Alzheimer’s Disease
Innovation 2013
A National Plan to Fight Back

© 2013 Griswold International, LLC
November is
National
Alzheimer’s
Disease
Awareness
Month

“During National Alzheimer's
Disease Awareness Month, we
stand u...
November is
National
Family
Caregivers
Month

“Family members,
friends, and neighbors devote
countless hours to providing ...
Goals for Today
• Review the National Alzheimer’s Plan 2013 and share tools for
reaching key goals and overcoming challeng...
Presented by:
Linda Barba

Family Caregiver, Advocate and
Support Group Facilitator

Chris Kelly, MEd

Director of Learnin...
Thank you for your courage, energy, and dedication!
Healthcare Providers

Professional Caregivers

Family Caregivers

Clie...
Orange Arrow Button:
Minimizes or expands the
GoToWebinar control panel.

BRAIN WRITING

Solutions

Brainwriting is…
• a f...
Lit Review
Social Media
Advocacy
Solutions Webinar & Toolkit

© 2013 Griswold International, LLC
Challenging Symptoms
Memory loss that disrupts life

Decreased or poor judgment

Problems with planning and
problem-solvin...
“I feel like I have been
hearing about ‘plaques’ and
‘tangles’ for 15 years. Isn’t there
anything new that would generate
...
A National Plan
to Address
Alzheimer's Disease

Source: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf
© 2013 Griswold I...
USDHHS Identifies 5 Key Priorities
Prevent and Effectively Treat Alzheimer’s
Disease by 2025
Enhance Care Quality and Effi...
Alzheimer’s Association 10 Core Challenges
A lack of public
awareness

Specific challenges facing
diverse communities

Ins...
Real Stories
Linda Barba

Family Caregiver, Advocate and
- Lou Gehrig
Support Group Facilitator

© 2013 Griswold Internati...
Prevent & Effectively
Treat Alzheimer's Disease
A Focus on Non-Medical Treatment Approaches

© 2013 Griswold International...
"If you say Alzheimer's,
everyone immediately thinks
that it's the plaques that actually
cause the disease. That couldn't
...
“NPTs emerge
as a useful, versatile
and potentially costeffective approach to
improve outcomes and
quality of life for bot...
Improve Cognitive Symptoms
Cognitive training and rehab
(individual and group)

Physical activity/
Staying active

Reminis...
Improve Activities of Daily Living (ADLs)

ADL training

Guided performance

Yoga/Tai Chi

Physical activity/
Staying acti...
Improve Mood and Peace of Mind
Cognitive Behavioral
Therapy (CBT)

Meditation/Yoga/Tai Chi

Meaningful diversion

Validati...
Improve Quality of Life for
Family Caregivers
In-home counseling sessions

Online connection
with peers/HCPs

Cognitive Be...
Alzheimer’s Disease Treatment Toolkit

The Society for Cognitive Rehabilitation

Recollection Connection

NICE.org.uk

Lat...
Enhance Care
Quality & Efficiency
A Focus on Care Coordination, Empowerment & Recognition

© 2013 Griswold International, ...
Effective Care Coordination Practices
Learn from best practice dementia care models:
Develop a single point of contact for...
A Dynamic
Dementia
Care Team

Massage
Therapist

Home care
Professional

Nurse

Recreational
Therapist

Social Worker/
Ger...
Real Stories
Linda Barba

Family Caregiver, Advocate and
Support Group Facilitator

© 2013 Griswold International, LLC
Care Coordination Toolkit

Alzheimer’s Quality of Care

CDPH.ca.gov

Working With Providers

http://bit.ly/17lKTT2

http:/...
Quality Care Toolkit

AD Research Centers

IPCed Professional Training

http://1.usa.gov/1e1fQAE

http://bit.ly/1fT52W4

A...
Expand Support for People
with Alzheimer’s Disease
& Their Families

© 2013 Griswold International, LLC
Improving the Experience
Core challenges:
Widespread lack of knowledge/understanding about
Alzheimer’s Disease
High level ...
Expanding Support Toolkit

