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Adjusting to Life with Glaucoma


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Adjusting to Life with Glaucoma

  1. 1. The Griswold Solutions Series TM Adjusting to Life with Glaucoma From Diagnosis to Daily Challenges © 2014 Griswold International, LLC
  2. 2. January is National Glaucoma Awareness Month “January is National Glaucoma Awareness Month, an important time to spread the word about this sight-stealing disease.” Glaucoma Research Foundation © 2014 Griswold International, LLC
  3. 3. Our Goals for Today • Learn about the symptoms, types and impact of Glaucoma • Understand how to recognize, diagnose and treat Glaucoma • Learn how to adjust to the emotional, physical, social and role changes that often come with Glaucoma • Access a Fighting Glaucoma Toolkit that offers innovative tools and resources for clients and their family/professional caregivers © 2014 Griswold International, LLC
  4. 4. Presented by: Thomas M. Brunner, BSEE, MBA President and CEO, Glaucoma Research Foundation Art Takahara, person living with glaucoma President and Chief Executive Officer De Anza Manufacturing, Inc. Chris Kelly, MEd Director of Learning & Development Griswold Home Care © 2014 Griswold International, LLC
  5. 5. Thank you for your courage, energy, and dedication! Healthcare Providers Professional Caregivers Family Caregivers Person Living with Glaucoma © 2014 Griswold International, LLC
  6. 6. Orange Arrow Button: Minimizes or expands the GoToWebinar control panel. BRAIN WRITING Solutions Brainwriting is… • a fun, engaging way to brainstorm • sharing as many ideas as possible within a short timeframe Brainwriting Process • Listen for our questions • When prompted, enter your solutions using the webinar chat function • Don’t overthink or agonize…There are no right or wrong answers Brainwriting Outcomes • Peer-to-peer learning and sharing • A publication that benefits others who are living with glaucoma Important • Avoid sharing any information that you would not want others to see © 2014 Griswold International, LLC
  7. 7. About Glaucoma “The Sight-Stealing Disease”
  8. 8. Learn About Glaucoma Glaucoma is a group of conditions that: • Damage the eye’s optic nerve • Often has no symptoms until vision loss is more severe • Can be effectively treated if diagnosed/treated early • Affect people of all ages (Risk increases after age 60) Tools: What is Glaucoma Overview of Glaucoma © 2014 Griswold International, LLC
  9. 9. How Glaucoma Affects the Eye • A clear fluid flows in and out of the anterior (front) chamber of the eye to provide nutrients to eye tissue • Glaucoma can occur when fluid passes too slowly or is blocked (causing pressure in the eye that damages the optic nerve) Tool: Conjunctiva Iris Cornea Angle or trabecular meshwork (where fluid should drain) Ciliary body (where fluid is made) Lens Pressure Optic Nerve Glaucoma Animation © 2014 Griswold International, LLC
  10. 10. Glaucoma Risk Factors Being over 60 years old Being of African, Asian or Hispanic descent Having a family history of glaucoma Being very nearsighted Having a thin central cornea Long-term steroid use Having conditions such as heart disease, diabetes and hypothyroidism Tool: Having high blood pressure Are You At Risk? © 2014 Griswold International, LLC
  11. 11. Types of Glaucoma © 2014 Griswold International, LLC
  12. 12. Primary Open-Angle Glaucoma • Most common form, often without symptoms until vision loss is severe • Symptoms can include: Gradual loss of peripheral (side to side and up/down) vision, usually in both eyes Tunnel vision (seeing a very small area directly in front) - Lou Gehrig © 2014 Griswold International, LLC
  13. 13. Angle-Closure Glaucoma • Symptoms can include: Sudden, severe blurred vision and pain Eye and head pain Nausea or vomiting The appearance of rainbow-colored circles around bright lights Sudden vision loss Hazy vision Often affects one eye at a time © 2014 Griswold International, LLC
  14. 14. Other Types of Glaucoma • Secondary Glaucoma • Exfoliative Glaucoma • Pigmentary Glaucoma • Neovascular Glaucoma • Normal-tension Glaucoma • Uveitic Glaucoma • Congenital Glaucoma • Traumatic Glaucoma Tool: Types of Glaucoma © 2014 Griswold International, LLC
  15. 15. Diagnosing Glaucoma © 2014 Griswold International, LLC
  16. 16. Diagnosing Glaucoma Since Glaucoma is often without symptoms, regular eye exams are important for those at risk. An accurate diagnosis should be made by an ophthalmologist and should include: • History and physical exam • An assessment of the impact of glaucoma on daily life • Eye exam to assess the following: - Pressure inside the eye (IOP) - Ability to see the complete field of vision (or “perimetry”) - Thickness of the cornea Tools: - The appearance of the retina and optic nerve - Angle in the eye where the iris meets the cornea (gonioscopy) Five Common Tests for Glaucoma Find an Ophthalmologist © 2014 Griswold International, LLC
  17. 17. Treating Glaucoma © 2014 Griswold International, LLC
  18. 18. Treating Glaucoma Early, effective treatment is critical! Glaucoma can be effectively treated through: Medicine Laser surgery Support groups Tools: Mircrosurgery Staying active Adaptive equipment Eating healthy foods Low vision rehabilitation Non-medical home care AAO Practice Guidelines © 2014 Griswold International, LLC
