Aspergillosis Support Meeting (Christmas Quiz) Dec 2011

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The Aspergillosis Patients Support meeting December 2011 held our first Christmas Quiz

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Aspergillosis Support Meeting (Christmas Quiz) Dec 2011

  1. 1. LED BY GRAHAM ATHERTON SUPPORTED BY GEORGINA POWELL, MARIE KIRWAN & DEBBIE KENNEDY NAC CENTRE MANAGER CHRIS HARRIS CHRISTMAS QUIZ NATIONAL ASPERGILLOSIS CENTRE UHSM MANCHESTER Support Meeting for Aspergillosis Patients Fungal Research Trust
  2. 2. Programme <ul><li>1pm Introduction </li></ul><ul><li>1:05 Quiz </li></ul><ul><li>2:00 Tea & Coffee </li></ul><ul><li>2:15 Marking </li></ul><ul><li>Discussions: </li></ul><ul><ul><li>Any Other Business </li></ul></ul><ul><li>3:00 Close </li></ul>
  3. 3. Vox-Pop recordings <ul><li>One of our main jobs over the coming year is to raise awareness about aspergillosis & the NAC. We think a few words from patients would help that aim </li></ul><ul><li>One person at a time, talking for one to two minutes on the following: </li></ul><ul><ul><li>What sort of aspergillosis do you have? </li></ul></ul><ul><ul><li>How has it affected your life? </li></ul></ul><ul><ul><li>How has having access to the National Aspergillosis Centre helped your symptoms and helped you live your life a little more comfortably (if at all) </li></ul></ul>
  4. 4. Christmas Quiz 2011 1. What type of microrganism is Aspergillus? a virus a fungus a bacterium a plant
  5. 5. Christmas Quiz 2011 2. What minimum temperature does Aspergillus need to grow? Warmth above 4C Warmth above 20C Warmth above 35C Warmth above 50C
  6. 6. Christmas Quiz 2011 <ul><li>3. What foods will Aspergillus grow on? </li></ul><ul><li>Cheese </li></ul><ul><li>Bread </li></ul><ul><li>Cement </li></ul><ul><li>Wood </li></ul><ul><li>Dead leaves </li></ul><ul><li>Glass </li></ul><ul><li>Dead Christmas trees </li></ul><ul><li>Plastic </li></ul><ul><li>Wallpaper paste </li></ul>
  7. 7. Christmas Quiz 2011 <ul><li>4. What does Aspergillus need to disperse and grow? </li></ul><ul><li>Music </li></ul><ul><li>Moisture </li></ul><ul><li>Light entertainment </li></ul><ul><li>Sunshine </li></ul><ul><li>Gentle breezes </li></ul><ul><li>Underfloor spaces </li></ul>
  8. 8. Christmas Quiz 2011 <ul><li>5. Acute invasive Aspergillosis is caused by: </li></ul><ul><li>eating mouldy cheese </li></ul><ul><li>smoking cigarettes </li></ul><ul><li>gardening </li></ul><ul><li>Lack of a working immune system </li></ul>
  9. 9. Christmas Quiz 2011 <ul><li>6. Chronic Pulmonary Aspergillosis is caused by: </li></ul><ul><li>Lack of a working immune system </li></ul><ul><li>Too many antibiotics </li></ul><ul><li>Not enough antibiotics </li></ul><ul><li>Gardening </li></ul><ul><li>Genetics </li></ul><ul><li>Lung damage e.g. Tuberculosis </li></ul>
  10. 10. Christmas Quiz 2011 <ul><li>7. Allergic bronchopulmonary Aspergillosis (ABPA) is caused by: </li></ul><ul><li>Asthma </li></ul><ul><li>Cystic fibrosis </li></ul><ul><li>Mouldy home/workplace </li></ul><ul><li>Genetics </li></ul><ul><li>Lack of vitamin D </li></ul><ul><li>We don’t know </li></ul>
