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Huntersville Cluster, North Carolina Cluster Update - Michael Brennan, MD

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Michael Brennan, MD gives an update on the Huntersville Cluster, North Carolina at the 2017 CURE OM Patient & Caregiver Symposium.

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Huntersville Cluster, North Carolina Cluster Update - Michael Brennan, MD

  1. 1. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Financial Disclosure  No financial disclosure or conflict of interest
  2. 2. Huntersville Cluster Michael W Brennan, MD NC Society of Eye Physicians and Surgeons International Envoy, American Academy of Ophthalmology
  3. 3. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Professionalism  Contract with Society—Our Patients and Families, Our Colleagues  “Beyond” Competence, Ethics….. Caring  Huntersville, NC
  4. 4. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Original Demographics Now 12 patients, too many young females Patient Gender Age at Diagnosis Date of Diagnosis Residence at Diagnosis Institution that made Official Diagnosis Residence at Time of Suspected Clustering Dates at Residence During Time of Suspected Clustering ML F 22 4/13/2009 Aiken, SC Wills Eye Philadelphia, PA Huntersville, NC (Hopewell High School) 2002-2005 KK F 24 12/2008 Charleston, SC Duke Eye Center Durham, NC Huntersville, NC (Hopewell High School) 1994-2007 Away at college in between? SH F 20 7/8/2013 Charlotte, NC Wills Eye Philadelphia, PA Huntersville, NC (Hopewell High School) 2006-2011 VK F 31 2/7/11 Charlotte, NC Wills Eye Philadelphia, PA Huntersville, NC 2005/2007-2013 CB F 30 2/2014 Concord, NC Duke Eye Center Durham, NC Huntersville, NC 2005-2007
  5. 5. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 RESPONSE  Patient, Family and Community “Care” • Physician –Patient  NC and Philadelphia(Wills, Jefferson) • Support Group/5Ks; Media attention  Institutional/Governmental • State DHHS  Occupational and Environmental Epidemiology Branch  Central Cancer Registry • County Health and School System (Phase One Study) • Referral Institutions (Wills, Duke, **UNC) • ***State Legislature---Grant to Huntersville Council  National ophthalmology, oncology  International Society of Ophthalmic Oncologists
  6. 6. WWW.AAO.ORG 0 AMERICAN ACADEMY OF OPHTHALMOLOGY NC Society of Eye Physicians and Surgeons  Community Visits –media, governmental  Discussion with Diagnosing and Referral Ophthalmologists and Oncologists  Design of Community Outreach • Discussion with families, patients • Media release “encouraging” exam, incl Complementary  Internal Discussion—grand rounds, meetings(state, national and international---Australia next week)  MRF: CURE OM
  7. 7. AMERICAN ACADEMY OF OPHTHALMOLOGY WWW.AAO.ORG 0 Professional Partnerships  Maintain Contact/Collaboration • Community -- Patients and Families • Media, Schools, County Health, DHHS • Physician Providers(Eye/Oncology— National and Global)  Legislative Grant—patients, families!! • Environmental Assessment including Geospatial and Epidemiological • Genetic Complement, including Counseling • Face to Face with Patients, Families, City Council, Media

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