Why do I have to take medicine if I “FEEL” well? <ul><li>Lupus can be ACTIVE even if you feel well </li></ul><ul><ul><li>S...
Some medications are taken to PREVENT future problems <ul><ul><li>Some medications are started when patients feel bad.  Pa...
What happens if I run out of my medications? <ul><li>This should NEVER happen </li></ul><ul><ul><li>Some medications, such...
How can I remember to take my medicine? <ul><li>Some tips to remember your medications </li></ul><ul><ul><li>Use a weekly ...
What happens if I “accidentally” become pregnant? <ul><li>Patients with SLE can have healthy pregnancies </li></ul><ul><li...
Pregnancy can be difficult for some Lupus patients <ul><ul><li>Patients may have a flare of Lupus when pregnant </li></ul>...
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Medication Compliance in Young People with Lupus

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Dr. Phillip Kahn, a pediatric rheumatologist in New York City, discusses medication compliance in young people with lupus.

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Medication Compliance in Young People with Lupus

  1. 1. Why do I have to take medicine if I “FEEL” well? <ul><li>Lupus can be ACTIVE even if you feel well </li></ul><ul><ul><li>Sometimes Lupus can be “silent” but active, which is one of the reasons why patients need regular physicals and blood work. </li></ul></ul><ul><ul><li>Many other diseases, such as diabetes and high blood pressure, can be active and cause damage without patients feeling bad. </li></ul></ul>
  2. 2. Some medications are taken to PREVENT future problems <ul><ul><li>Some medications are started when patients feel bad. Past studies have demonstrated that it is important to continue certain medications for a period of time in order to prevent future organ damage. </li></ul></ul><ul><ul><li>Hydroxychloroquine (Plaquenil) has also been shown to reduce the incidence of disease flares, which is why many patients are on this medicine long-term if not for a lifetime </li></ul></ul>
  3. 3. What happens if I run out of my medications? <ul><li>This should NEVER happen </li></ul><ul><ul><li>Some medications, such prednisone can be dangerous if stopped suddenly </li></ul></ul><ul><ul><li>A flare of lupus can occur if medications are stopped suddenly, likely requiring MORE medication </li></ul></ul><ul><li>It is good to call your doctor when you have one week left of medication </li></ul><ul><li>For all of your medicines you should (at least) know the following: </li></ul><ul><ul><li>What is the medicine for, and what are the side effects? </li></ul></ul><ul><ul><li>What is the dose and frequency? </li></ul></ul>
  4. 4. How can I remember to take my medicine? <ul><li>Some tips to remember your medications </li></ul><ul><ul><li>Use a weekly pill box </li></ul></ul><ul><ul><li>Place a medication calendar on the refrigerator, which can be checked off after taking each medicine </li></ul></ul><ul><ul><li>Set your watch/cell phone/beeper/clock alarm as a reminder </li></ul></ul><ul><ul><li>Do what works for YOU. For example, if you need to take a medicine in the morning and evening, perhaps you could leave the pill bottle by your toothbrush as a reminder </li></ul></ul>
  5. 5. What happens if I “accidentally” become pregnant? <ul><li>Patients with SLE can have healthy pregnancies </li></ul><ul><li>It is important to PLAN the pregnancy when one is ready, in order to discuss with your rheumatologist in advance whether certain medications need to be changed. </li></ul><ul><ul><li>Certain medications may be harmful to a developing fetus </li></ul></ul>
  6. 6. Pregnancy can be difficult for some Lupus patients <ul><ul><li>Patients may have a flare of Lupus when pregnant </li></ul></ul><ul><ul><li>Some Lupus patients may have certain antiphospholipid antibodies which may make it more difficult to have a successful pregnancy </li></ul></ul><ul><ul><li>Some SLE patients carry certain autoantibodies that are associated with increased risk to the fetus. </li></ul></ul><ul><ul><li>Patients with increased likelihood of having more difficulty with their pregnancy should be followed by a high-risk obstetrician </li></ul></ul>

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