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26 sept18 arts and wellbeing ppt

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This seminar sets out three different strands of arts and older people work with implications for Health and Social Care policy. We discussed the contribution of cultural engagement to resilience in later life.

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26 sept18 arts and wellbeing ppt

  1. 1. A Research to Policy Seminar: Arts engagement and wellbeing in ageing societies Wednesday 26th September 2018 This event is kindly supported by Newcastle University's Institute for Ageing #artsandageing
  2. 2. Welcome Paul Cann Co-Founder of the Campaign to End Loneliness & former Chief Executive of AgeUK Oxfordshire This event is kindly supported by Newcastle University's Institute for Ageing #artsandageing
  3. 3. Dr Anna Goulding Research Associate Institute of Health and Society, Newcastle University ‘The contribution of cultural engagement to resilience in later life’ This event is kindly supported by Newcastle University's Institute for Ageing #artsandageing
  4. 4. Dr. Anna Goulding Institute of Health and Society Newcastle University @AnnaMGoulding Cultural Engagement and Resilience in Later Life
  5. 5. Everyday creativity: Gardening, communal housing, displaying objects, reading, craft Resilience – successful ageing not achievable for all Creative methods (Policy Press; December 2018)
  6. 6. Omnivorous Private participators Facilitated Contact
  7. 7. Omnivorous • White, educated, younger-old • Widowhood; bereavement; later life divorce; anxiety and depression; declines to physical health
  8. 8. Downward comparisons • ‘… you could see … parallels and … that … helps to enable you to deal with certain things in your own life. Even if it was written two hundred years ago … those … things don't change … you reflect on something that you’ve read … and you say well it’s not as bad as this … they could get over it or … I’m very lucky … you can use it to reinforce positively your behaviour.’ (Male, age 68, Town Planner)
  9. 9. Social relationships • ‘If you have a friend then there’s a certain degree of shared knowledge of one another, if you’ve got an acquaintance then you can just dump all that and just be the person who’s interested in similar literature.’ (Female, aged 64, Learning Manager)
  10. 10. Private participators • I love her books. I read them all the time. Her first husband was a bad man….she met an American Air Force pilot and they’ve got friendly. I don’t know if they are going to get together… • I’m a great reader and I don’t get out very much now because I have a bit of a bad problem walking but four walls does not appeal to me at all…I like to have a wander round the library and I like to go in the reference library…I’m very inquisitive…if you don’t read and you don’t take an interest in things you just lose it and I don’t intend to lose it.
  11. 11. • I get letters from the library…but…it’s quite a hike. • I don’t know if I would like it or not but I just think that’s me night-time hobby…I get bodily tired…at ten o’clock the telly goes off, me book comes out, me music goes on.
  12. 12. Facilitated contact • I’d probably go with someone if one of the others were going…I just love music...I’d like to live the life I was living before it all happened, I had a good quality of life, we used to go out…I enjoyed going out. • Most of them won't go anywhere by themselves because their boundaries are very small. Confidence is very little. When their husbands were alive…they were dependent on them…if they are illiterate in their own language learning a second language becomes even harder…So we had pen and article…people were a bit reluctant…saying, ‘We are not getting anywhere with this, we’d rather just socialise’. • I’d like to have more contact with other people otherwise it gets very, very lonely. Ever since my wife died I’ve been tired, sad, depressed, weary and lonely…Sometimes wish I could get suicide pills on prescription.
  13. 13. Facilitated contact • …trips…curiosity, to get out of the house. • Because I could bring my knowledge to add.
  14. 14. Summary • Omnivorous - self-organise; socialised to engage in public forums; important preventative health • Private participators – not getting the social benefits • Facilitated contact – facilitation critical – the Voluntary Sector Organisational side drawing together group in the first instance, then for the Cultural Organisations to have an ‘offer’
  15. 15. Conclusion • Caution over arguments for ‘everyday’ over ‘official’ or ‘legitimate’ culture in debates around resource distribution. Cultural sector - official cultural organisations outreach officers essential • Local authorities – voluntary sector organisations; social workers; link workers, alongside cultural organisations.
  16. 16. Professor Andrew Newman Professor of Cultural Gerontology School of Arts and Cultures, Newcastle University ‘Dementia and Imagination – implications for the care home sector’ This event is kindly supported by Newcastle University's Institute for Ageing #artsandageing
  17. 17. Improving the quality of life of those living with dementia through the arts Professor Andrew Newman University of Newcastle upon Tyne
  18. 18. Dementia and imagination • Three sites and four waves of three months each: – NE England (Care homes) – Midlands (National Health Service assessment wards) – N Wales (Domestic environments)Interviews qualitative – residents, carers/family • DEMQUAL, Clinical Dementia Rating Scale, Holden Communication Scale • Socio-demographics, survey forms (social contacts, activity, prior arts engagement) for residents and carers/family members • Video recordings of arts activities • Interviews with PWD and carers/family members
  19. 19. Creative activities in care homes • This involves participatory artists working with residents – Not focused upon memory – although that comes in – Time Slips approach– creating something new and looking forward – Might involve a number of different art forms – painting, theatre, sculpture – More associated with contemporary art than skills in drawing – playing with form and colour – Multi-sensory (for those with more advanced dementia) smell touch etc.
  20. 20. Improvements in wellbeing • Enables expression – difficult for those with more advanced dementia (particularly if language has been lost), no normal opportunities. • Improves connectivity – relationships are often lost – people with dementia often withdraw from relationships. • Relationships with care staff are those of dependency and care.
