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GriefTech Center™

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Proposal to Create the GriefTech Center™ @ Stanford University for the Research, Industry Collaboration and Educational Outreach on "How New Technologies can Improve the Lives of the Millions Grieving Worldwide Now and in the Future"

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GriefTech Center™

  1. 1. The GriefTech Center @ Stanford University The Creation of a GriefTech Center for the Research, Collaboration and Education of “How new technologies can improve the lives of the millions grieving worldwide now and in the future” Augusto Failde www.GriefTech.org Stanford Alumni 3/13/2019
  2. 2. The Purposeful University https://planning.stanford.edu/ “…l hope your lives will be truly earnest, not in the sense of going forth to acquire great wealth and great names; but to be conscientious workers, to be helpful to others, to send cheer and goodwill to those who need lifting up…” Jane Stanford 2
  3. 3. Table of Contents 1. Summary 2. New Technologies Impacting Our Grieving Process 3. The Numbers: People Grieving Worldwide ▪ Children ▪ Baby Boomers ▪ Millennials ▪ Military Loss ▪ Worldwide ▪ Pet Loss 4. Examples of Research Funding Opportunities 5. Examples of Grief Centers Worldwide 6. Grieving @ Stanford - How are we doing? 7. Next Steps 8. About www.MyGriefAngels.org 3
  4. 4. 1. Summary 4
  5. 5. What? Why Now? Why Grief Tech? & Why Stanford? • Proposal: The creation of the GriefTech Center @ Stanford University for the Research, Industry Collaboration and Educational Outreach on How New Technologies are and will affect grief and the grieving process of people worldwide; including Stanford students, alumni, employees, & their families. • Why Now: The numbers of people grieving in the United States and internationally are and will continue to grow exponentially over the next decade, while at the same time - the number of new technologies that will impact our grieving processes are advancing at a fast rate. – “Grief last year cost employers an estimated $113.27 billion in reduced productivity and on-the-job errors” (Chicago Tribune - 1/3/2019) • Why Grief Tech: While other academic grief centers have been founded worldwide, “none is focused on the impact of existing and new technologies on our grief and grieving process.” • Why Stanford: A university, founded by the Good that came from the grief of two parents, located at the world’s leading technology center and with its founding purpose: “To promote the public welfare by exercising an influence in behalf of humanity and civilizations” 5
  6. 6. 2. New Technologies Impacting Our Grieving Process 6
  7. 7. Technologies Impacting Our Grief and Grieving Process in the Future Include: • Artificial Intelligence • Augmented Reality • Cloning • Robotics • Gaming • Mobile Tech • Social Media 7
  8. 8. How GriefTech Impacts How We Grieve • Artificial Intelligence: – She understood the chatbot was a piece of tech, not her son, but that it still felt reassuring to her. “I feel his voice through the lines of his texts.” She added: “I really need you. You are much more than a technological project. You are memory and love. You give me strength and teach me how to live on.” – “If you communicate with a person through technology, that might be where your loss is communicated..With so much anguish about technology ruining people’s ability to forge human connections, grief tech feels, perversely, rather cathartic to me” https://www.ft.com/content/95dc5584-1c12-11e8-aaca-4574d7dabfb6 • “Holograms of dead to send messages to loved ones. A new TV show will deliver messages from terminally-ill people to their loved ones via their own hologram after they have died.” Using cutting-edge holographic technology, the “deeply personal missives” will be “delivered post-mortem, by the subjects themselves in vivid, three-dimensional, holographic form” (1/30/2019) https://www.independent.ie/entertainment/holograms-of-dead-to-send- messages-to-loved-ones-in-new-channel-4-show-37767569.html • How I Learned to Grieve the Loss of My Dad in the Age of Instagram” https://www.vogue.com/article/grief-anxiety-mourning-social-media-vogue-october-2018-issue • “Thousands watching virtual funerals online as demand in Australia increases. The number of Australians opting to watch funerals online instead of attending in person has more than doubled in the past year.“ https://www.heraldsun.com.au/.../thousands-watching-virtual- funerals-online-as-demand. (2/8/2019) 8
