Alzheimers Innovation 2013

2. November is National Alzheimer’s Disease Awareness Month “During National Alzheimer's Disease Awareness Month, we stand united in our commitment to improve care for Alzheimer's patients, identify new therapies for the disease, and support all those whose lives have been touched by this tragic ailment.” Excerpt from President Obama’s Proclaimation © 2013 Griswold International, LLC

3. November is National Family Caregivers Month “Family members, friends, and neighbors devote countless hours to providing care to their relatives or loved ones. During National Family Caregivers Month, we recognize and thank the humble heroes who do so much to keep our families and communities strong.” Excerpt from President Obama’s Proclaimation © 2013 Griswold International, LLC

4. Goals for Today • Review the National Alzheimer’s Plan 2013 and share tools for reaching key goals and overcoming challenges • Share innovative non-medical Alzheimer’s treatment approaches • Empower clients and their family/professional caregivers to fight Alzheimer’s Disease through quality care, advocacy, education and support © 2013 Griswold International, LLC

7. Orange Arrow Button: Minimizes or expands the GoToWebinar control panel. BRAIN WRITING Solutions Brainwriting is… • a fun, engaging way to brainstorm • sharing as many ideas as possible within a short timeframe Brainwriting Process • Listen for our questions • When prompted, enter your solutions using the webinar chat function • Don’t overthink or agonize…There are no right or wrong answers Brainwriting Outcomes • Peer-to-peer learning and sharing • A publication that benefits others who are living with Alzheimer’s Important • Avoid sharing any information that you would not want others to see © 2013 Griswold International, LLC

9. Challenging Symptoms Memory loss that disrupts life Decreased or poor judgment Problems with planning and problem-solving Changes in movement/ coordination Struggle to complete familiar tasks Changes in mood or personality Confusion with person, place and time Agitation and/or aggression New problems with reading, writing or speaking Misplacing things in unusual places Sundowning Wandering Inability to eat or swallow © 2013 Griswold International, LLC

10. “I feel like I have been hearing about ‘plaques’ and ‘tangles’ for 15 years. Isn’t there anything new that would generate hope and excitement for people living with this horrible disease? All you hear is the negative. You can’t help but develop a sense of helplessness. Helplessness can be paralyzing.” Family caregiver quote © 2013 Griswold International, LLC

12. USDHHS Identifies 5 Key Priorities Prevent and Effectively Treat Alzheimer’s Disease by 2025 Enhance Care Quality and Efficiency Expand Support for People with Alzheimer’s Disease and Their Families Enhance Public Awareness and Engagement Improve Data to Track Progress © 2013 Griswold International, LLC

13. Alzheimer’s Association 10 Core Challenges A lack of public awareness Specific challenges facing diverse communities Insufficient research funding Specific challenges facing those with younger-onset Alzheimer’s Difficulties with diagnosis Unprepared caregivers Inadequate treatments Ill-equipped communities Poor dementia care Mounting costs Alzheimer’s Association Top Challenges: http://www.alz.org/documents_custom/napareport.pdf © 2013 Griswold International, LLC

16. "If you say Alzheimer's, everyone immediately thinks that it's the plaques that actually cause the disease. That couldn't be further from the truth… the data actually suggests these plaques are a form of protection that the body tries to put on.” “While research on AD has made steady progress, there are no pharmacological or other interventions to definitively prevent, treat, or cure the disease.” National Alzheimer’s Plan excerpt Andrew Dillin, of the Salk Institute in California and the Howard Hughes Medical Institute © 2013 Griswold International, LLC

17. “NPTs emerge as a useful, versatile and potentially costeffective approach to improve outcomes and quality of life for both the person with dementia and caregivers.” Javier Olazarán Neurologist and NPT Researcher © 2013 Griswold International, LLC

18. Improve Cognitive Symptoms Cognitive training and rehab (individual and group) Physical activity/ Staying active Reminiscence Support groups Personalized music Yoga/Tai Chi/ Meditation Creative expression (writing, scrapbooking) Combining all of the above Source: http://www.nptherapies.org/pdf/Non-pharmacological%20Therapies%20in%20AD,%20a%20Systematic%20Review%20of%20Efﬁcacy.pdf © 2013 Griswold International, LLC

20. Improve Mood and Peace of Mind Cognitive Behavioral Therapy (CBT) Meditation/Yoga/Tai Chi Meaningful diversion Validation therapy Personalized music Adult day care Support Memory care center © 2013 Griswold International, LLC

21. Improve Quality of Life for Family Caregivers In-home counseling sessions Online connection with peers/HCPs Cognitive Behavioral Therapy (CBT) Education: - Coping skills - Problem solving Ongoing telephone support/coordination Support groups (with and w/o client) © 2013 Griswold International, LLC

22. Alzheimer’s Disease Treatment Toolkit The Society for Cognitive Rehabilitation Recollection Connection NICE.org.uk Latest Treatment Options http://bit.ly/1fx7kK8 http://bit.ly/1cOTZiY http://bit.ly/1isrbga http://bit.ly/1aGi5rZ © 2013 Griswold International, LLC

24. Effective Care Coordination Practices Learn from best practice dementia care models: Develop a single point of contact for clients/families Form a multi-disciplinary care team that communicates effectively Develop a personalized action plan for clients/families Offer ongoing, dynamic Learning/Development opportunities for dementia care professionals © 2013 Griswold International, LLC

25. A Dynamic Dementia Care Team Massage Therapist Home care Professional Nurse Recreational Therapist Social Worker/ Geriatric Care Manager Neurologist/Geriatrician Geriatric Psychiatrist PCP/NP/PA Rehab Professionals: OT/PT/Speech Facility Professionals Adult Day Care Professional Cognitive Behavioral Therapist (CBT) Dietician Cognitive Rehabilitative Therapist (CRT) © 2013 Griswold International, LLC

28. Quality Care Toolkit AD Research Centers IPCed Professional Training http://1.usa.gov/1e1fQAE http://bit.ly/1fT52W4 Alzheimer’s Association Professional Training http://bit.ly/17JB2qq © 2013 Griswold International, LLC

30. Improving the Experience Core challenges: Widespread lack of knowledge/understanding about Alzheimer’s Disease High level of public/professional stigma Negative experiences for people living with AD Poor understanding of the scope of Alzheimer’s Disease Isolation for clients and caregivers Lack of targeted services and support for those living with Younger-Onset AD © 2013 Griswold International, LLC

31. Expanding Support Toolkit Overcoming Stigma Confronting Ageism and Stigma http://bit.ly/1aCBXIT http://bit.ly/1hCSeHI Early Onset AD Info AD Support Groups http://bit.ly/1hIafBU http://bit.ly/16YR1mY © 2013 Griswold International, LLC

34. Understand the Scope PBS: The Forgetting Alzheimer’s Basics http://to.pbs.org/1cjMpI7 http://1.usa.gov/1a10RWQ What is Alzheimer’s? About Alzheimer’s http://bit.ly/HPpewl http://bit.ly/1bzGLBJ © 2013 Griswold International, LLC

35. Enhance Engagement Alz Assoc Advocacy: Join The Cause http://bit.ly/HS1KXK Fisher Center for AD Alz. Foundation of America http://bit.ly/17ROVbJ http://bit.ly/HV5zKU © 2013 Griswold International, LLC

37. Key Takeaways Review the National Alzheimer’s Plan and get involved Non-medical treatment approaches DO offer promise and hope today Effective care coordination is critical Let’s work together to “improve the experience” for those who are living with AD © 2013 Griswold International, LLC

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