  21. 21. Connectivity • As part of a session they sang the local song the Blaydon Races unprompted which reflects that culture they shared. • The participatory artists, carers or family members who were from a different age cohort and were often from elsewhere in the country were unable to contribute to the content. • The narrative they created referenced things they were aware of in the news as well as remaining memories that they had woven together which are associated with the preservation of self.
  22. 22. Resilience/adaptation • Individual and collective creative expression is the everyday process of adaptation, which is normally hidden, becoming visible. • Adaption is the motivating force behind the creation and re- creation of meaning and identity.
  23. 23. Underestimating abilities • I loved hearing people read, and was surprised how confident the readers were. I suppose I'd underestimated how capable people with dementia are and had assumed they would find this difficult. You underestimate people don’t you, you think ‘oh they’re not going to do that’. The sessions allowed people to achieve their full potential as they were no assumptions that they may not be able to do things.
  24. 24. Learning more about the lives of residents • Care home staff can learn more about the lives of residents and therefore are more able to support their selfhood.
  25. 25. For the future • It is important that activities cease to be done as an intervention and become more embedded in the running of care homes.
  26. 26. For the future • The issue of funding also needs to be addressed so it is less dependent on fundraising and becomes something that might be attractive to potential residents and families. • A way of achieving business plans?
  27. 27. UN Convention on the Rights of Persons with Disabilities • Arts enrichment activities have a part to play in fulfilling the UN Convention on the Rights of Persons with Disabilities for those with dementia enabling them to make decisions and to be active members of society.
  28. 28. Sally Bowell Research Fellow ILC-UK ‘The Commission on Dementia and Music: Considering what works and how to influence change’ This event is kindly supported by Newcastle University's Institute for Ageing #artsandageing
  29. 29. Quick facts – Dementia • 850,000 people with dementia in the UK – est. 1 million by 2025 • 700,000 unpaid carers for people with dementia – est. 1.7 million by 2050 • Annual cost of dementia to the UK is £26.3bn – est. £50bn in next 30yrs • Dementia costs more than cancer, stroke, and chronic heart disease combined
  30. 30. Quick facts – Dementia [2] • Delaying onset of Alzheimer’s by 5 years could result in £100bn saved between 2020 and 2035 • c.80% of PWD in care homes have behavioural and psychological symptoms of dementia (BPSD e.g. agitation, depression, anxiety)
  31. 31. Creating the Commission on Dementia and Music Context • Differing definitions of ‘music-based interventions’ • Sporadic and highly variable provision • Emerging understanding of effectiveness, but with significant gaps • Suspected low awareness amongst public, practitioners, policy makers etc
  32. 32. The activities of the Commission • Brought together 12 high-profile expert Commissioners • Literature review • Site visits • Oral & written evidence • Report and launch event • Media traction
  33. 33. Defining ‘music-based interventions’ We chose to use the phrase ‘music-based interventions’ throughout our analysis and report, to refer to what we discovered to be a very broad range of activity and approaches. As we explored in our report, reflecting on all of the evidence to hand, examples of ‘music-based interventions’ can include: • Listening to music • Personalised, recorded music • Learning and playing an instrument • Live music in care homes • Music therapy • Community-based musical performances and events • Community-based music groups
  34. 34. Current state of play – what did we find? • Sporadic – well-developed in some areas but minimal, or even entirely unavailable elsewhere • Lack of information about: – Availability – Locations – Delivery partners – Effectiveness – Cost
  35. 35. Benefits of music-based interventions • Music and the brain • Minimising the behavioural and psychological symptoms of dementia (BPSD) • Tackling anxiety and depression • Retaining speech and language • Enhancing quality of life • Impact on caregivers • Palliative and end of life care
  36. 36. Effective delivery – what to bear in mind • Important that music is not used indiscriminately • Making music personal – ‘Memory bump’ • Communication and listening
  37. 37. Barriers and challenges • Lack of real traction in the policy environment – nationally and locally • Data collation and centralisation • Funding – Challenge of defining incurred costs – Who pays? – Demonstrating cost-effectiveness and savings • Recognising the therapeutic potential
  38. 38. Barriers and challenges [2] • Instilling confidence, enthusiasm and belief • Reaching the hard-to-reach • Reflecting and promoting diversity
  39. 39. Opportunities • Funding – Personal Health Budgets and Integrated Personal Commissioning – Other funding options e.g. leveraging existing resources, trusts & foundations, music industry, innovative fundraising • Training – For ‘everyday’ use of music – For specialist and periodic interventions • Signposting and referrals
  40. 40. Opportunities [2] • Recent media attention • Broader dementia landscape • Evaluation • Technology
  41. 41. Conclusions • We see devoted advocates operating in a complex and poorly coordinated ecosystem • There is sporadic provision, currently delivered only to the few • The sector is supported by a promising emerging evidence base, which is gaining traction • There are minimal levels of funding – importance of developing cost- effectiveness research • The low level of public awareness needs to be addressed
  42. 42. Recommendations • Coordinate delivery and build intelligence • Develop the research base • Raise public awareness • Coordinate and grow funding
  43. 43. Panel Debate and Q&A
  44. 44. A Research to Policy Seminar: Arts engagement and wellbeing in ageing societies Wednesday 26th September 2018 This event is kindly supported by Newcastle University's Institute for Ageing #artsandageing

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