IBES Annual Symposium 2011Health and Wellbeing14 September 2011Prof. Fernando Martin-Sanchez & Dr. Kathleen GrayHealth and Biomedical Informatics Research Unit
Outline• Youth Mental Health• Telemedicine• Electronic Health Records• Health and Biomedical Informatics Research
Introduc)on • Broadband can provide many opportuni)es for the health sector: – Monitoring health condi)ons – enabling shared electronic health records – Improving youth mental health services • Broadband technologies are revolu)onising the delivery of medicine.
Youth Mental Health • Providing opportuni)es for young people who are socially isolated to develop online networks and ac)vi)es that connect them with peers, clinicians and the broader social community.
Youth Mental Health Projects – Promo%ng Guideline Concordant Care for Young People with Depressive Disorders – Social Networking Applica%ons for Young People with Disabili%es from Ethnic Communi%es – HORYZONS: broadband for ﬁrst episode psychosis
Telemedicine • The delivery of healthcare remotely opens up a number of opportuni)es for people to engage with their prac))oners over a broadband connec)on.
Telemedicine Projects – The Telestroke Solu%on to Rural Thrombolysis – Hap%c Tele-‐Rehabilita%on: Latency implica%ons for system stability and clinical communica%on – Concordance between real-‐%me teleden%stry assessments and face-‐to-‐face examina%on – Virtual visits: Inves%ga%ng the acceptability of webcam consulta%ons for young adults’ sexual health – Wireless broadband monitoring of knee osteoarthri%s – Overcoming geographical barriers for community health through 3D
Electronic Health Records • Electronic health records are transforming healthcare, altering doctor-‐pa)ent rela)onships and empowering individuals to take a more proac)ve approach towards their health.
Electronic Health Records Projects – Mul%-‐site records for immigrants and refugees requiring specialist care – Making Pathology Reports Smarter – Ethical and Social Issues
Health and biomedical informa)cs • The science and prac)ce around informa)on in health that leads to informed and assisted healthcare (Health Informa)cs Society of Australia, 2010). • It is the body of knowledge that concerns the acquisi)on, storage, retrieval and use of informa)on in, about and for human health, and the design and management of related informa)on systems to advance the understanding and prac)ce of healthcare.
Synergies between Health and Biomedical Informa)cs and the NBN
Health and biomedical informa)cs and the NBN • Health and biomedical informa)cs is underpinned by the availability of ultra-‐high-‐ speed, high-‐capacity, ubiquitous, ‘always-‐on’ broadband connec)vity that enables the transmission of health informa)on between diﬀerent points in the healthcare system.
Public health informa)cs • Tracking outbreaks • Real-‐)me health surveillance • Emergency preparedness and disasters response • Recent examples with outbreak of Shiga toxin-‐ producing E. coli in Germany. Open source genome sequencing and data sharing.
Social media and biomedical and clinical research • Social media as a research tool • Clinical Research with the pa)ents, not on the pa)ents • Examples – 23andMe – Parkinson’s Disease – PLoS Gene)cs, 2 new gene)c associa)ons – Pa)entsLikeMe – Nature Biotech. Self-‐reported data from 600 pa)ents on the use of lithium for Amyotrophic Lateral Sclerosis (ALS) – Genomera, CollabRX, – Gene)c Alliance, SAGE – DIYGenomics
Digitally enabled personalised medicine • Personalized medicine refers to the tailoring of medical treatment to groups of pa)ents with similar gene)c or molecular proﬁles. • Enabling technologies: – personal genome sequencing – integrated personal health records and – sensor technology. • Ultra high speed broadband networks will be required to transmit enormous volumes of data from pa)ents’ homes to health prac))oners and vice versa in a )mely manner, and to enable the processing of this deluge of data. • Personalised medicine oﬀers enormous opportuni)es for improving preven)ve, diagnos)c and therapeu)c solu)ons à improving healthcare outcomes, reducing costs and increasing pa)ent safety.
Remote pa)ent data monitoring and data collec)on Environmental sensors Genomic sensors Phenomic sensorsEnvironmental risk factors Biomarkers (DNA sequence,(pollution, radiation, toxic agents, …) proteins, gene expression, epigenetics Physiological, biochemical parameters (cholesterol, temperature, glucose, heart rate…) Integrated personal health record
Data ﬂows across the NBN to facilitate personalised medicine
NBN and pa)ent empowerment Current NBN-‐enabled Driving forces: pa;ent empowerment, networks personalized medicine, social networks EHR – Electronic Personally Ci)zens are able to maintain and control their Health Record Controlled EHR own health informa)on Gene-‐disease Personal Ci)zens ask for gene)c analysis of their DNA associa)on genomics through the Internet and receive reports on studies various aspects of their health Clinical trials Crowdsourced The pa)ent voluntarily shares informa)on on clinical trials treatments and evolu)on of his/her illness with other pa)ents
Model for the Centre for HBIR @UniMelb Academic home Funding Agencies (competitive Grants) Foundational Foundational Contributing Contributing member memberSupport of specific activities Liaison with medical specialties