Jeans for Genes day! Friday 7 th OctoberWe’re changing the world for children with genetic disorders. All you have to do is wear your jeans.
Facts about genetic disorders It is estimated that 2.8m people in the UK are affected by rare genetic disorders* (2m are affected by cancer)An estimated 1 in 25 children born in the UK is affected by a genetic disorder / birth defect, that equates to more than 30,000 babies born in the UK each year There are more than 4,500 recognised genetic disorders Genetic disorders are the biggest cause of death for children aged 14 and under*Source: 2009 Annual Report of the Chef Medical Officer (80% of rare diseases are estimated to be genetic)
what is Jeans for genes day?Thousands of children and adults pay £1 / £2 to weartheir jeans to school or work on Jeans for Genes Day
Our supportersToday, we have a database of 100,000 supporters from work places to schools across the UK.
How we spend donations All of the net income raised by Jeans for Genes each year is distributed amongst charities dedicated to supporting individual genetic disorders.These charities provide vital care and support services for affected children and families, as well as ongoing research into these conditions.
Projects funded in 2010Chronic Granulomatous Disorder Research We help to fund a variety of projects including a psychological supportTrust service and CGD clinical nurse specialists.Genetic Alliance UK A coordinator for families living with Sydrome Without a Name (SWAN). Jeans for Genes supports several research projects each year, from PhDGreat Ormond Street Hospital Childrens research grants to ongoing work by senior academics at the Jeans forCharity Genes Centre for Inherited Diseases.Headlines Craniofacial Support Jeans for Genes is funding a workshop with horses. Gentle and non- judgemental, the animals will also help the children develop their non- verbal communication.Ichthyosis Support Group Jeans for Genes is giving the ISG a grant towards its national conference. Families can meet and know theyre not alone. And the children can see others who look like them.International Costello Syndrome Support Were proud to be helping families with Costello syndrome comeGroup together for the very first time in the UK at their first annual retreat. Boys and men can have low self confidence because of the differences inKlinefelters Syndrome Association their bodies and they can find social situations difficult. We are funding an activity weekend; which will make a dramatic difference to how boys and young men feel about themselves. With our help, the MGA are setting up an outreach programme. One ofMyasthenia Gravis Association its key aims will be to help families get the educational support their children need and are entitled to at school. Currently projects include a five year research programme at OxfordThe Primary Immunodeficiency Association University and the Oxford Radcliffe Hospitals and comprehensive support and advocacy activities for children and adults. Jeans for Genes provides funding to the MPS Society each year. ItsThe Society for Mucopolysaccharide Diseases invested in research to find treatments for some of the 21 different MPS conditions. It also supports regional clinics for families. We are funding a workshop for young people. They can share theirSickle Cell and Young Stroke Survivors experiences, learn how to be healthy and their families can share their worries.
Help us reach our target Find out more about our work at www.jeansforgenesday.com
Buy our t-shirtsDesigned to make a difference! Buy from our webshop and you wont just look amazing, youll feel great too, knowingthat all profits from every sale goes to Jeans for Genes.Order 25 t-shirts or more and get 20% off the cost of your order! Order online or via our free phone number 0800 9804800. www.jeansforgenes.com/webshopLimited edition womens t-shirt design for 2010 modeled Our white branded t-shirts modeled by by Amanda Holden and Amber Le Bon Leighton Denny and Jenny Frost
Buy or sell our stickersFifi Forget-Me-Not and her friends in Flowertot Garden are back!This year theyre helping to raise money for Jeans for Genes with a range of brand new glittery stickers.Order a box and sell them at your school, club, workplace or just to friends and family. 40 sheets per box. www.jeansforgenes.com/webshop
Amanda HoldenAmber Le BonJenny Frost Celebrity supportersRicky Whittle