  19. 19. Your Eye Care Team Ophthalmologist MDs who diagnose and treat eye diseases along with… • Ophthalmic Medical assistant Perform tests and help the MD to examine/treat patients • Ophthalmic Technician/Technologist Assist the MD with complicated medical tests and minor office surgery • Ophthalmic Registered Nurse Assist MD with injections and hospital/office surgery Optometrist ODs who provide regular vision care including prescribing corrective glasses, contact lenses and glaucoma meds (in some states). Optician Design, verify and fit eyeglass lenses/frames/contact lenses and other devices to correct eyesight. Low Vision Rehabilitation Therapist Helps clients/families to understand and adjust to the impact of vision loss on work , educational performance, ADL and iADL performance, use of technology, quality of life and aspects of psychosocial and cognitive function. © 2014 Griswold International, LLC
  20. 20. Living with Glaucoma Fight Glaucoma Action Plan and Toolkit © 2014 Griswold International, LLC
  21. 21. “I’m one to try to look at things positively in the world, so I tell myself I’m not going to let glaucoma get in my way. And I will do things, use visual aids, whatever I need to do to continue to try to be as normal as possible. Regardless if you have low vision, you can get around and do everything you were doing before. Don’t think you have to slow down or do less.” Quote from person with Glaucoma © 2014 Griswold International, LLC
  22. 22. Living with Glaucoma Glaucoma can have a serious impact on a person’s quality of life. Quality of life is most impacted when a person has problems with: Reading and seeing in detail Darkness or glare from bright lights Working Fear of falling Bumping into things Isolation due to lack of mobility Driving Tools: Tripping over objects Frequent steroid use Quality of Life Priorities Cooking, cleaning and self care Work, volunteerism and socialization Emotions such as anxiety, depression, fear and uncertainty © 2014 Griswold International, LLC
  23. 23. Fight Glaucoma Action Plan • Maintain regular eye exams/office visits • Know and keep track of your medicine/s • Keep your eyes clean and safe Wear protective eye gear when swimming or doing yardwork/contact sports • Eat healthy foods • Stay active • Maintain healthy fluid/salt intake © 2014 Griswold International, LLC
  24. 24. Adjusting and Moving Forward National Eye Institute Adaptive Equipment/ Technology Support Groups Advocacy Books on Glaucoma © 2014 Griswold International, LLC
  25. 25. Key Takeaways In most cases Glaucoma has no symptoms, so regular eye exams are important Glaucoma can lead to vision loss if not diagnosed and treated early Treatment, education, support, advocacy and adaptive technology can help people with Glaucoma to maintain their routine and quality of life © 2014 Griswold International, LLC
  26. 26. Open Q&A 1. Click to expand if necessary 2. Type questions here © 2014 Griswold International, LLC
  27. 27. Glaucoma Research Foundation Mission: ! ! To prevent vision loss from glaucoma by investing in innovative research, education, and support with the ultimate goal of finding a cure. Glaucoma Research Foundation 1
  28. 28. Glaucoma Research Foundation Facts Founded 1978 by Drs. Shaffer, Hoskins, Hetherington in San Francisco National Organization Annual Budget $4 million Net Assets $5 million Staff of 7 Expense ratio: 85% Program, 15% Support Charity Navigator, BBB, Guidestar listings Glaucoma Research Foundation 2
  29. 29. Our Founders: Drs. John Hetherington, Robert N. Shaffer (1912-2007) and H. Dunbar Hoskins Glaucoma Research Foundation 3
  30. 30. Speeding the Cure through research Individual Fellowships (40 Shaffer Fellows) Shaffer Grants for Innovative Glaucoma Research (funding for pilot projects) Catalyst For a Cure collaborative research project Catalyst Meetings including Glaucoma 360 – New Horizons Forum
  31. 31. Catalyst For a Cure Speeding the Cure Unique in two ways Collaboration vs. conventional insular academic research model Interdisciplinary – bringing together neuroscientists, molecular biologists, biomedical imaging experts in addition to ophthalmology First team, launched in 2002 – due in part to their work, glaucoma is now defined as a neurodegenerative disease like Alzheimer s, Parkinson s, ALS and Huntington s Second team, launched in 2012 – to identify new, specific and sensitive biomarkers for glaucoma Glaucoma Research Foundation 5
  32. 32. Spreading the word through Education GLEAMS newsletter Understanding and Living with Glaucoma Infomative brochures Web site: Glaucoma Research Foundation 6
  33. 33. 1,000,000 unique visitors per year
  34. 34. Brought to you by: Griswold Home Care offers access to affordable non-medical care options to assist your loved one. CareAssure Screening System™ The Griswold Golden Rule: We only approve caregivers we would trust in our own homes. Extraordinary Home Care at Affordable Rates Since 1982 QuickCare Placement™ We give each family access to the most experienced caregivers available. ValueCare Commitment™ Simple Rates. Unmatched Value. Our allinclusive rates are among the most affordable. National 24x7 Care Line: 800-GRISWOLD © 2014 Griswold International, LLC