The Worst Pain Imaginable

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Regina Holliday, Patients' Rights Activist

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The Worst Pain Imaginable

  1. 1. REGINA HOLLIDAY Patient Rights Arts Advocate
  2. 2. The Worst Pain Imaginable: What do patients bring to the table? Regina Holliday e-Patient Connections 2010
  3. 3. Sometimes when you are Looking at the big picture, You miss the small, but Very important Details….. The unplugged IV, The pressure ulcer, The unwashed tray The autistic mind…
  4. 4. Fred’s Medical Record from March 25th through April 22nd at Health 2.0 Goes to Washington on June 7th, 2010.
  5. 5. A tale of two Binders Fred’s Medical Record Freddie’s IEP Record
  6. 6. Accommodations must exist to help a patient or child have the best experience possible. Accommodations do not exist just to facilitate work flow for the provider or teacher.
  7. 7. ―You know, for kids.‖ - Norville in the Hudsucker Proxy 1994
  8. 8. “Mommy, that hospital is like one of those blond girls, that seem so nice and pretty until they open their mouth.” ~ Freddie Holliday 2009
  9. 9. Freddie Holliday center in the Child’s Play Mural Painted August-Sept 2001
  10. 10. ―Nothing is as simple as black and white‖
  11. 11. ―Disease is a lot like that flower in the movie (Pleasantville), first it is just a flower and soon the color is everywhere….‖ –Freddie Holliday III 2009
  12. 12. ―NO, no Daddy, not cancer! I have seen those t-shirts! Race for the cure… That means that there’s no cure for cancer.‖ –Freddie Holliday III (10 years old)
  13. 13. How would you rate your pain? Is medicine suffering from ―temporary autism‖ or face blindness?
  14. 14. But, who does well reading faces? People who have Practiced . ―…People who have had highly abusive childhood also do well; like stroke victims, the had to practice the difficult art of reading minds, in their case the minds of alcoholic or violent parents.‖- Malcolm Gladwell author of ―Blink‖
  15. 15. ―Mommy, is God using atheists to spread the word?‖ –Freddie Holliday III 10 years o "That's part of your problem, you haven't seen enough movies. All of life's riddles are answered in the movies." —Davis (Steve Martin), Grand Canyon, from Frederick Holliday's e-mail signature

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