  11. 11. Christmas Quiz 2011 <ul><li>8. ABPA is diagnosed by doing: </li></ul><ul><li>Sputum test </li></ul><ul><li>Blood test </li></ul><ul><li>Bronchoscopy </li></ul><ul><li>X-ray </li></ul><ul><li>CT scan </li></ul><ul><li>All of the above </li></ul>
  12. 12. Christmas Quiz 2011 <ul><li>9. What are the symptoms of Severe Asthma with Fungal Sensitivity (SAFS)? </li></ul><ul><li>Inability to eat cheese </li></ul><ul><li>A severe form of asthma, tendency to be seasonal, improves if given antifungals </li></ul><ul><li>A severe form of asthma, requires inhaler to control, does not improve if given antifungals </li></ul><ul><li>Asthma which becomes severe after age 30 </li></ul>
  13. 13. Christmas Quiz 2011 <ul><li>10. How many people in the world are thought to get chronic pulmonary aspergillosis every year? </li></ul><ul><li>10 000 </li></ul><ul><li>100 000 </li></ul><ul><li>400 000 </li></ul><ul><li>800 000 </li></ul><ul><li>1 500 000 </li></ul>
  14. 14. Christmas Quiz 2011 <ul><li>11. How many people in the EU are thought to have ABPA? </li></ul><ul><li>10 000 </li></ul><ul><li>25 000 </li></ul><ul><li>50 000 </li></ul><ul><li>100 000 </li></ul><ul><li>150 000 </li></ul>
  15. 15. Christmas Quiz 2011 <ul><li>12. How many people in the EU are thought to have acute invasive aspergillosis every year </li></ul><ul><li>1 – 3 000 </li></ul><ul><li>10 – 20 000 </li></ul><ul><li>30 – 70 0000 </li></ul><ul><li>80 – 150 000 </li></ul>
  16. 16. Christmas Quiz 2011 <ul><li>14. Where have we held outreach patients support meetings over the last 2 years (more than one answer is correct)? </li></ul><ul><li>London </li></ul><ul><li>New York </li></ul><ul><li>Cardiff </li></ul><ul><li>Edinburgh </li></ul><ul><li>Paris </li></ul><ul><li>Rome </li></ul>
  17. 17. Christmas Quiz 2011 <ul><li>15. We have started off a fundraising campaign to provide one fully qualified postdoctoral researcher to work for 3 years. How much have we got to raise in total? </li></ul><ul><li>£50 000 </li></ul><ul><li>£100 000 </li></ul><ul><li>£150 000 </li></ul><ul><li>£200 000 </li></ul>
  18. 18. Christmas Quiz 2011 <ul><li>16. What is the total number of messages (to the nearest round figure) sent to the Yahoo Aspergillus Support group over the last 9 years? </li></ul><ul><li>5000 </li></ul><ul><li>15 000 </li></ul><ul><li>30 000 </li></ul><ul><li>40 000 </li></ul><ul><li>50 000 </li></ul>
  19. 19. Christmas Quiz 2011 <ul><li>17. How many Patient support meetings have we held in Manchester (including this one)? </li></ul><ul><li>18 </li></ul><ul><li>19 </li></ul><ul><li>20 </li></ul><ul><li>21 </li></ul><ul><li>22 </li></ul>
  20. 20. Christmas Quiz 2011 <ul><li>18. How much does a course of Voriconazole cost per year (2010 figures)? </li></ul><ul><li>£1000 </li></ul><ul><li>£5 000 </li></ul><ul><li>£10 000 </li></ul><ul><li>£20 000 </li></ul><ul><li>£30 000 </li></ul><ul><li>£50 000 </li></ul>
  21. 21. Christmas Quiz 2011 <ul><li>19. Why do we check your blood levels of Itraconazole? </li></ul><ul><li>We don’t trust you to take the capsules </li></ul><ul><li>There are problems absorbing it for some people so we have to check </li></ul><ul><li>Itraconazole has non linear pharmocodynamics which make the blood levels for every individual highly unpredictable regardless of dose </li></ul><ul><li>Some strains of Aspergillus are becoming resistant to itraconazole </li></ul><ul><li>Some people may drink too much grapefruit juice </li></ul>
