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RIWC_PARA_A109 Home living for SCI people in Canada


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A109 Home living for SCI people in Canada

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RIWC_PARA_A109 Home living for SCI people in Canada

  1. 1. Perceptions on Well-being at Home of Families with People with Disabilities: A Psycho-Environmental Perspective Delphine Labbé, PhD1,2 Sylvie Jutras, PhD1 1Université du Québec à Montréal 2University of British Columbia
  2. 2. Well-being at home  For people with and without disabilities  Place to fulfill individual and familial needs  Promotes an active and independent role in the community  Physical and psychological health  Commitment to work, social and civic life  Internationally recognized as a right by the Convention on the Rights of Persons with Disabilities (United Nations, 2006)  Despite the importance of home for people with disabilities  Few studies on home, health and disabilities  Not focused on the broad spectrum of needs 2
  3. 3. Psycho-environmental Potential Model Shelter and Security Protection from physical elements and threats to the person’s well-being Social Contact Facilitation or inhibition of interpersonal contact and privacy Symbolic Identification Information about the values, preferences and goals of the users Task Instrumentality Quality of equipment and spatial arrangements for the accomplishment of specific tasks and activities Pleasure Gratification of simply being in a given setting and the user’s positive affect Growth Various stimuli allowing users to learn things about the world and themselves 6 functions promoted or limited 3
  4. 4. Objectives 4 Explore the perception of the relation between the house and the well-being  Globally  For specific places
  5. 5. Method 5
  6. 6. Participants Individual Characteristic SCI(n=31) Relatives (n=31) Mean Age 45 51 Man (%) 71 29 In couple (%) 68 81 Working or Studying (%) 29 60 Mean time since injury 8 years (SD=1.9) Paraplegia (%) 48 6 Housing and household characteristics (n=31) Number of people in the household (mean) 3 Relationship to the person with SCI (%) Spouse 71 Child or parent 29 Moved after the injury 55 Mean number of years living in the house 9
  7. 7. Interviews  Simultaneously but separately with the SCI person and their household member  Closed and open-ended questions  Series of 11 questions about the favourable physical features of their house and how these features contributed to well-being at home  Series of 10 questions on unfavourable physical features of the house and how they hampered well-being at home 7
  8. 8. Results 8
  9. 9. Places and objects favourable to well-being SCI and relatives SCI Relatives 8 places and 7 objects mentioned Global 9 PlacesObjects
  10. 10. How well-being at home is promoted? Great variety of explanation (n=27) SCIand relatives • Territoriality • Using and developing skills • Activities with others SCI • Convenient for work and leisure • Learning about the world Relatives • Size • Privacy 10 Global
  11. 11. Places and objects unfavourable to well-being For45 % : No places or objects 11 PlacesObjects Global SCI and relatives SCI Relatives
  12. 12. How well-being at home is hampered? Lack of convenience for moving around Inconvenience of size Psychological and physical disinvestment Lack of convenience for daily living activities 12 Global SCIand relativesSCIRelatives
  13. 13. How each places contributes to well-being at home? 13 The kitchen is an open space, so it’s an enjoyable place to entertain friends and family. It’s where we spend most of our time. Everything is within reach, if we need to cook while talking to someone, it’s easy (SCI20, male 62, retired) Specific to place Kitchen SCI Relative Open space Activities with others Ambience Convenient to move around Appropriate size Appropriate layout Developing and using skills Easiness of communication Equipment easy to reach Expression of self Common space Territoriality Satisfaction of needs
  14. 14. How each places limits well-being at home? 14 Kitchen SCI Relatives Stove Limit development and use of skills inadequate to fulfill their needs Common space Inappropriate size Lack of convenience for domestic activities Lack of convenience to move around Life conditions Specific to place I like to sew but I can’t use the table anymore to cut my fabrics; it’s not large enough […] and my husband sits there watching me! He always has to go to the bathroom when I’m cutting a piece of fabric.So, it’s not easy.” (FM27, female, 47 years old, spouse, working)
  15. 15. Conclusion 15
  16. 16. Well-Being at home 1. Positive experience multifaceted 2. Negative experience more limited 3. Importance of specialization of room 4. Experience of people with SCI and their relatives  Similar but touched differently by the disabilities 16
  17. 17. Well-being at home 17  Variation in wished level of contact  Designing flexible space Social contacts highly important Impact on accessibility guide For everyone
  18. 18. Well-being at home For people with disabilities Task instrumentality highly important Home is central for social participation
  19. 19. Well-being at home 19 For the relatives Symbolic identification restricted Impact of disability needing more consideration
  20. 20. Thank You This research was supported by 20