Overcoming Stigma

Confronting Ageism and Stigma

http://bit.ly/1aCBXIT

http://bit.ly/1hCSeHI
...
Real Stories
Linda Barba

Family Caregiver, Advocate and
Support Group Facilitator

© 2013 Griswold International, LLC
Enhance Public
Awareness & Engagement

© 2013 Griswold International, LLC
Understand the Scope

PBS: The Forgetting

Alzheimer’s Basics

http://to.pbs.org/1cjMpI7

http://1.usa.gov/1a10RWQ

What i...
Enhance Engagement

Alz Assoc Advocacy: Join The Cause
http://bit.ly/HS1KXK

Fisher Center for AD

Alz. Foundation of Amer...
Real Stories
Linda Barba

Family Caregiver, Advocate and
Support Group Facilitator

© 2013 Griswold International, LLC
Key Takeaways
Review the National Alzheimer’s Plan and get involved
Non-medical treatment approaches DO offer promise and
...
Open Q&A
1. Click to expand
if necessary
2. Type questions here

© 2013 Griswold International, LLC
Brought to you by:

Griswold Home Care offers access to affordable
non-medical care options to assist your loved one.
Care...
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Alzheimers Innovation 2013

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Join us as Griswold Home Care’s Christopher Kelly M.Ed., Director of Learning & Development and dedicated family caregivers share the latest research and innovative best practices in Alzheimer’s Disease treatment and support. You will also benefit from a review of the National Alzheimer’s Project Act (NAPA) and a 2013 update to the National Alzheimer’s Plan.