  22. 22. Christmas Quiz 2011 <ul><li>20. How many fish usually swim in the fishtank in the lung centre clinic? </li></ul><ul><li>1 </li></ul><ul><li>5 </li></ul><ul><li>10 </li></ul><ul><li>25 </li></ul><ul><li>50 </li></ul><ul><li>No idea </li></ul>
  23. 23. Christmas Quiz 2011 <ul><li>21. What is David W Dennings middle name? </li></ul><ul><li>William </li></ul><ul><li>Wilberforce </li></ul><ul><li>Wemyss </li></ul><ul><li>Walter </li></ul>
  24. 24. Christmas Quiz 2011 <ul><li>22. Graham was born in </li></ul><ul><li>Manchester </li></ul><ul><li>Bristol </li></ul><ul><li>Belfast </li></ul><ul><li>Liverpool </li></ul><ul><li>Glasgow </li></ul>
  25. 25. Christmas Quiz 2011 <ul><li>23. Prof Denning spends most of his time </li></ul><ul><li>Travelling </li></ul><ul><li>In clinic </li></ul><ul><li>In Chris’ office </li></ul><ul><li>Talking to people </li></ul><ul><li>Working </li></ul>
  26. 26. Christmas Quiz 2011 <ul><li>24. Marie has a secret passion. Is it </li></ul><ul><li>Jogging </li></ul><ul><li>Sky diving </li></ul><ul><li>Cooking </li></ul><ul><li>Irish dancing </li></ul><ul><li>Playing the trombone </li></ul>
  27. 27. Christmas Quiz 2011 <ul><li>25. When a child, Georgina was once sat on the knee of </li></ul><ul><li>Her mum </li></ul><ul><li>Winston Churchill </li></ul><ul><li>Archbishop Desmond Tutu </li></ul><ul><li>Windsor Davies </li></ul><ul><li>Michael Crawford </li></ul>
  28. 28. Christmas Quiz 2011 <ul><li>26. Graham’s Grandma & Dad were present at </li></ul><ul><li>The launching of the Titanic </li></ul><ul><li>The Grand National when Devon Lock ‘dived’ </li></ul><ul><li>Woolton Garden Fete when Lennon met McCartney </li></ul><ul><li>The fall of the Berlin Wall </li></ul><ul><li>The football match when Dixie Dean scored his 60 th goal in a season </li></ul>
  29. 29. Christmas Quiz 2011 <ul><li>27. Chris is expert in </li></ul><ul><li>Management of disorganised staff & bosses </li></ul><ul><li>Working with imaginary assistants </li></ul><ul><li>At least one martial art </li></ul><ul><li>Patience </li></ul><ul><li>Can count to ten in Korean </li></ul>
  30. 30. Christmas Quiz 2011 <ul><li>28. Debbie loves </li></ul><ul><li>Cooking </li></ul><ul><li>Watching premier league football (live or TV) </li></ul><ul><li>Stand up comic festivals </li></ul><ul><li>Prescribing </li></ul><ul><li>Her office, especially the kitchen </li></ul>
  31. 31. Christmas Quiz 2011 <ul><li>29. How many computer screens does Graham currently use, at work and at home? </li></ul><ul><li>3 </li></ul><ul><li>5 </li></ul><ul><li>7 </li></ul><ul><li>10 </li></ul>
  32. 32. Christmas Quiz 2011 <ul><li>30. Where did the NAC nursing team finish in the recent Nursing Times Awards? </li></ul><ul><li>First </li></ul><ul><li>Second </li></ul><ul><li>Top 6 </li></ul><ul><li>Top 10 </li></ul>
  33. 33. Christmas Quiz 2011 31. What Christmas related word is hidden here? STEL