  9. 9. Mobile Technologies & Grief Support • December 14, 20`14 - http://blog.passare.com/2014/12/24/grief-support-app-helps-connect/ - Grief Support App Helps You Connect. We want to share a story about a grief support app that helps people who have lost loved ones connect and create their own local grief support network. The new “Grief Support Network” app was launched by the online grief support non-profit My Grief Angels just in time for what can be one of the most difficult times of the year, the holidays. • November 2017 https://www.researchgate.net/publication/320096277_Mobile_Technologies_for_Grief_Support_Prot otyping_an_Application_to_Support_the_Bereaved - Indiana University/University of Virginia - Mobile Technologies for Grief Support: Prototyping an Application to Support the Bereaved • 2018 - “The Department of Defense Congressionally-Directed Medical Research Program awarded Uniformed Services University (USU) $3 million, four-year grant to develop and test a mobile and web application to help military families cope with the loss of a servicemember” • January 8, 2019 - https://www.newyorklife.com/newsroom/new-york-life-foundation-grant- griefsteps-app-center-for-complicated-grief - Center for Complicated Grief at Columbia University's School of Social Work today announced the launch of GriefSteps for Parents, an innovative, research-backed grief app designed to provide accessible, community-based support to families following the loss of a loved one.App was developed through a three-year $800,000 grant from the New York Life Foundation, the largest corporate funder of childhood bereavement.“ 9
  10. 10. Online Education: MOOCs & Grief • https://www.bizjournals.com/prnewswire/press_releases/2016/09/15/MN90858 - New Free Massive Open Online Course (MOOC) on How After a Loss, “Grief can Kill or Empower Us”: 80% of survey respondents did not feel prepared to deal with the grief that followed a loss and a new self-paced online course on grief aims to help. Available now on the European Multiple MOOCs Aggregator (EMMA) Platform • https://www.caresearch.com.au/caresearch/tabid/5233/Default.aspx The purpose of the Dying2Learn Massive Open Online Course (MOOC) is to build community awareness and foster social discussion about death and dying in Australia. The course explores social and physical issues around death and dying, and looks at how concepts and representations of death have changed over time. Dying2Learn is a social learning experience, designed to get people thinking and talking about death • http://www.ed.uc.pt/caremooc/index.html - INTRODUCTION TO CAREGIVING FOR OLDER PEOPLE AT THE END OF LIFE…Grief and bereavement. 10
  11. 11. 3. The Numbers 11
  12. 12. The Numbers: Children & Grievinghttps://www.childrensgriefawarenessday.org/cgad2/pdf/griefstatistics.pdf • 1 in 5 children will experience the death of someone close to them by age 18. (Kenneth Doka, Editor of OMEGA, Journal of Death and Dying) • In a poll of 1,000 high school juniors and seniors, 90% indicated that they had experienced the death of a loved one. (nahic.ucsf.edu/downloads/Mortality.pdf) • Mortality rates for adults in their 40s and 50s in the past two decades have risen dramatically, making it more likely that younger children will experience the death of a parent, or a classmate’s parent. “Kids are encountering death more often and at a younger age—it’s just inevitable,” says Gerald Koocher, chief of psychology at Boston’s Children’s Hospital. (“Early Grief” Wall Street Journal, Feb. 18,1999) 12
  13. 13. The Numbers: Children & Grieving https://www.childrensgriefawarenessday.org/cgad2/pdf/griefstatistics.pdf • It is estimated that 73,000 children die every year in the United States. Of those children, 83 percent have surviving siblings. (Torbic, H. “Children and Grief: But what about the children?” Home Healthcare Nurse. 2011;29(2):67-79) • "3.5 % of children younger than 18 will lose their mother or father, according to the Social Security Administration. As people now become parents when they are older, this number is likely to increase." http://www.cincinnati.com/ • 7 in 10 teachers (69%) currently have at least one student in their class(es) who has lost a parent, guardian, sibling, or close friend in the past year.Classroom teachers report that students who have lost a parent or guardian typically exhibit: – Difficulty concentrating in class (observed by 87% of teachers) – – Withdrawal/disengagement and less class participation (observed by 82%) – Absenteeism (observed by 72%) – Decrease in quality of work (observed by 68%) – Less reliability in turning in assignments (observed by 66%) 13
  14. 14. The Numbers: Baby Boomers • "America's 76 MILLION Baby Boomers are losing 4,900 of their Parents each day“ http://www.huffingtonpost.com/gloria-horsley/how-are-baby- boomers-handling-the-death-of-their-parents_b_5515057.html • “As baby boomers age, 'we are in for a death boom.’ Grief expert urges support for mourning workers.” https://www.chicagotribune.com/business/ct-biz-grief-in-the-workplace- 20181210-story.html • “Reality of death is hitting baby boomers hard“ https://www.seniorconcerns.org/reality-death-hitting-baby-boomers- hard/ • “69% of Americans who lost a parent growing up still think about their parent frequently” https://www.childrensgriefawarenessday.org/cgad2/pdf/griefstatistics.p df 14
