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self-determination presentation

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self-determination presentation

  1. 1. The Individuals and their self-directed activism toward what they want to achieve: A Training for Brokers and Medicaid Service Coordinators by theamazinJ (Jason Ross)
  2. 2. Individuality theamazinj Objects, Possessions Creations Choices Genetics Interests Friends & Family Work and Hobbies Practices and Habits Ethnicity Appearance Beliefs Values
  3. 3. Identity First Language vs. Person First Language theamazinj (Jason Ross) Language is important not only for a Disabled person, but for any person Speak to any Person the way they want to be Identified as instead of giving people an ID the way society or you wants
  4. 4. What is Self-Advocacy and Why is it so important? theamazinj Self-Advocacy is important because it is a basic human right. No one gets to say what other people cannot do, think, say, or represent ourselves as. Being Human means having the individual rights to be whoever we want to be.
  5. 5. Self-Determination freedom to live as one chooses, or to act or decide without consulting another or others without being influenced by others theamazinJ
  6. 6. An Individual’s Path to Self-determination Everyone has their own agendas. It is important not to influence the individual to what you think they should want. The individual has to advocate for themselves constantly when the agencies and others want to maintain their own agendas for what they think is right for the individual. I must make sure I maintain my own self-advocacy to get what I want and need for my success in my life. The stronger self-advocate I become, the more I get what I want and need. Don’t be afraid to say ‘NO’ when something does not feel right from an agency or person. Tell everyone what you want and need! theamazinj
  7. 7. The Person Centered, Self-directed Services, maintaining Self-Determination • It is important that the whole circle of support maintains the Individual’s own self-determination • The individual makes decisions based on what they believe feels right for them without being directed by other people telling them what to do • The individual is in charge of their own life who knows what fits, what feels right, and knows what they want and the success they need. The circle of support assists the individual to maintain that success. • No one tells or influences the individual, but offers support • The Individual gets to make their own mistakes too and learns from those mistakes For example, if an individual chooses to further their education to enable themselves toward their activism, let them! theamazinJ
  8. 8. The Individual Self-directing their own life theamazinj The Individual calls their own meetings The Individual creates their own circle of support which includes mostly the Broker, the individual’s choice of supportive people, and partly the Medicaid Service Coordinator The individual tells the circle of support what they want in their life, what they need, and what success looks like. The Circle of Support is only there to support the decisions of the individual’s wants and needs in their life while helping to make those things possible The Individual makes all the decisions The Individual is an adult who IS taking responsibility for their own life. This is about supportive decision making, not influencing or telling
  9. 9. Self-Direction theamazinj Self-determination from what the individual wants, needs, and says. Basically, the individual leads! Without the head, body, and feet, the system cannot function Head : Fiscal Intermediary, takes care of the money in the budget Body: person who works the most with the individual: The Broker with the circle of support Feet : Medicaid Service Coordinator
  10. 10. The Head: Fiscal Intermediary theamazinj This person allocate the money in the budget for the individual They work closely with the broker to function by allocating money for the different things within the approved budget Without the The Fiscal Intermediary no broker, staff, or other things gets paid
  11. 11. The Body: The Broker theamazinj The Broker is the MAIN person who works with the Individual The Broker gets to know the individual the most and helps construct the budget and must be creative to think outside the box of how to get the individual what they want and need The Broker works closely with the individual to make sure all the needs and wants are met by the plan that is approved
  12. 12. The Feet: Medicaid Service Coordinator theamazinj The person who does the least, but still important factor in maintaining the needs of the individual This person maintains medicaid, health insurance, social security benefits, food stamps, the Individualized Service Plan, and helps provide support within the circle of support to maintain that the services are centered around the individual
  13. 13. Helping Disabled People Build Community and Direct Their Own Lives: My meet up group theamazinJ
  14. 14. Disabled People’s Rights + Civil Rights = Human Rights theamazinJ We need to view disabled people as part of the human race too without prejudicial thinking or tragic burden thoughts
  15. 15. alistairdegaetano@gmail.comalistairdegaetano@gmail.com Disabled people are NOT Your Inspiration, we are people too, and need to be respected with what we want out of our life just as much as everyone else, respect what we want, and we will respect you. If non-disabled people get paid for work being done, please concur with disabled people too. theamazinJ
  16. 16. Supported Decision-Making New York
  17. 17. What Is SDM? It’s something that we all do every day! • Supported decision-making (SDM) is a process by which a person with an intellectual or developmental disability can be supported in making his or her own decisions • We call them decision-makers • There is no “one-size-fits-all” model for SDM • It generally occurs when people receive assistance from one or more trusted friends, family members, professionals or advocates to help them understand the situations they face and choices and options they have so they can make their own decisions
  18. 18. Not Just Pie In The Sky! In Texas, SDM is already the law “A process of supporting and accommodating an adult with a disability enable the adult to make life decisions, including decisions related to where the adult wants to live, the services, supports and medical care the adult wants to receive, whom the adult want to live with, and where the adult wants to work without impeding the self-determination of the adult.” Texas established code 1357.002 (3); 1357.003 other states like DE and MA, are catching on, too!
  19. 19. Key Concepts for SDM • Put decision makers in the driver’s seat • Value the will and preferences of decision makers • TRUST decision makers to take risks • Create Meaningful Choices • Recognize decision making supports as a right • Recognize decision making supports as a right
  20. 20. SDMNY’s Theory of Change ) Education - spreading the word about how supported decision making improves the lives of decision-makers 2) Diversion - Helping people avoid guardianship and uses alternatives ) Restoration - Helping people under guardianship have access to alternatives and get their rights back Sustainability - Ensuring that supported decision making will be here to stay
  21. 21. National Resource Center for Supported Decision Making -supporteddecionmaking.org Northampton, MA Supported-Decision-Making Pilot Project -supporteddecisions.org/pilot-project Maine’s Supported Decision Making Coalition -supportmydecision.org Supported Decision-Making New York -sdmny.org
  22. 22. -Yuri Kochiyama “Consciousness is Power, nsciousness is Education and Knowled Consciousness is Becoming Aware, Tomorrow’s World is yours to Build!”

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