Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.
51st ICCA Congress            How people living with         Parkinson’s disease built the          World Parkinson Congre...
The rise of patient power•What is the WPC?•Why we tried it in 2006. How’d we do?•Challenges & solutions•What good will com...
Why we tried it in 2006• Creates a spark. Allows delegates to leave the  comfort of their silos. WPCs are fully  integrate...
How’d we do?The 1st World Parkinson Congress (WPC 2006)Washington, DC (USA)  1,800 health professionals and researchers;  ...
Re-evaluate who your “experts” are…STOP thinking of these people as the only experts… International Congress and Conventio...
Re-evaluate who your “experts” are…START thinking of these people as experts too… International Congress and Convention As...
Challenges & New ApproachesChallenges & New Approaches*Program design*Registration*Industry guidelines and codes*Awareness...
Challenge – Program design IWPC includes PwPs in all decisions including programformat & design, speaker selection, and pr...
Challenge – Program design II              Scientific Abstracts                        &       Living with Parkinson’s Abs...
Challenge – Registration IRegistration : designed on a steep slidingscale of $150 - $600 for PwPs to doctorsearly on throu...
Challenge – Industry CodesConstantly moving landscape.Explore this issue before choosing a locationand look at what other ...
Challenge – Awareness of PDWPC legacy – in local city/host countryIn 2010, working with local partner, Parkinson’sUK, and ...
Challenge – Awareness of PDWPC legacy – beyond the meeting-inspired delegates leave rejuvenated with   scientific, care, a...
What good will come of it?• IMMEDIATELY : Speakers have to keep it real & focused.  Outstanding energy at meeting. Empower...
51st ICCA Congress                           Thank you!     Questions? Please email me     at eli@worldpdcongress.orgInter...
Upcoming SlideShare
Loading in …5
×

How People Living With Parkinson's Disease Built The World Parkinson Congress #ICCA12 MONDAY 22/10/2012

364 views

Published on

Presentation held at the 51st ICCA Congress which took place in San Juan, Puerto Rico from 20 - 24 October 2012. For more information on ICCA please visit www.iccaworld.com.

  • Be the first to comment

  • Be the first to like this

How People Living With Parkinson's Disease Built The World Parkinson Congress #ICCA12 MONDAY 22/10/2012

  1. 1. 51st ICCA Congress How people living with Parkinson’s disease built the World Parkinson CongressInternational Congress and Convention Association. Session sponsored by:Twitter: #ICCA12
  2. 2. The rise of patient power•What is the WPC?•Why we tried it in 2006. How’d we do?•Challenges & solutions•What good will come of itInternational Congress and Convention Association.Twitter: #ICCA12
  3. 3. Why we tried it in 2006• Creates a spark. Allows delegates to leave the comfort of their silos. WPCs are fully integrated with sessions open to everyone.• Totally unique for most delegates to experience the cross pollination of “experts”.• Puts a face on people with Parkinson’s.• Help us to put ourselves out of business.International Congress and Convention Association.Twitter: #ICCA12
  4. 4. How’d we do?The 1st World Parkinson Congress (WPC 2006)Washington, DC (USA)  1,800 health professionals and researchers; 1,100 people with Parkinson’s & care partners; 250 exhibitors and members of press3,150 delegates from 56 countriesThe 2nd World Parkinson Congress (WPC 2010)Glasgow, Scotland (UK) 1,690 clinicians & researchers; 626 RNs, PTs, OTs, SLPs, & nonprofit staff; 550 people with Parkinsons & care partners; 159 exhibitors & members of press3,025 delegates from 70 countriesInternational Congress and Convention Association.Twitter: #ICCA12
  5. 5. Re-evaluate who your “experts” are…STOP thinking of these people as the only experts… International Congress and Convention Association . Twitter: #ICCA12
  6. 6. Re-evaluate who your “experts” are…START thinking of these people as experts too… International Congress and Convention Association . Twitter: #ICCA12
  7. 7. Challenges & New ApproachesChallenges & New Approaches*Program design*Registration*Industry guidelines and codes*Awareness in convention center, local city &frequented venues 8International Congress and Convention Association.Twitter: #ICCA12
  8. 8. Challenge – Program design IWPC includes PwPs in all decisions including programformat & design, speaker selection, and presentations.All sessions are labeled to meet expectations. In 2010we used the following images to explain level of session:International Congress and Convention Association.Twitter: #ICCA12
  9. 9. Challenge – Program design II Scientific Abstracts & Living with Parkinson’s Abstracts Expanded how we share knowledge. Who holds this knowledge and who determines what is valuable?International Congress and Convention Association.Twitter: #ICCA12
  10. 10. Challenge – Registration IRegistration : designed on a steep slidingscale of $150 - $600 for PwPs to doctorsearly on through late registration.Registration fees for people with Parkinson’s,care partners are at two levels, full-priced ($300) and discounted ($150).Travel stipends offeredInternational Congress and Convention Association.Twitter: #ICCA12
  11. 11. Challenge – Industry CodesConstantly moving landscape.Explore this issue before choosing a locationand look at what other meetings have done.DC vs Glasgow.A unified voice can lobby to have rulesreconsidered, such as what the WorldFederation of Hemophilia did with theirmeeting in Paris this year.International Congress and Convention Association.Twitter: #ICCA12
  12. 12. Challenge – Awareness of PDWPC legacy – in local city/host countryIn 2010, working with local partner, Parkinson’sUK, and Glasgow City Marketing Bureau, heldfour one hour trainings for 92 people.- 30 participants were in management- 56 participants were front of house staff- 6 participants were fire staff, tour guides, otherInternational Congress and Convention Association.Twitter: #ICCA12
  13. 13. Challenge – Awareness of PDWPC legacy – beyond the meeting-inspired delegates leave rejuvenated with scientific, care, and programmatic ideas-video competition raised awareness and continues to raise awareness of PDInternational Congress and Convention Association.Twitter: #ICCA12
  14. 14. What good will come of it?• IMMEDIATELY : Speakers have to keep it real & focused. Outstanding energy at meeting. Empowered people living with Parkinson’s.• LONG TERM : Help build an alliance between the key stakeholders. Advance the science & care more rapidly. Put ourselves out of  business. International Congress and Convention Association . Twitter: #ICCA12
  15. 15. 51st ICCA Congress Thank you! Questions? Please email me at eli@worldpdcongress.orgInternational Congress and Convention Association. Session sponsored by:Twitter: #ICCA12

×