Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.

Social media in clinical trials

6,956 views

Published on

Published in: Health & Medicine

Social media in clinical trials

  1. 1. Social Media inClinical Trial Recruitment John Sharp 10/28/2011
  2. 2. The Big 3 – Twitter, Facebook,YouTube  Pervasive  Patients follow organizations, academic medical centers – interested in discoveries  FDA watching Pharma’s use of social media  Always link back to more information and a contact person
  3. 3. Engagement with online patientcommunities  Patients discussing the latest treatments, trials  Rare diseases particularly effective – NORD  More common diseases – DiabetesMine.com – thousands of visitors daily  Breast cancer communities active  ALS, MS – PatientsLikeme.com  Peer-to-peer healthcare  Mayo Clinic – rare cardiac disease community eager to engage
  4. 4. More recruits that you canaccommodate News travels quickly via Twitter, Facebook Army of Women – with Susan Love  12 studies and 12,000 signed up in 2009 alone  Breast cancer, lung cancer, obesity studies
  5. 5. What does the Institutional ReviewBoard think?  Yet to be approved  How is this different from traditional advertising for clinical trials?  Need social media experts on the IRB  Need to begin to define best practices  What are adverse events in online research, what should be reported?
  6. 6. References (1) National Organization for Rare Diseases (NORD) Facebook page: https://www.facebook.com/NationalOrganizationforRa reDisorders Online Patient communities: http://www.rarediseases.org/patients-and- families/online-communities PatientsLikeMe.com Clinical Trials Tool: http://www.patientslikeme.com/clinical_trials Engaging E-Patients in Clinical Trials through Social Media Blue Chip Marketing report: http://bluechipmarketingworldwide.com/BCPR_form/B lueChip_SocialMedia_5-2011.pdf Can Breaking Oncology News Spread Socially? From the blog, 33Charts: http://33charts.com/2010/10/can- breaking-oncology-news-spread-socially.html
  7. 7. References (2) E-Patient White Paper Chapter 6 – e-Patients as Medical Researchers http://e-patients.net/e-Patients_White_Paper.pdf Mind the Gap: Peer-to-peer Healthcare From Pew Internet & American Life Project http://www.pewinternet.org/Reports/2011/20-Mind-the- Gap.aspx Social Media Valuable Tool for Recruiting Study Participants Mayo Clinic Proceedings, 8/29/11 http://www.mayoclinic.org/news2011-rst/6420.html

×