  15. 15. The Numbers: Military Loss • 15,851 active-duty military deaths since 2006 • “Bond in Grief....At least 10 People are significantly impacted by Each Death of a Service Member in the Military“ • “In 2017, 5,715 new people grieving the death of a loved one in military service to America have connected with TAPS to find comfort and support. This is a 20% increase over TAPS intake of new survivors in 2016.” https://www.taps.org/globalassets/connect/main/taps_faq_2018.p df • “Global armed conflicts becoming more deadly, major study finds” https://www.theguardian.com/world/2015/may/20/armed- conflict-deaths-increase-syria-iraq-afghanistan-yemen 15
  16. 16. The Numbers: Millennials • “At any given time, roughly 22 percent to 30 percent of college undergraduates are in their first 12 months of grieving for a loved one – a parent, grandparent, sibling or close friend, according to a Wiley InterScience review of academic studies and mental health research. – Losing a parent for anyone is unsettling, but it’s particularly so for this generation of young millennials, who tend to in marriage, careers and homes than their parents’ generation. settle down later – Fact that millennials are more accustomed to online and social media interactions than face-to-face ones can also be a challenge” https://www.sacbee.com/news/local/health- andmedicine/article26696452.html#storylink=cpy • Millennials in particular, a demographic currently in the grip of a loneliness epidemic, are struggling to come to terms with their grief” https://www.refinery29.com/en-gb/2018/06/199422/death-parent-grief • “3 Trends Might Make Millennials Better at Grieving Than Baby Boomers – – Constantly Changing Technology: Millennials are constantly looking for the better option, the faster technology, the clearer sound or the more durable phone. We are in the midst of a digital revolution so they either adapt or fall behind.“ – Digital Age Challenges: One minute they are getting a text that says, ‘So sorry for your loss’ and the next, ‘Want to go to a movie?’ It’s bad enough that we think grief ends in three or four days. With social media it’s reduced to 15 minutes.”https://connectingdirectors.com/51564-millennial-grief • Anticipatory Grief, Caregivers & Loss: According to AARP, millennials make up 25%—1 in 4—of America’s 40 million unpaid family caregivers” https://www.forbes.com/sites/jodygastfriend/2018/07/25/the-cost-of-caregiving-meet- the-millennials-taking-a-second-unpaid-shift/#2256477729ff” 16
  17. 17. The Numbers: International • Worldwide: – "At least 245 million women around the world have been widowed and more than 115 million of them live in devastating poverty” http://usatoday30.usatoday.com/news/health/2010-06-23-un-widows-poverty_N.htm – “Of the 56.9 million deaths worldwide in 2016, more than half (54%) were due to the top 10 causes…Last 15 Years” https://www.who.int/news- room/fact-sheets/detail/the-top-10-causes-of-death and https://www.cia.gov/library/publications/the-world-factbook/fields/346rank.html#BR – Cancer: “18 million new cases of cancer globally this year and 9.6 million deaths. More than half of all Cancer Deaths will occur in Asia, home to 60% of the world's population. Europe accounts for about 23% of cancer cases while the Americas accounts for 21%. 29 million cases of cancer by 2040 and 16 million deaths “https://www.cbsnews.com/news/cancer-expected-to-kill-more-than-9-million-people-globally-this-year-report-finds/ – Suicide: “Annually, an estimated 48 million people experience grief to Suicide Loss worldwide” http://theconversation.com/mourning-death-by- suicide-how-you-can-provide-support-for-the-bereaved-98983 • The Canadian context http://www.chpca.net/media/575596/faq_-national_bereavement_day_in_canada_2017_-_en_-_final.pdf – In 2017, an estimated 269,000 Canadians will die, – With each death approximately 5 other people will experience grief – Canada’s population is aging rapidly, and by 2036, the number of deaths in Canada is estimated to be 425,000 per year. • United Kingdom http://www.childhoodbereavementnetwork.org.uk/research/key-statistics.aspx – 23,600 parents died in the UK, leaving dependent children (23,200 in 2014). That's one parent every 22 minutes – In 2015, these parents left behind around 41,000 dependent children aged 0-17 (40,000 in 2014). That's 112 newly bereaved children every day. • China: “The annual death toll in the country is about 8.9 million, of which, The number of unnatural deaths in China each year more than 3.2 million” https://www.quora.com/How-many-people-die-every-year-in-China • India: – “India's death rate according to CIA world factbook is about 7 per 1000. Based on this, 8.4 million people die every year in India which comes to 22,500 per day approximately” https://www.indexmundi.com/g/g.aspx?c=in&v=26 and https://www.quora.com/How-many-people-die-in-India-every- day – “India tops global pollution deaths of 9 million a year: study” https://www.reuters.com/article/us-global-pollution-health/india-tops-global-pollution- deaths-of-9-million-a-year-study-idUSKBN1CO39P 17
