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Ocular Melanoma Cluster Update

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Ocular Melanoma Cluster Update

  1. 1. Uveal Melanoma in Young Females, NC and AL Michael W Brennan, MD NC Society of Eye Physicians and Surgeons International Envoy, American Academy of Ophthalmology
  2. 2. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Financial Disclosure  No financial disclosure or conflict of interest
  3. 3. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Huntersville, NC  Affluent Charlotte suburb with area population 150k  Three girls, Hopewell HS 2001-2008 girls diagnosed under age 25  State investigation with CDC, Environmental Engineer consultant failed to identify an associative cause—concluded NO Cluster  Referral patterns and Registry restrictions related to late awareness of the professional community  NO Excuse!!
  4. 4. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 OUR RESPONSE  Patient, Family and Community “Care” • Physician –Patient • Support Group/5Ks; **Media attention • Complementary “Dilated” Exams {media driven}  NC Society of Eye Physicians and Surgeons, Re- engagement • State DHHS and County {Registry, Epidemiology} • UNC School of Public Health, Duke and Wills Oncology • State Legislature---*** Grant to Huntersville Council  National/International Ophthalmic Oncologists
  5. 5. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Professional Partnerships  Maintain Contact/Collaboration • Community -- Patients and Families • Media, Schools, County Health, DHHS • **Advocacy mobilized, focused  Grant Elements • Environmental Assessment including Geospatial Analysis ---Geodesy, INC • Genetic Complement, including Counseling, Germline and Genome Sequencing, Columbia • Face to Face with Patients, Families, Town Council, Media
  6. 6. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Geospatial Analysis
  7. 7. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Findings  Geospatial Analysis • Distribution of total population away from suspect High School • NO definitive environmental toxic intersection • Community will expand and continue Oversight  Genetics • No known family history • All BAP1 negative  Genetic counseling • Most appreciated interaction  Genome Sequencing — consents obtained, may focus on young, female
  8. 8. WWW.AAO.ORG 0 AMERICAN ACADEMY OF OPHTHALMOLOGY PROGRESS  Registry enhancements  Research empowerment  Dilated Eye Exams  Media {traditional and **social} Influence  More collaborative Ophthalmology/Oncology Community, national and International  Continued Support Group interaction and Friendship with CURE OM
  9. 9. Surprise—2d “unique population –Auburn, University Connections: Young, female “Raptors” Auburn Ware Eagle Huntersville Aviary

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