Caring for Person with dementia Amrita Patil -Pimpale Trainer ,EHA ; Researcher Univ of Northampton UK1
Introduction : Echoing Healthy Ageing (EHA) We are a social enterprise providing consultation, education, home care support for people with dementia and their Families.2
Dementia A term that doctor uses when someone has number of problems with thinking and remembering. Problems interfere with person’s ability to do things that they used to be able to manage. 3
What is happening The brain is made up of billions of nerve cells. Nerve cells are specially designed for their function. They are elongated with many tentacle-like projections called dendrites that make connections with the cells around them. Dementia is caused by loss of nerve cells in the brain. 4
Practical Difficulties•Reading /Writing•Preparing food•Driving or travelling alone•Getting dressed•Handling money10
Diagnosis of DementiaComplicated to get an accurate picture of what isoccurring within the brain.Today dementia is diagnosed by: ‘Mini Mental State Exam’(MMSE) A cognitive assessment tool which establishes mental impairment. A physical examination. This can affect when and what treatment is provided. Brain scans including MRI can detect signs of dementia in the brain. 11
What do you think ? person with DEMENTIA ------- PERSON with dementia12
Person’s brain is still there Elizabeth Milwain - email@example.com
Tom KitwoodA Person-Centred Understanding D = N + P + B + H + SP PERSON with dementia, not person with DEMENTIA Neurological – nature of the underlying cause Personality – how we are, how we cope Biography – we are all shaped by our past Health – impact of other conditions Social Psychology – other people: help or hindrance?
What is the difference between a person withdementia and ourselves? Think about cognitive function Different Think about emotional function Think about physical needs Think about social needs Think about psychological need All the Same What Do You Think ?
Adaptation is the key ‘Normal life’ ‘Life in the moment’ • Information • Emotion • Thinking • Sensing • Goals • Experiences • Complex • Simple • Fast • Slow • Remembered • Enjoyed • Variety • Consistency
Why do people turn away? Feeling Can’t fix it inadequate Might do Frightening ‘The Wrong & upsetting Thing’
Recognition The person is acknowledged, called by name, eye contact or touch.Negotiation The person is consulted about their preferences, being offered choice makes you feel you can still have an impact on the way things turn out. As human being we hate no being able to choose.Collaboration Working with the person, not doing things to them. This is about sharing your power. Helping someone to get dressed is assisting them with the bits they find difficult, not taking over. Play Having fun, enjoying yourself with the person with dementia/depression. If you are having a good time they probably will tooCelebration When the person achieves something celebrate with them. Validation Acknowledging person’s emotion, taking it seriously and responding to it. Facilitation Assisting a person to achieve something they would not normally 19 do alone.
Meaningful Activities and Therapies Alternate therapies Music Gardening Occupational Pet therapies Reminiscence20
Reminiscence Meaningful pictures The reminiscence bump Getting the conversation started -sight :family photographs -sound -touch -smell -taste 21
Carer’s Role : Reality You feel you can help A sense of guilt for not helping your loved one to maintain their quality of life Sense of increasing isolation and commitment : More you do the more you are needed . Caring can be hard, but it can also be rewarding.22
Answer these…. 1.Am I receiving or likely to receive enough support from others in my own life to help me be an effective carer?2.Am I able to give the necessary time to help and support my loved one experiencing dementia ?23
Your Well Being YES. All well and Good. NO. How can you get support and arrange you time?24
Your Well Being Making choices : Time. How much/Type? Help from family members Carers support groups Find time for yourself25
Your Well BeingTo be effective carer thefirst person you need to look after yourself is ‘YOU’.26
Your Well Being Sleep Time for I am me special Look after yourself Positive Relaxation thoughts Meditation 27
Attitude ‘’This is what I have to do’’ ‘’I am doing, what I am doing, because this is what I want to do.’’28