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About CURE OM - 2019 CURE OM Symposium

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CURE OM Co-founder and Director Dr. Sara Selig shares the history and mission of the Melanoma Research Foundation's CURE OM initiative.

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About CURE OM - 2019 CURE OM Symposium

  1. 1. Sara M. Selig, MD, MPH Co-Founder & Director, CURE OM Melanoma Research Foundation
  2. 2. CURE OM Co-Founder: Dr. Gregg E. Stracks 1971-2012
  3. 3. CURE OM Mission To support research and accelerate the development of effective treatments and, ultimately, a cure for ocular melanoma through innovative strategies including international and interdisciplinary collaborations. To improve the lives of people affected by ocular melanoma by creating systems and programs to provide education and support. To advocate for the ocular melanoma community.
  4. 4. – Annual Eyes on OM Symposium – CURE OM Educational Webinar Series – Educational materials – Educational and awareness campaigns – Meet and Greets – “Buddy” program – Clinical trials finder – Virtual support groups in partnership with Thomas Jefferson University – Grassroots organizing and fundraising – Galas – 5K walk/runs – Treatment Center Collaborative Coalition (TC3) 3 Patient/Caregiver Initiatives
  5. 5. Eyes On a Cure: Annual Patient & Caregiver Symposium
  6. 6. Eyes On a Cure: Annual Patient & Caregiver Symposium • Kimmel Cancer Center, Philadelphia, June 2012. • MD Anderson, Houston, March 2013 • UCLA, Los Angeles, March 2014 • Kimmel Cancer Center, Philadelphia, March 2015 • Emory University, Atlanta, March 2015 • Washington, DC March 2017 • Denver, CO Spring 2018 • Raleigh, North Carolina, Spring 2019 • TBD Spring 2020
  7. 7. Education and Awareness: MRF’s Print Resources The MRF offers a wide variety of free print resources for parents, children, teens, adults, patients and caregivers that can be ordered at www.melanoma.org.
  8. 8. Education and Awareness
  9. 9. OM Support Groups - Monthly Virtual Support Group led by oncology social workers from Thomas Jefferson University. - Patients at any point on their journey (Primary/Mets); Caregivers
  10. 10. MRF Galas
  11. 11. Thank you CURE OM teams!
  12. 12. Treatment Center Collaborative Coalition (TC3) Pilot initiative 11 • Participating Centers: • Colorado Retina Associates • University of California Los Angeles • University of Colorado • Thomas Jefferson University • Emory University • MD Anderson Cancer Center • Cleveland Clinic
  13. 13. Research Initiatives  CURE OM has secured over $1.5 million for research  Uveal melanoma specific peer-reviewed research grants  CURE OM scientific meetings  Patient registry  TCGA  Partnerships with NCI, SMR
  14. 14. Research Vision “We have a VISION - we want a TEAM of experts to focus on ocular melanoma – the more minds we can bring together to look at OM the better result we might have. The TEAM- no matter what academic halls they walk, approaches they use, research they are pursuing – are willing to collaborate, push the limits, take risks, think outside the box, be aggressive yet safe, be passionate, and integrative “ 13
  15. 15. CURE OM Scientific Meetings
  16. 16. CURE OM Scientific Meetings
  17. 17. The Cancer Genome Atlas
  18. 18. The Cancer Genome Atlas https://www.cancer.gov/about- nci/organization/ccg/blog/2017/cure-om
  19. 19. Research Grants Medical Student Awards $3,000 for 1 yr  Deadline for Submission: November 6th, 2018  RFP currently available on the MRF website MRFBC-BMS Young Investigator Translational Immuno-Oncology Team Science Award $150,000 per yr for 2 yrs  Deadline for Submission: December 3rd, 2018  RFP currently available on the MRF website Cure-OM Team Science Award Up to $150,000 per yr for 2 yrs  Deadline for Submission: March 1st, 2019  RFP to be posted on the MRF website in December 2018 Established Investigator Awards (EIAs) Up to $100,000 per yr for 2 yrs  Deadline for Submission: March 1st, 2019  RFP to be posted on the MRF website in December 2018 Career Development Awards (CDAs) Up to $50,000 per yr for 2 yrs  Deadline for Submission: March 1st, 2019
  20. 20. CURE OM Registry Objectives  To develop and utilize a standardized global patient-reported online registry to provide data regarding the incidence, prevalence, demographics, risk factors, genetics, natural history, treatments and patient experience (patient preferences and quality of life) from diagnosis through the lifetime of OM.  To provide patient centered data to enhance the care of individuals with OM.  To facilitate collaborative efforts between patients, clinicians and researchers to improve the outcomes for patients affected by this disease. 19
  21. 21. Where from here? More to come!  Continued development of CURE OM Patient Registry  Expand #EyeGetDilated – November 2019  Expansion of support groups  2019 CURE OM Scientific Meeting(s)  Increased funding for OM research  Establish global research priorities in partnership with international partners
  22. 22. Thank you!!

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