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Alzheimers Innovation 2013

  1. 1. Alzheimer’s Disease Innovation 2013 A National Plan to Fight Back © 2013 Griswold International, LLC
  2. 2. November is National Alzheimer’s Disease Awareness Month “During National Alzheimer's Disease Awareness Month, we stand united in our commitment to improve care for Alzheimer's patients, identify new therapies for the disease, and support all those whose lives have been touched by this tragic ailment.” Excerpt from President Obama’s Proclaimation © 2013 Griswold International, LLC
  3. 3. November is National Family Caregivers Month “Family members, friends, and neighbors devote countless hours to providing care to their relatives or loved ones. During National Family Caregivers Month, we recognize and thank the humble heroes who do so much to keep our families and communities strong.” Excerpt from President Obama’s Proclaimation © 2013 Griswold International, LLC
  4. 4. Goals for Today • Review the National Alzheimer’s Plan 2013 and share tools for reaching key goals and overcoming challenges • Share innovative non-medical Alzheimer’s treatment approaches • Empower clients and their family/professional caregivers to fight Alzheimer’s Disease through quality care, advocacy, education and support © 2013 Griswold International, LLC
  5. 5. Presented by: Linda Barba Family Caregiver, Advocate and Support Group Facilitator Chris Kelly, MEd Director of Learning and Development Griswold Home Care © 2013 Griswold International, LLC
  6. 6. Thank you for your courage, energy, and dedication! Healthcare Providers Professional Caregivers Family Caregivers Clients Living with Alzheimer’s © 2013 Griswold International, LLC
  7. 7. Orange Arrow Button: Minimizes or expands the GoToWebinar control panel. BRAIN WRITING Solutions Brainwriting is… • a fun, engaging way to brainstorm • sharing as many ideas as possible within a short timeframe Brainwriting Process • Listen for our questions • When prompted, enter your solutions using the webinar chat function • Don’t overthink or agonize…There are no right or wrong answers Brainwriting Outcomes • Peer-to-peer learning and sharing • A publication that benefits others who are living with Alzheimer’s Important • Avoid sharing any information that you would not want others to see © 2013 Griswold International, LLC
  8. 8. Lit Review Social Media Advocacy Solutions Webinar & Toolkit © 2013 Griswold International, LLC
  9. 9. Challenging Symptoms Memory loss that disrupts life Decreased or poor judgment Problems with planning and problem-solving Changes in movement/ coordination Struggle to complete familiar tasks Changes in mood or personality Confusion with person, place and time Agitation and/or aggression New problems with reading, writing or speaking Misplacing things in unusual places Sundowning Wandering Inability to eat or swallow © 2013 Griswold International, LLC
  10. 10. “I feel like I have been hearing about ‘plaques’ and ‘tangles’ for 15 years. Isn’t there anything new that would generate hope and excitement for people living with this horrible disease? All you hear is the negative. You can’t help but develop a sense of helplessness. Helplessness can be paralyzing.” Family caregiver quote © 2013 Griswold International, LLC
  11. 11. A National Plan to Address Alzheimer's Disease Source: http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf © 2013 Griswold International, LLC
  12. 12. USDHHS Identifies 5 Key Priorities Prevent and Effectively Treat Alzheimer’s Disease by 2025 Enhance Care Quality and Efficiency Expand Support for People with Alzheimer’s Disease and Their Families Enhance Public Awareness and Engagement Improve Data to Track Progress © 2013 Griswold International, LLC
  13. 13. Alzheimer’s Association 10 Core Challenges A lack of public awareness Specific challenges facing diverse communities Insufficient research funding Specific challenges facing those with younger-onset Alzheimer’s Difficulties with diagnosis Unprepared caregivers Inadequate treatments Ill-equipped communities Poor dementia care Mounting costs Alzheimer’s Association Top Challenges: http://www.alz.org/documents_custom/napareport.pdf © 2013 Griswold International, LLC
  14. 14. Real Stories Linda Barba Family Caregiver, Advocate and - Lou Gehrig Support Group Facilitator © 2013 Griswold International, LLC
  15. 15. Prevent & Effectively Treat Alzheimer's Disease A Focus on Non-Medical Treatment Approaches © 2013 Griswold International, LLC
  16. 16. "If you say Alzheimer's, everyone immediately thinks that it's the plaques that actually cause the disease. That couldn't be further from the truth… the data actually suggests these plaques are a form of protection that the body tries to put on.” “While research on AD has made steady progress, there are no pharmacological or other interventions to definitively prevent, treat, or cure the disease.” National Alzheimer’s Plan excerpt Andrew Dillin, of the Salk Institute in California and the Howard Hughes Medical Institute © 2013 Griswold International, LLC
  17. 17. “NPTs emerge as a useful, versatile and potentially costeffective approach to improve outcomes and quality of life for both the person with dementia and caregivers.” Javier Olazarán Neurologist and NPT Researcher © 2013 Griswold International, LLC