  18. 18. The Numbers: Pet Loss • “68% percent of U.S. households, or about 85 million families, own a pet” https://www.iii.org/fact-statistic/facts-statistics-pet-statistics • Pet Loss “Millennials are treating pets like 'their firstborn child’ https://www.thetelegraph.com/technology/businessinsider/article/Millennials -are-treating-pets-like-their-13384580.php?ipid=artem • “A pet’s death can hurt more than losing a fellow human. Social norms are wrecking your grief experience” https://www.popsci.com/pet-death-grief • “Why We Need to Take Pet Loss Seriously. Although grief over the loss of a cherished pet may be as intense and even as lengthy as when a significant person in our life dies..Many of the societal mechanisms of social and community support are absent when a pet dies” https://www.scientificamerican.com/article/why-we-need-to-take-pet-loss- seriously/ • “Pet cloning is not just for celebrities anymore https://phys.org/news/2018- 03-pet-cloning-celebrities-anymore.html 18
  19. 19. 4. Examples of Research Funding Opportunities 19
  20. 20. Examples of Research Funding Opportunities • New York Life Foundation Philanthropic Giving in 2018 $25 Million: – $15 Million to Education & Bereavement Partners, $2.9 Million to Child Bereavement. • Columbia University: – https://complicatedgrief.columbia.edu/professionals/complicated-grief- professionals/overview/ The Center for Complicated Grief @ Columbia University – “The Department of Defense Congressionally-Directed Medical Research Program awarded Uniformed Services University (USU) and Columbia University’s Center for Complicated Grief a $3 million, four-year grant to develop and test a mobile and web application to help military families cope with the loss of a servicemember” https://www.stripes.com/lifestyle/new- study-aims-to-help-military-families-grieve-1.546485 – New Grief App for parents was developed through a three-year $800,000 grant from the New York Life Foundation (2019) https://www.newyorklife.com/newsroom/new-york-life-foundation-grant- griefsteps-app-center-for-complicated-grief • Cornell University Center for Research on End of Life Care has had remarkable success in 2 years of existence. Over $12 million dollars in NIH Funding for grants https://endoflife.weill.cornell.edu/about-us 20
  21. 21. 5. Examples of Grief Centers Worldwide 21
  22. 22. Examples of Other Grief Centers & Initiatives • USC University of Southern California- National Center for School Crisis & Bereavement - https://www.schoolcrisiscenter.org/ • University of Wisconsin Center for Grief & Death Education - https://www.uwlax.edu/center/grief-and-death- education/ • Trauma and Grief Center for Youth at The University of Texas Health Science Center at Houston (UTHealth) https://med.uth.edu/news/2015/01/22/trauma-and-grief-center-for-youth-opens/ • Center for Anxiety and Traumatic Stress Disorders and Complicated Grief at Massachusetts General Hospital https://www.massgeneral.org/psychiatry/research/researchlab.aspx?id=1756 • https://www.sophia.ac.jp/eng/research/research/affiliated_r/griefcare.html - Japan: Sophia University’s Institute of Grief Care - Established in April 2009, this Institute is first of its kind in Japan to deal with what is referred to as “grief care.” In April 2010, its ownership was transferred to Sophia University form St. Thomas University. The Institute is carrying out research on how to cope with the mixed emotions that people go through when they lose someone close to them. • http://vbn.aau.dk/en/organisations/sorgens-kultur(6962dfb5-9499-4f7f-971b-64f4d3e37dd5).html Denmark: Aalborg University: Culture of grief. In this research centre, we will specifically examine grief experiences & the cultural setting and conception of happiness and distress within which grief is situated in our time. • http://www.bath.ac.uk/cdas/ UK: University of Bath Center for Death & Society. Research Projects include: http://www.bath.ac.uk/cdas/research/ • https://www.dur.ac.uk/cdals/ UK: Durham University Centre for Death and Life Studies • https://www.kings.uwo.ca/academics/centres-kings/grief-and-bereavement/ - Canada: King’s University College Centre for Education about Grief and Bereavement. 22
  23. 23. 6. Grieving @ Stanford 23
  24. 24. “We’re the university that talks about climate change and social justice issues, but the one thing that we talk about least is grieving” The Stanford Daily – 2/12/2016 24
  25. 25. “No one wants to be the person who answers “Terrible,” when someone asks, “How are you?” The resources Stanford provides for students dealing with grief are hard to find.. More should be done to promote and advertise these services, especially since grief is so universally experienced Maybe we should be okay with the idea of answering “How are you?” with “Not good.” The Stanford Daily – 2/12/2016 25