  34. 34. Christmas Quiz 2011 32. What Christmas related word is hidden here? TOUFRANKCH
  35. 35. Christmas Quiz 2011 33. What Christmas related word is hidden here? S W N O
  36. 36. Christmas Quiz 2011 1. What type of microrganism is Aspergillus? a virus a fungus a bacterium a plant
  37. 37. Christmas Quiz 2011 2. What minimum temperature does Aspergillus need to grow? Warmth above 4C Warmth above 20C Warmth above 35C Warmth above 50C
  38. 38. Christmas Quiz 2011 <ul><li>3. What foods will Aspergillus grow on? </li></ul><ul><li>Cheese </li></ul><ul><li>Bread </li></ul><ul><li>Cement </li></ul><ul><li>Wood </li></ul><ul><li>Dead leaves </li></ul><ul><li>Glass </li></ul><ul><li>Dead Christmas trees </li></ul><ul><li>Plastic </li></ul><ul><li>Wallpaper paste </li></ul>
  39. 39. Christmas Quiz 2011 <ul><li>4. What does Aspergillus need to disperse and grow? </li></ul><ul><li>Music </li></ul><ul><li>Moisture </li></ul><ul><li>Light entertainment </li></ul><ul><li>Sunshine </li></ul><ul><li>Gentle breezes </li></ul><ul><li>Underfloor spaces </li></ul>
  40. 40. Christmas Quiz 2011 <ul><li>5. Acute invasive Aspergillosis is caused by: </li></ul><ul><li>eating mouldy cheese </li></ul><ul><li>smoking cigarettes </li></ul><ul><li>gardening </li></ul><ul><li>Lack of a working immune system </li></ul>
  41. 41. Christmas Quiz 2011 <ul><li>6. Chronic Pulmonary Aspergillosis is caused by: </li></ul><ul><li>Lack of a working immune system </li></ul><ul><li>Too many antibiotics </li></ul><ul><li>Not enough antibiotics </li></ul><ul><li>Gardening </li></ul><ul><li>Genetics </li></ul><ul><li>Lung damage e.g. Tuberculosis </li></ul>
  42. 42. Christmas Quiz 2011 <ul><li>7. Allergic bronchopulmonary Aspergillosis (ABPA) is caused by: </li></ul><ul><li>Asthma </li></ul><ul><li>Cystic fibrosis </li></ul><ul><li>Mouldy home/workplace </li></ul><ul><li>Genetics </li></ul><ul><li>Lack of vitamin D </li></ul><ul><li>We don’t know </li></ul>
  43. 43. Christmas Quiz 2011 <ul><li>8. ABPA is diagnosed by doing: </li></ul><ul><li>Sputum test </li></ul><ul><li>Blood test </li></ul><ul><li>Bronchoscopy </li></ul><ul><li>X-ray </li></ul><ul><li>CT scan </li></ul><ul><li>All of the above </li></ul>
  44. 44. Christmas Quiz 2011 <ul><li>9. What are the symptoms of Severe Asthma with Fungal Sensitivity (SAFS)? </li></ul><ul><li>Inability to eat cheese </li></ul><ul><li>A severe form of asthma, tendency to be seasonal, improves if given antifungals </li></ul><ul><li>A severe form of asthma, requires inhaler to control, does not improve if given antifungals </li></ul><ul><li>Asthma which becomes severe after age 30 </li></ul>
  45. 45. Christmas Quiz 2011 <ul><li>10. How many people in the world are thought to get chronic pulmonary aspergillosis every year? </li></ul><ul><li>10 000 </li></ul><ul><li>100 000 </li></ul><ul><li>400 000 </li></ul><ul><li>800 000 </li></ul><ul><li>1 500 000 </li></ul>
  46. 46. Christmas Quiz 2011 <ul><li>11. How many people in the EU are thought to have ABPA? </li></ul><ul><li>10 000 </li></ul><ul><li>25 000 </li></ul><ul><li>50 000 </li></ul><ul><li>100 000 </li></ul><ul><li>150 000 </li></ul>
