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Why do we need the
#LBBill? v2
My dude lives with Angelman
Syndrome. He is dependent on
others to facilitate his life ensuring
quality AAC methods are
maintained.
If he can't speak out and be
understood and respected… he
acts out.
If those around him see this as his
challenging behaviour rather than
behaviour that challenges them to
listen and understand… then he
could so easily find himself on the
treatment route.
That's why we need the #LBBill.
As the father of a young man with
very complex needs I now count
myself as one of the lucky ones
because against the odds I
managed to find somewhere for
my son to live where he is happy,
his needs are met and he enjoys a
suitable quality of life.
But having a decent life should not
be a matter of luck.
In a decent society we must make
certain that the needs of
vulnerable people are met in full.
That’s why I support the #LBBill
which will provide a legal
framework to safeguard the rights
of people like my son to have a
decent quality of life.
This is ‘madam’. She has
severe physical disabilities and
complex health needs, but she
is far more intelligent than the
so-called professionals who try
to control her life.
The #LBBill is vital to protect
all disabled people as current
legislation is openly abused…
'Madam' and others like her
deserve the protection that
#LBBill aims for.
She deserves to be protected
from people who use their
positions to abuse current
legislation.
This is my fabulous son
Michael who is 24. He has
Autism and LD.
Michael is perfectly able to say
what he wants.
I want that right to be upheld
against all comers.
I truly have been naive in
believing that the dark days of
the asylum were behind
us...that the law was
unimpeachable and its officers
not above being accountable.
Let's make the #LBBill a
reality before another family is
fractured beyond repair.
One of my fears is what will happen
to my daughter when I die or I
cannot support her anymore.
#LBBill is important. Although the
fear will never completely disappear,
I really wish for the world to be a
better place for her to live the life
she chooses, with support that goes
above and beyond the call of duty.
With enough funding to pay her PAs
a decent and valued wage, and for
her family and those that
understand her non verbal complex
communication impairments to
continue to support her in making
informed decisions and that they
will be listened to in all aspects of
her care.

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Why do we need the #LBBill v2

  • 1. Why do we need the #LBBill? v2
  • 2.
  • 3. My dude lives with Angelman Syndrome. He is dependent on others to facilitate his life ensuring quality AAC methods are maintained. If he can't speak out and be understood and respected… he acts out. If those around him see this as his challenging behaviour rather than behaviour that challenges them to listen and understand… then he could so easily find himself on the treatment route. That's why we need the #LBBill.
  • 4.
  • 5. As the father of a young man with very complex needs I now count myself as one of the lucky ones because against the odds I managed to find somewhere for my son to live where he is happy, his needs are met and he enjoys a suitable quality of life. But having a decent life should not be a matter of luck. In a decent society we must make certain that the needs of vulnerable people are met in full. That’s why I support the #LBBill which will provide a legal framework to safeguard the rights of people like my son to have a decent quality of life.
  • 6.
  • 7. This is ‘madam’. She has severe physical disabilities and complex health needs, but she is far more intelligent than the so-called professionals who try to control her life. The #LBBill is vital to protect all disabled people as current legislation is openly abused… 'Madam' and others like her deserve the protection that #LBBill aims for. She deserves to be protected from people who use their positions to abuse current legislation.
  • 8.
  • 9. This is my fabulous son Michael who is 24. He has Autism and LD. Michael is perfectly able to say what he wants. I want that right to be upheld against all comers. I truly have been naive in believing that the dark days of the asylum were behind us...that the law was unimpeachable and its officers not above being accountable. Let's make the #LBBill a reality before another family is fractured beyond repair.
  • 10.
  • 11. One of my fears is what will happen to my daughter when I die or I cannot support her anymore. #LBBill is important. Although the fear will never completely disappear, I really wish for the world to be a better place for her to live the life she chooses, with support that goes above and beyond the call of duty. With enough funding to pay her PAs a decent and valued wage, and for her family and those that understand her non verbal complex communication impairments to continue to support her in making informed decisions and that they will be listened to in all aspects of her care.

Editor's Notes

  1. My dude lives with Angelman Syndrome. He is dependent on others to facilitate his life ensuring quality AAC methods are maintained. If he can't speak out and be understood and respected… he acts out. If those around him see this as his challenging behaviour rather than behaviour that challenges them to listen and understand… then he could so easily find himself on the treatment route. That's why we need the #LBBill.
  2. As the father of a young man with very complex needs I now count myself as one of the lucky ones because against the odds I managed to find somewhere for my son to live where he is happy, his needs are met and he enjoys a suitable quality of life.   But having a decent life should not be a matter of luck. In a decent society we must make certain that the needs of vulnerable people are met in full. That’s why I support the #LBBill which will provide a legal framework to safeguard the rights of people like my son to have a decent quality of life.
  3. The #LBBill is vital to protect all disabled people as current legislation is openly abused… 'Madam' and others like her deserve the protection that #LBBill aims for. She deserves to be protected from people who use their positions to abuse current legislation.
  4. This is ‘madam’. She has severe physical disabilities and complex health needs, but she is far more intelligent than the so-called professionals who try to control her life. The #LBBill is vital to protect all disabled people as current legislation is openly abused… 'Madam' and others like her deserve the protection that #LBBill aims for. She deserves to be protected from people who use their positions to abuse current legislation.
  5. This is my fabulous son Michael who is 24. He has Autism and LD. Michael is perfectly able to say what he wants. I want that right to be upheld against all comers. I truly have been naive in believing that the dark days of the asylum were behind us...that the law was unimpeachable and its officers not above being accountable. Let's make this bill a reality before another family is fractured beyond repair.
  6. One of my fears is what will happen to my daughter when I die or I cannot support her anymore. #LBBill is important. Although the fear will never completely disappear, I really wish for the world to be a better place for her to live the life she chooses, with support that goes above and beyond the call of duty. With enough funding to pay her PAs a decent and valued wage, and for her family and those that understand her non verbal complex communication impairments to continue to support her in making informed decisions and that they will be listened to in all aspects of her care.
  7. .