Gangadharan S (LIJ), Arnold J, Auerbach MA

1. In situ Simulation education for
families of chronically ill
survivors of critical illness
Sandeep Gangadharan, M.D.
Jennifer Arnold, M.D.
Marc Auerbach, M.D.
INSPIRE @ IMSH 2016 – San Diego, CA / USA
International Network for Simulation-based Pediatric Innovation, Research and Education

2. • Greater numbers of children born with previously lethal congenital
conditions, extreme prematurity and severe illnesses necessitating
critical care are surviving.
• Many of these children have been successfully transitioned to life at
home with their families.
• Families often report improved perceptions of quality of life for all after
transition home
• Effective education may improve caregiver sense of mastery and
caregivers' higher elf-esteem
International Network for Simulation-based Pediatric Innovation, Research and Education
Background

3. • P: Caregivers of children with Chronic
Respiratory Insufficiency
• I:In Situ simulation in patient’s home
• C:Standard education practice
• O:1)Interface with medical personnel
2)quality of life instrument
International Network for Simulation-based Pediatric Innovation, Research and Education
PICO / Research Question

4. • Text
International Network for Simulation-based Pediatric Innovation, Research and Education
Approach / Design
Consent
Standardized
educational
curriculum prior
to discharge
Domicilary In
situ simulation
education
primary caregiver will be given a survey instrument to assess the caregiver’s perception of the quality of life of their child.[19] The parent proxy pedia
Latent safety threats identified in
home care environment
--Action plans created
Primary caregiver will be given a
survey instrument to assess the
caregiver’s perception of the
quality of life of their child.
--Parent proxy pediatric SQL
One week after discharge, the
same instrument will be
administered over the telephone.
Phone survey monthly
-- number and type of health care
system interactions
Appropriate Compliance with
education
--Assessment
--First steps (oxygen, suctioning)
--Escalation
Errors secondary to pre-
identified latent safety threats

5. • ALERT Presentation
• Grant Proposal (if applicable)
• IRB Submission
• Recruitment / Data Collection
• Data Analysis
• Abstract Presentation
• Manuscript Preparation
International Network for Simulation-based Pediatric Innovation, Research and Education
Timeline

6. 1. A feasible outcome with relevance and
impact
2. How many patients? Pilot vs RCT
3. Refinement of scenario design for non-
medical people
International Network for Simulation-based Pediatric Innovation, Research and Education
3 questions to improve study

7. At INSPIRE @ IMSH 2016:
In 2 months:
International Network for Simulation-based Pediatric Innovation, Research and Education
Goals to accomplish

8. Name Sandeep Gangadharan, M.D.
Institution Cohen Children’s Center
E-mail, Phone sgangadhar@nshs.edu
Website / QR Code
International Network for Simulation-based Pediatric Innovation, Research and Education
Contact Information