  47. 47. Christmas Quiz 2011 <ul><li>12. How many people in the EU are thought to have acute invasive aspergillosis every year </li></ul><ul><li>1 – 3 000 </li></ul><ul><li>10 – 20 000 </li></ul><ul><li>30 – 70 0000 </li></ul><ul><li>80 – 150 000 </li></ul>
  48. 48. Christmas Quiz 2011 <ul><li>14. Where have we held outreach patients support meetings over the last 2 years (more than one answer is correct)? </li></ul><ul><li>London </li></ul><ul><li>New York </li></ul><ul><li>Cardiff </li></ul><ul><li>Edinburgh </li></ul><ul><li>Paris </li></ul><ul><li>Rome </li></ul>
  49. 49. Christmas Quiz 2011 <ul><li>15. We have started off a fundraising campaign to provide one fully qualified postdoctoral researcher to work for 3 years. How much have we got to raise in total? </li></ul><ul><li>£50 000 </li></ul><ul><li>£100 000 </li></ul><ul><li>£150 000 </li></ul><ul><li>£200 000 </li></ul>
  50. 50. Christmas Quiz 2011 <ul><li>16. What is the total number of messages (to the nearest round figure) sent to the Yahoo Aspergillus Support group over the last 9 years? </li></ul><ul><li>5000 </li></ul><ul><li>15 000 </li></ul><ul><li>30 000 </li></ul><ul><li>40 000 </li></ul><ul><li>50 000 </li></ul>
  51. 51. Christmas Quiz 2011 <ul><li>17. How many Patient support meetings have we held in Manchester (including this one)? </li></ul><ul><li>18 </li></ul><ul><li>19 </li></ul><ul><li>20 </li></ul><ul><li>21 </li></ul><ul><li>22 </li></ul>
  52. 52. Christmas Quiz 2011 <ul><li>18. How much does a course of Voriconazole cost per year (2010 figures)? </li></ul><ul><li>£1000 </li></ul><ul><li>£5 000 </li></ul><ul><li>£10 000 </li></ul><ul><li>£20 000 </li></ul><ul><li>£30 000 </li></ul><ul><li>£50 000 </li></ul>
  53. 53. Christmas Quiz 2011 <ul><li>19. Why do we check your blood levels of Itraconazole? </li></ul><ul><li>We don’t trust you to take the capsules </li></ul><ul><li>There are problems absorbing it for some people so we have to check </li></ul><ul><li>Itraconazole has non linear pharmocodynamics which make the blood levels for every individual highly unpredictable regardless of dose </li></ul><ul><li>Some strains of Aspergillus are becoming resistant to itraconazole </li></ul><ul><li>Some people may drink too much grapefruit juice </li></ul>
  54. 54. Christmas Quiz 2011 <ul><li>20. How many fish usually swim in the fishtank in the lung centre clinic? </li></ul><ul><li>1 </li></ul><ul><li>5 </li></ul><ul><li>10 </li></ul><ul><li>25 </li></ul><ul><li>50 </li></ul><ul><li>No idea </li></ul>
  55. 55. Christmas Quiz 2011 <ul><li>21. What is David W Dennings middle name? </li></ul><ul><li>William </li></ul><ul><li>Wilberforce </li></ul><ul><li>Wemyss </li></ul><ul><li>Walter </li></ul>
  56. 56. Christmas Quiz 2011 <ul><li>22. Graham was born in </li></ul><ul><li>Manchester </li></ul><ul><li>Bristol </li></ul><ul><li>Belfast </li></ul><ul><li>Liverpool </li></ul><ul><li>Glasgow </li></ul>
  57. 57. Christmas Quiz 2011 <ul><li>23. Prof Denning spends most of his time </li></ul><ul><li>Travelling </li></ul><ul><li>In clinic </li></ul><ul><li>In Chris’ office </li></ul><ul><li>Talking to people </li></ul><ul><li>Working </li></ul>
