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RIWC_PARA_A061 Supporting people with Autism

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A061 Supporting people with Autism

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RIWC_PARA_A061 Supporting people with Autism

  1. 1. Presented in RI WORLD CONGRESS • 25–27 October 2O16 Edinburgh International Conference Centre, Scotland
  2. 2. • Indonesia, an archipelago country that extends from Sabang at the tip of northern Sumatra Island to Merauke in Papua, with 17,504 islands, where only about 6,000 are inhabited. • Culturally diverse: more than 300 ethnic groups • A large populated country: 234 million people • It lies geographically on the crossroad between the Pacific and the Indian oceans, and bridges two continents, Asia and Australia. • There are five main islands: Sumatra; Java; Kalimantan, two thirds of Borneo; Sulawesi; and Papua INTRODUCTION
  3. 3. 3 Constitution 1945 Act No 39/199 to protect the entire Indonesian nation/ to secure the human rights of all Indonesian citizens (nation) same rights to obtain an education Those who have any kind of disabilities are eligible for special education everyone has the right to obtain safe, quality & affordable health services. 1 2 3 Disabilities/ non disabilities Act No. 20 of 2003 on National Education System Act No. 36 of 2009 on Health 5 4 INTRODUCTION Act No.8 of 2016 on PwDs General for the rights of PwDs
  4. 4. 4 Autism children Complex developmental disorder Communication Social interaction behavior independent Accurate diagnosis Appropriateeducation treatment Strongsupport Autism School Autism Clinic Family and community inclusiveness
  5. 5. 5 STEP OF APPROPRIATE EDUCATION Individual treatment One On One Early Intervention Transition school Special school Inclusion School • Ajusted curricula • With or without shadow
  6. 6. 6  Early Intervention  Continously, Gradually & in accordance with the child's development A wide range of governance treatment • Medical therapy • Biomedical Intervention • Applied Behaviour Analysis / ABA • Sensory Integration Therapy • Occupational Therapy • Speech Therapy • Physiotherapy Principles of treatment
  7. 7. 7 Medical Therapy To suppress certain symptoms: hyperactivity & aggressiveness, improve communication, to respond to the environment, Eliminating the strange behavior and repeated. Biomedical Therapy To improve metabolism of children ; to clean the child's body from materials; to interfere with the metabolism and the nervous system work There are 3 parts biomedical therapy • CFGF diet (casein free and gluten free) • Make a food diary accompanied by laboratory examination • Reconstruction with the aim of a child to consume the food as normal as possible with supplementation is recommended based on the results of laboratory tests.
  8. 8. 8 BEHAVIOR THERAPY The aims of behavior therapy is to reduce behavior of the child that is unacceptable and replace it with behavior which is acceptable by community Behavior therapy is made by using applied behavior analysis (ABA) that investigated by Ivar Lovaas and the result published in 1987; that is: • early intervention for 40 hours/week before children reaching age 4 years • goal of ABA system is for readiness of children in learning with the concept of understanding consequential, heed, comply with instructions and copying
  9. 9. 9 Increasimg of autism Prevalence Availability of education & health services The rise autism clinic & school the implementations are different in wide range. in accordance with the perception & availability of their resources, including funds Public demand no policy governing education & the health care for autism specifically. Mitra Ananda Many request to YPAC
  10. 10. 10 Rumah Autis Anak Mandiri
  11. 11. Mitra Ananda With limited funds, 2005 It has gradually developed towards an Education and Health Care Center for children with autism so they can live independently and productively.
  12. 12. 12 • We aspire that Mitra Ananda will be able to contribute to help the government in formulating policies that are specific to the education and care of children with autism, to provide an opportunity for researchers to do important research which is needed and is a reference for Autism schools and clinics that exist in Indonesia.
  13. 13. 2015 VISION To be an Autism Education and Health Service Center by the Year 2020 MISION 1. To improve Mitra Anda Capability to be an Autism Education Center 2. To improve Mitra Anda Capability to be an Autism Health Care Center 3. To improve Mitra Anda Capability to be a Research and Develoment Autism Center
  14. 14. 1. Financial Management Improvement Strategy : Goal: Implementation of the one gate financial management system 2. Structure Organizational Improvement Strategy Goal : Establishment of the organizational structure in accordance with the expansion plan 3. Strategy of Management personnel fulfillment, Early stage Goal: available manpower who have the ability according to criteria 4. Strategy of Meeting the Needs of Education and health personnel, Early stage Goal: Availability of education and health personnel according to the standard, Early stage Strategy plan Short-Term 2016
  15. 15. 5. Recruitment of prospective students & prospective users of health care Srategy Goal : increasing the number of students and users of health care to 50% 6. Strategy Improvement Quality of Education and Health Care, Early stage Goal: Implementation of Education and Health Care SOP 7. Fulfillment Strategy in amount, type and quality of Education and Health Equipment, early stage 8. Monitoring and evaluation Goal : the existence of Monitoring and Evaluation Tool
  16. 16. 16 Medium-term 1. Fulfillment of work force management strategy, Advanced stage Goal : Being filled all the positions in the organizational structure according to the criteria 2. Strategy Meeting the Needs of Education personnel and health personnel Sustainable Goal: Availability of education and health personnel sustainable 3. Recruitment of prospective students and prospective users of health services Srategy Goal : an increasing number of students and users of health services to 200% 4. Quality improvement of Education and health services, Early stages Goal: The application of SOP Education and Health services
  17. 17. 5. Partnership and Networking Strategy Goal : MOU of cooperation with educational institutions and Research institutions and businesses inside and outside the country 6. Monitoring and evaluation Strategy Goal : All activities monitored 7. Guidance and supervision Strategy - Supervision of administration order - Financial Supervision Long-term 1. Maintenance of existing services 2. Development
  18. 18. • No matter how excellent the education & health care facilities of the institution, an individual with autism will not show a positive development, if their family does not support and provide an appropriate education for the their special family member.
  19. 19. • This statement is proved by the case studies of Zaky and Abhy, where the whole family, both parents and siblings support all education efforts, at all time for independence
  20. 20. Support from Abhy family • Applying the rules at home that should be followed by all members of the family, so Abhy understand norms & regulations • Giving Abhy daily tasks that become obligations • Help find a way if he finds difficulty in performing tasks of social, academic by giving an example or divert to things that are visual • The provision of support also gives a challenge to acquire the skills preferred • Focus on his strengths and do not exaggerate on shortcomings • Involving in any family event and other social activities to learn to deal with sensitivity to the crowd and encouraging him to find ways to cope with their own business
  21. 21. • Support for Zaki will be presented by his mother and his sibling Thank You

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