2013 Up Coming SUNLOWS

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2013 Up Coming SUNLOWS

  1. 1. The Mental Health Research Network is part of the National Institute for Health Research andsupports studies in England.SUNLOWS 2013 SEMINARSA collaboration between the North London and theSouth London & South East Hub of the NIHR MHRNwww.sunlows.org.uk■ May 31 2013 2pm - 4pmDr Juliana Onwumere will present two studies relating to improving relationships in psychosis.Study Status: ClosedA cognitive model of caregiving in psychosis:There is a long history of research into the attributes of carers of people with psychosis, but fewinterventions target their distress or their difficulties. The study aims to describe an empiricallybased model of the relationships of those caring for people with psychosis to inform clinical andtheoretical advances. The study team developed a model of informal carer relationships in psy-chosis, based on an integration of the literature and elaborating on the concept of expressedemotion. The model accounts for divergent outcomes of three relationship types: positive, over-involved and critical/hostile relationships.Needs for closure in caregivers of people with psychosis:The aim of the study was to determine how carer need for closure relates to expressed emotion.It also examined the links between carer need for closure and patient functioning including patientneed for closure. In a cross-sectional study, 70 caregivers of patients with psychosis completedthe Need for Closure Scale (NFCS), the Camberwell Family Interview (CFI) and measures ofdistress, burden, coping and social network. The NFCS was assessed in terms of its two pri-mary dimensions: a need for simple structure (NFSS) and Decisiveness. Patients also completedmeasures of psychotic symptoms and affect, and in 50 matched caregiver patient dyads, directcomparisons were undertaken between caregiver and patient NFCS scores.■ June 28 2013 24th 2pm - 4pmECHO/CASIS – A presentation by Charlotte Rhind and Rebecca HibbsBoth studies relate to interventional research into assisting those caring for someone diagnosedwith Anorexia Nervosa.ECHOStatus of Study: OpenCarers of people with Anorexia Nervosa (AN) experience high levels of distress and burden and aswell can respond to the illness in ways that can maintain the symptoms of AN. Also, family interven-tions have the most success in AN but it is unclear how they work and there is a need for research todefine the process by which interventions exert their effects. Expert Carers Helping Others (ECHO)is a self directed intervention for carers that aims to reduce their distress, burden and improve theirself efficacy and coping skills. In addition, specific communication strategies are taught to enablecarers to encourage behaviour change within the person they care for. Previous research has found
  2. 2. ECHO benefits community samples of carers but there is no objective data from patients so it isunclear whether they intervention has subsidiary effects on those with AN. This pilot study (ECHO)will examine whether ECHO is helpful for a sample of carers who care for a young person with ANwho is receiving outpatients, and whether the patients benefit at 12 month follow up. In addition, thisproject will test whether additional telephone support enhances the effects of the self help versionof the intervention.CASISStatus of Study: ClosedAnorexia nervosa is one of the commonest chronic conditions in adolescence and has profoundphysical, psychological, developmental and psychosocial effects on the individual and her/his familyand has large care costs for society. The NICE guidelines concluded that there was insufficient evi-dence to make confident treatment recommendations for anorexia nervosa. One factor that makesinterpretation of RCT evidence difficult is poor adherence to treatment. In part this is because ofpoor patient acceptability for interventions including nutritional advice, medication, inpatient treat-ment and CBT but in addition clinicians intervene to change treatment (increase the intensity eg in-patient treatment) if treatment effectiveness is poor. In contrast to individual interventions those thatinvolve the family are effective and acceptability appears to be less of a problem. Eating disordershave a profound interpersonal impact. The quality of life of family members is severely impaired andstress levels are high. This contributes to high expressed emotion, which in turn has been found toimpact negatively on the course of the illness. In addition families accommodate to eating disorderbehaviours and this can also maintain the disorder. Educational interventions for families in the formof groups or training materials have been shown to improve the wellbeing of family members andpossibly also positively impact on the course of the eating disorder. A period of partnership workingbetween academics in the UK, BEAT and individual carers and users has led to the development ofa variety of training and self help materials (books, DVD, web) to facilitate the care giving role. Thesematerials supplemented with guidance (telephone coaching, workshops, CASIS) improve carer wellbeing and reduce factors that negatively impact on the course of the illness.■ July 26 2013 2pm - 4pmCPA and Recovery – A presentation by Dorothy GouldService users’ experiences of recovery under the 2008 Care Programme ApproachStatus of Study: ClosedThis study was set up to explore how effective service users find the 2008 Care Programme Ap-proach in promoting recovery as they understand it, to put forward their views and recommenda-tions about the recovery role of the Approach as well as to produce a checklist of good practice formental health professionals involved in this Approach. Dorothy Gould will present the results of thestudy.■ August 30 2013 2pm - 4pmSTART: ‘Systemic Therapy For At Risk Teens’ presented by Dr. Stephen Butler and AngelineDharmaindraStatus of Study: ClosedSTART is a major research study spread across 9 areas in the UK investigating a form of interven-tion for young people and theirfamilies who are experiencing difficulties at home, at school and sometimes with the law. This wayof helping young people and their families is new to the UK. The research team aim to compareMultisystemic Therapy (MST) with other services that are currently offered to young people andtheir families who are considered to be at ‘high risk’ of requiring out-of-home care such as foster-ing, social care or custody if associated with antisocial behaviour such as conviction as a youngoffender.For more information please contact: info@sunlows.org.uk

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