  58. 58. Christmas Quiz 2011 <ul><li>24. Marie has a secret passion. Is it </li></ul><ul><li>Jogging </li></ul><ul><li>Sky diving </li></ul><ul><li>Cooking </li></ul><ul><li>Irish dancing </li></ul><ul><li>Playing the trombone </li></ul>
  59. 59. Christmas Quiz 2011 <ul><li>25. When a child, Georgina was once sat on the knee of </li></ul><ul><li>Her mum </li></ul><ul><li>Winston Churchill </li></ul><ul><li>Archbishop Desmond Tutu </li></ul><ul><li>Windsor Davies </li></ul><ul><li>Michael Crawford </li></ul>
  60. 60. Christmas Quiz 2011 <ul><li>26. Graham’s Grandma & Dad were present at </li></ul><ul><li>The launching of the Titanic </li></ul><ul><li>The Grand National when Devon Lock ‘dived’ </li></ul><ul><li>Woolton Garden Fete when Lennon met McCartney </li></ul><ul><li>The fall of the Berlin Wall </li></ul><ul><li>The football match when Dixie Dean scored his 60 th goal in a season </li></ul>
  61. 61. Christmas Quiz 2011 <ul><li>27. Chris is expert in </li></ul><ul><li>Management of disorganised staff & bosses </li></ul><ul><li>Working with imaginary assistants </li></ul><ul><li>At least one martial art </li></ul><ul><li>Patience </li></ul><ul><li>Can count to ten in Korean </li></ul>
  62. 62. Christmas Quiz 2011 <ul><li>28. Debbie loves </li></ul><ul><li>Cooking </li></ul><ul><li>Watching premier league football (live or TV) </li></ul><ul><li>Stand up comic festivals </li></ul><ul><li>Prescribing </li></ul><ul><li>Her office, especially the kitchen </li></ul>
  63. 63. Christmas Quiz 2011 <ul><li>29. How many computer screens does Graham currently use, at work and at home? </li></ul><ul><li>3 </li></ul><ul><li>5 </li></ul><ul><li>7 </li></ul><ul><li>10 </li></ul>
  64. 64. Christmas Quiz 2011 <ul><li>30. Where did the NAC nursing team finish in the recent Nursing Times Awards? </li></ul><ul><li>First </li></ul><ul><li>Second </li></ul><ul><li>Top 6 </li></ul><ul><li>Top 10 </li></ul>
  65. 65. Christmas Quiz 2011 31. What Christmas related word is hidden here? STEL T-in-SEL
  66. 66. Christmas Quiz 2011 32. What Christmas related word is hidden here? TOUFRANKCH FRANK-in-SENSE
  67. 67. Christmas Quiz 2011 33. What Christmas related word is hidden here? S W N O SNOWBALL
  68. 68. AOB <ul><ul><li>New patients information leaflets (nearly) ready to go </li></ul></ul><ul><ul><ul><li>Available NOW </li></ul></ul></ul><ul><ul><ul><li>Aspergillus bronchitis – coming soon </li></ul></ul></ul><ul><ul><li>Funguide Cook book – keep sending in recipes </li></ul></ul><ul><ul><li>Donate by mobile phone – now in operation, automatically gift aided </li></ul></ul><ul><ul><ul><li>Send ASPR44 2 to 70070 to donate £2, </li></ul></ul></ul><ul><ul><ul><ul><li>can also donate £3, 4, 5 or 10 by substituting the 2 </li></ul></ul></ul></ul><ul><ul><li>Discussed emergency out of hours number – we have insufficient staffing for this at the moment but </li></ul></ul>
  69. 69. Thank You <ul><li>“ The best chance we have of beating this illness is to work together” </li></ul><ul><li>Living with it, Working with it, Treating it </li></ul>Fungal Research Trust
  70. 70. Merry Christmas from everyone in the National Aspergillosis Centre See you in the New Year The next meeting is on January 5 th

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