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Health Information Strategy for New Zealand Sharing personal health information


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Health Information Strategy for New Zealand Sharing personal health information

  1. 1. Health Information Strategy for New Zealand Sharing personal health information
  2. 2. Outline <ul><li>HIS-NZ and the signalled future environment </li></ul><ul><li>Principles and the 6 uses of data </li></ul><ul><li>Engagement with stakeholders </li></ul><ul><li>HISAC’s approach going forward </li></ul>
  3. 3. Health Information Strategy for New Zealand <ul><li>Discounts a single electronic health record </li></ul><ul><li>Signals increased information sharing </li></ul><ul><li>12 Action Zones </li></ul><ul><li>Independent Ministerial Committee to oversee implementation </li></ul>
  4. 4. Action Zones Enabling Use Information Care Delivery, Funding, Planning, Policy & Research Views of Information AZ 7: Long Term Conditions Management AZ 10: Primary Care Information AZ9: Outpatients Information Transactional Informational Flows AZ 5: eLabs AZ 4: ePharmacy AZ 6: eDischarges AZ 8: eReferrals HISAC / Sector Agenda Setting & Governance National Local Sector Ownership Interoperability & Access AZ11: National Systems Access AZ 1: National Network AZ 12: Anchoring Framework Information Anchors AZ 3: HPI AZ 2: NHI
  5. 5. ICT in the New Zealand Health Sector Electronic Record Keeping incl. patients Health Network & Secure e-mail Access to Key Event Summaries ePharmacy eLabs Hospital Discharge Summaries National Network Strategy Primary Care Information Long Term Conditions Management National System Access Electronic Referrals National Outpatient Collection Health Network & Secure e-mail Health Network & Secure e-mail ePharmacy eLabs Hospital Discharge Summaries Chronic Care & Disease Manage Electronic Referrals Future A c c e s s t o Ke y E v e n t S u m m a r i e s Health Network & Secure e-mail Hospital Discharge Summaries Electronic Record Keeping incl. patients Long Term / Residential Care Community Primary Care Secondary Care National MoH / ACC Current
  6. 6. 6 uses of information in the health context <ul><li>Enabling self-management </li></ul><ul><li>Supporting clinical intervention </li></ul><ul><li>Clinical Governance </li></ul><ul><ul><li>Professional and practice standards </li></ul></ul><ul><ul><li>Education and training </li></ul></ul><ul><ul><li>Research, evaluation and development </li></ul></ul><ul><ul><li>Great accountability through risk mgmt and significant event monitoring </li></ul></ul><ul><ul><li>Clinical Audit, team development, peer support, effective relationships </li></ul></ul><ul><ul><li>Patient and community input into service development </li></ul></ul><ul><li>Administration (in all parts of Health) </li></ul><ul><ul><li>Includes evaluation, quality assurance and payments/funding </li></ul></ul><ul><li>Strategy and policy development </li></ul><ul><li>Research </li></ul>
  7. 7. Principles <ul><li>No central / single electronic health record nationwide </li></ul><ul><ul><li>Electronic health records are distributed but can be linked and referenced </li></ul></ul><ul><li>Health event summaries are the starting point for shared information </li></ul><ul><ul><li>Make accessible key event summaries to support safe delivery of care / integration </li></ul></ul><ul><li>Common standards and information anchors are needed to allow disparate systems to share information </li></ul><ul><li>Data collection is integrated into every day work practices </li></ul><ul><li>Detailed data is used and maintained locally at the point of care = enter once and use many times </li></ul><ul><li>Information flows are governed by agreed principles and processes </li></ul>
  8. 8. Health Information Hierarchy Community Population Individual National Views District / Regional Views Local Views Appropriate views / subsets of the information below. Relevant views of information above. Capture, use, and share information locally at the point of care. Standards Indicators Health Outcomes
  9. 9. Stakeholder engagement <ul><li>Strong clinical and IT/IM engagement </li></ul><ul><li>Accepted need to improve consumer engagement </li></ul><ul><li>Consumer Forum initiated </li></ul><ul><li>Recognised need to ensure engagement is with all stakeholder groups and the ‘community’ is the hardest to identify </li></ul>
  10. 10. Themes <ul><li>What information is collected and shared in which circumstances </li></ul><ul><li>Trust and confidence in the health system is related </li></ul><ul><li>Clinical representation of individuals interest </li></ul><ul><li>Consumers need a safe and trusted environment to explore the issues </li></ul><ul><li>Equal and full participation in the debate </li></ul><ul><li>Misconceptions of current and proposed practice (both ways) </li></ul><ul><li>High potential for the debate to be derailed </li></ul><ul><li>‘ there is an awful lot of talk about us, but not with us’ </li></ul><ul><li>‘ nothing about us, without us’ </li></ul><ul><li>‘ you trust a person with whom you have a relationship, you don’t trust systems unless you’ve been part of their development’ </li></ul>
  11. 11. Next steps <ul><li>Reconvene Consumer Forum within 6 months </li></ul><ul><li>Consumer perspective appointed to HISAC </li></ul><ul><li>Ensure opportunity for consumer input into all projects, working groups and relevant activities </li></ul><ul><li>Improve communications to the community, through the Consumer Forum and through other identified avenues and channels </li></ul><ul><li>Ongoing interaction with the Privacy Commission </li></ul><ul><li>Massey / HRC research project commenced </li></ul><ul><li>Law Commission report on Privacy and health information </li></ul><ul><li>MoH education / awareness on NHI and national collections </li></ul><ul><li>Publication of the HISAC information flows model </li></ul><ul><li>Implementation leads/projects assessment criteria extended </li></ul>