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  28. 28. Research on Grief & Students • https://www.purdue.edu/uns/html4ever/2006/060404.Seib.study.html Study: Grief has impact on college students' academic performance Study: Grief has impact on college students' academic performance. At any one point in time, 22-30% of college undergraduates are likely to have experienced a death loss in the previous 12-month period (Balk, 2001). Anecdotal evidence and intuitive impressions suggest that bereaved college students are at risk for academic difficulties and dropout. The current findings provide empirical support for intuitive impressions that bereaved college students are at risk for decreased academic performance and substantiate arguments that colleges and universities should intervene on behalf of bereaved students • https://core.ac.uk/download/pdf/55324196.pdf Grief and Bereavement among College Students. Based on the results, this research underlines the importance for grief awareness on Abilene Christian University’s campus as well as a call for university engagement involving the grieving student population. One of the biggest factors that could be enacted in order to better assist our grieving students is the creation of a policy for grieving students. Within the university, there are no policies involving services and accommodations for the grieving population enrolled. To best serve the students, policies need to be in place that all faculty, staff, and students are aware of that identify the steps in assisting the grieving. • https://trace.tennessee.edu/cgi/viewcontent.cgi?referer=https://www.google.com/&httpsredir=1&article=2820&c ontext=utk_graddiss A Study of Graduate Student Grief and Prolonged Grief Disorder 28
  29. 29. 7. Next Steps: GriefTech Initiative @ Stanford University 29
  30. 30. Good from Grief: “When Leland Stanford and his wife Jane.. lost their only child… they decided to build a university as the most fitting memorial” Mission, Purpose & Community: Stanford University , as a university founded from grief located in one of the world’s top technology innovation centers has a unique and timely opportunity to establish the leading center for the study of How New Technologies Impact the Grieving Process of People Worldwide 30
  31. 31. Next Steps: GriefTech Initiative @ Stanford University • Establish a Senior Level Inter-Disciplinary Exploratory Committee with Representatives from Key University Areas, Students, Alumni and Tech Industry: – Finance – Alumni Affairs & Alumni Reps – Human Resources – Student Services & Student Reps – Undergraduate Education – School of Medicine – Stanford Children’s Hospital – School of Humanities & Sciences – Department of Communications – School of Education – Tech Industry – Other Industry Representation – My Grief Angels 31
  32. 32. 8. About: www.MyGriefAngels.org 32
  33. 33. About: www.MyGriefAngels.org • My Grief Angels ("MGA"), a Guidestar Platinum Level 501 (c) (3) public charity, is an online grief support community of people coping with loss and helping each other by leveraging new technologies to find the latest resources, education, information & shared experiences on grief • Why?: Created & funded as response to the total lack of preparedness, education & knowledge of grief and the grieving process by brothers educated at Stanford & Harvard and facing the traumatic loss of their mother and their father’s PTSD to aggressive dementia response to his grief. • What?: Mission to provide anyone, anywhere grieving with free 24/7 online resources and tools to help themselves learn more about grief, the grieving process, and how others like themselves have gotten thru what will be one of the worst times for many of us and our families. • How? Leveraging New Technologies and Distribution Channels to maximize reach worldwide 33
  34. 34. About: www.MyGriefAngels.org Today • Yearly over 120,000 people grieving in the United States, Asia, Europe, Latin America, Middle East & other countries use My Grief Angels’ site, free mobile app, free Massive Open Online Course (MOOC) on “Grief: How It Can Kill or Empower Us? And its resources on Grief & Our Health, Grief Attacks, Grief Directory by Type of Loss Experienced, Good from Grief Book & others. • Some of the group’s key accomplishments to date include: – First Grief Support Proximity-based Mobile App developed & launched in Google Play, Apple iTunes, Amazon & others with over 10,000 Downloads to date. – First free Massive Open Online Course (MOOC) on “Grief: How it Can Kill or Empower Us” launched in the European Multiple Moocs Aggregator (EMMA) platform & as of 2019 in the Happiness.com Academy – First published collection of Grief Attack shared experiences and coping strategies. 34
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