Prwe cyp forum 201113_lm intro slides

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Introductory slides to PRWE forum on public involvement with children and young people

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  • INVOLVE – since 2007
    Freelance researcher – incl GSTT training and HTA PPI study
    NCB – incl development of guidance, PEAR project and work with MCRN CC
  • Focus on children’s rights has, to some extent, been reflected in increasing interest in children and young people’s involvement in research
  • Prwe cyp forum 201113_lm intro slides

    1. 1. People and Research West of England Children and Young Peoples Participation Network 20th November 2013
    2. 2. Today: Chance for those involving children and young people (CYP) in health and social care research and/or interested in patient and public involvement (PPI) to: •hear about others’ work •explore some of the common issues of involving CYP in research •Share and learn from others’ experiences
    3. 3. My background • PhD: embedding CYP’s participation in health and social care services • Member of INVOLVE • Freelance researcher, including work on PPI • Background in applied social research, including leading on CYP’s involvement at NCB Research Centre
    4. 4. Young Health Participation • Blog about CYP’s participation in health and social care, including presentations and reports from recent workshops: www.younghealthparticipation.com @louca_mai louca.brady@uwe.ac.uk
    5. 5. Defining public involvement INVOLVE define ‘public involvement as: “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them” The public are defined as including: “patients, potential patients, carers and people who use health and social care services as well as people from organisations that represent people who use services… [as distinct from] people who have a professional role in health and social care services” INVOLVE (2012). Briefing notes for researchers. www.invo.org.uk
    6. 6. INVOLVE definitions • Involvement: Where members of the public are actively involved in research projects and in research organisations • Participation: Where people take part in a research study • Engagement: Where information and knowledge about research is provided and disseminated INVOLVE (2012). Briefing notes for researchers. www.invo.org.uk
    7. 7. • Consultation is the process by which children and young people are asked their opinions – on a specific issue or broader agenda (eg as research participants) • Involvement/participation is the process by which individuals and groups of individuals can influence decision-making and bring about change (eg through involvement in the planning and process of research)
    8. 8. UN Convention on the Rights of the Child (UNCRC) • Article 12 . Every child and young person has the right to express his or her views freely in all matters affecting them • Article 13. CYP have the right to freedom of expression, including the right to all kinds of information and ideas • Article 24: CYP have the right to good quality health care and information to help them stay healthy

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