 0 AMERICAN ACADEMY OF OPHTHALMOLOGY PROGRESS  Registry enhancements  Research empowerment  Dilated Eye Exams  Media {traditional and **social} Influence  More collaborative Ophthalmology/Oncology Community, national and International  Continued Support Group interaction and Friendship with CURE OM
  9. 9. Auburn University and Huntersville Connections: Young, female “Raptors” Auburn War Eagle Huntersville Aviary GO WAR EAGLES**
  10. 10. WWW.AAO.ORG 0 AMERICAN ACADEMY OF OPHTHALMOLOGY NC “ReBoot” Plans  Assess Genome Sequencing of Tumor Tissue and consider Whole Genome Sequencing for all patients in study—additional ten??  Revisit State Registry and review all NC Uveal Melanoma entries from 2000 forward  Re-form Consortium with broader spectrum of professional perspectives—Public Health.  Continue aggressive in-state eyeMD awareness  Maintain active role in Huntersville Region Continuity Commission
  11. 11. WWW.AAO.ORG 0 AMERICAN ACADEMY OF OPHTHALMOLOGY NC Senate  Senator Marcus, SB 277: Huntersville Ocular Melanoma Study Funds---”Study and Abate Frequent Cases…”  Senator Sawyer, SB 297: NC Policy Collaboratory will assemble Cancer Research Advisory Panel. (diverse and inclusive)  Senator Sawyer, SB 479: NC Cancer Center Registry Improvement
  12. 12. WWW.AAO.ORG 0 AMERICAN ACADEMY OF OPHTHALMOLOGY Legislation Likelihood  Assess and Abate—may be consumed by other bills  **Cancer Research Advisory Panel—incorporates both OM and Thyroid populations; expands consortium of professionals; includes county and state governmental authorities ?expensive?  *Registry Enhancement----limited effect but a stimulus to overall National Registry Refinements

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