  18. 18. Improve Cognitive Symptoms Cognitive training and rehab (individual and group) Physical activity/ Staying active Reminiscence Support groups Personalized music Yoga/Tai Chi/ Meditation Creative expression (writing, scrapbooking) Combining all of the above Source: http://www.nptherapies.org/pdf/Non-pharmacological%20Therapies%20in%20AD,%20a%20Systematic%20Review%20of%20Efficacy.pdf © 2013 Griswold International, LLC
  19. 19. Improve Activities of Daily Living (ADLs) ADL training Guided performance Yoga/Tai Chi Physical activity/ Staying active © 2013 Griswold International, LLC
  20. 20. Improve Mood and Peace of Mind Cognitive Behavioral Therapy (CBT) Meditation/Yoga/Tai Chi Meaningful diversion Validation therapy Personalized music Adult day care Support Memory care center © 2013 Griswold International, LLC
  21. 21. Improve Quality of Life for Family Caregivers In-home counseling sessions Online connection with peers/HCPs Cognitive Behavioral Therapy (CBT) Education: - Coping skills - Problem solving Ongoing telephone support/coordination Support groups (with and w/o client) © 2013 Griswold International, LLC
  22. 22. Alzheimer’s Disease Treatment Toolkit The Society for Cognitive Rehabilitation Recollection Connection NICE.org.uk Latest Treatment Options http://bit.ly/1fx7kK8 http://bit.ly/1cOTZiY http://bit.ly/1isrbga http://bit.ly/1aGi5rZ © 2013 Griswold International, LLC
  23. 23. Enhance Care Quality & Efficiency A Focus on Care Coordination, Empowerment & Recognition © 2013 Griswold International, LLC
  24. 24. Effective Care Coordination Practices Learn from best practice dementia care models: Develop a single point of contact for clients/families Form a multi-disciplinary care team that communicates effectively Develop a personalized action plan for clients/families Offer ongoing, dynamic Learning/Development opportunities for dementia care professionals © 2013 Griswold International, LLC
  25. 25. A Dynamic Dementia Care Team Massage Therapist Home care Professional Nurse Recreational Therapist Social Worker/ Geriatric Care Manager Neurologist/Geriatrician Geriatric Psychiatrist PCP/NP/PA Rehab Professionals: OT/PT/Speech Facility Professionals Adult Day Care Professional Cognitive Behavioral Therapist (CBT) Dietician Cognitive Rehabilitative Therapist (CRT) © 2013 Griswold International, LLC
  26. 26. Real Stories Linda Barba Family Caregiver, Advocate and Support Group Facilitator © 2013 Griswold International, LLC
  27. 27. Care Coordination Toolkit Alzheimer’s Quality of Care CDPH.ca.gov Working With Providers http://bit.ly/17lKTT2 http://bit.ly/1aR0IHw http://bit.ly/1a0Nq9f © 2013 Griswold International, LLC
  28. 28. Quality Care Toolkit AD Research Centers IPCed Professional Training http://1.usa.gov/1e1fQAE http://bit.ly/1fT52W4 Alzheimer’s Association Professional Training http://bit.ly/17JB2qq © 2013 Griswold International, LLC
  29. 29. Expand Support for People with Alzheimer’s Disease & Their Families © 2013 Griswold International, LLC
  30. 30. Improving the Experience Core challenges: Widespread lack of knowledge/understanding about Alzheimer’s Disease High level of public/professional stigma Negative experiences for people living with AD Poor understanding of the scope of Alzheimer’s Disease Isolation for clients and caregivers Lack of targeted services and support for those living with Younger-Onset AD © 2013 Griswold International, LLC
  31. 31. Expanding Support Toolkit Overcoming Stigma Confronting Ageism and Stigma http://bit.ly/1aCBXIT http://bit.ly/1hCSeHI Early Onset AD Info AD Support Groups http://bit.ly/1hIafBU http://bit.ly/16YR1mY © 2013 Griswold International, LLC
  32. 32. Real Stories Linda Barba Family Caregiver, Advocate and Support Group Facilitator © 2013 Griswold International, LLC
  33. 33. Enhance Public Awareness & Engagement © 2013 Griswold International, LLC
  34. 34. Understand the Scope PBS: The Forgetting Alzheimer’s Basics http://to.pbs.org/1cjMpI7 http://1.usa.gov/1a10RWQ What is Alzheimer’s? About Alzheimer’s http://bit.ly/HPpewl http://bit.ly/1bzGLBJ © 2013 Griswold International, LLC
  35. 35. Enhance Engagement Alz Assoc Advocacy: Join The Cause http://bit.ly/HS1KXK Fisher Center for AD Alz. Foundation of America http://bit.ly/17ROVbJ http://bit.ly/HV5zKU © 2013 Griswold International, LLC
  36. 36. Real Stories Linda Barba Family Caregiver, Advocate and Support Group Facilitator © 2013 Griswold International, LLC
  37. 37. Key Takeaways Review the National Alzheimer’s Plan and get involved Non-medical treatment approaches DO offer promise and hope today Effective care coordination is critical Let’s work together to “improve the experience” for those who are living with AD © 2013 Griswold International, LLC
  38. 38. Open Q&A 1. Click to expand if necessary 2. Type questions here © 2013 Griswold International, LLC
  39. 39. Brought to you by: Griswold Home Care offers access to affordable non-medical care options to assist your loved one. CareAssure Screening System™ The Griswold Golden Rule: We only approve caregivers we would trust in our own homes. Extraordinary Home Care at Affordable Rates Since 1982 QuickCare Placement™ We give each family access to the most experienced caregivers available. ValueCare Commitment™ Simple Rates. Unmatched Value. Our allinclusive rates are among the most affordable. National 24x7 Care Line: 800-GRISWOLD www.GriswoldHomeCare.com © 2013 Griswold International, LLC

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