Aspergillosis Patients Meeting3rd October 2010Edinburgh<br />“Advice, information and mutual support”<br />
www.aspergillus.org.uk/newpatients<br />Aspergillosis Patients Meeting<br />Format<br />10.00 Introductory talk<br />10.20...
www.aspergillus.org.uk/newpatients<br />Purpose of the Meeting<br />The principle purpose of these meetings is to give pat...
www.aspergillus.org.uk/newpatients<br />Staff present<br />Georgina, Marie & Debbie: Aspergillosis Specialist Nurses<br />...
www.aspergillus.org.uk/newpatients<br />Meeting Information<br />Newsletter given out at clinic every month<br />If you ha...
www.aspergillus.org.uk/newpatients<br />View Meeting via your PC<br />If you can’t make the meeting you can view it & list...
www.aspergillus.org.uk/newpatients<br />Asthma – UK hotspot (2004)<br />
www.aspergillus.org.uk/newpatients<br />Asthma – Scotland worst in UK<br />
www.aspergillus.org.uk/newpatients<br />Aspergillus & Scotland<br />Survey in 1999 - 74 per cent of homes in Scotland had ...
www.aspergillus.org.uk/newpatients<br />History of Aspergillosis<br />John Hughes Bennett 1812-1875 Eminent Edinburgh phys...
www.aspergillus.org.uk/newpatients<br />John Hughes Bennett Laboratory<br />Originally opened in 1901 in honour of the man...
www.aspergillus.org.uk/newpatients<br />Contribution<br />Scotland is the birthplace of modern Aspergillus genetics<br />G...
www.aspergillus.org.uk/newpatients<br />Fungal Research Trust<br />A leading UK charity funding research into fungal disea...
Upcoming SlideShare
Loading in …5
×

Aspergillosis Patients Support Outreach Meeting Edinburgh Introduction - Graham Atherton

945 views

Published on

Graham Atherton introduces the meeting and gives a short talk on interesting facts about Aspergillosis with a Scottish relevance

0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
945
On SlideShare
0
From Embeds
0
Number of Embeds
8
Actions
Shares
0
Downloads
0
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

Aspergillosis Patients Support Outreach Meeting Edinburgh Introduction - Graham Atherton

  1. 1. Aspergillosis Patients Meeting3rd October 2010Edinburgh<br />“Advice, information and mutual support”<br />
  2. 2. www.aspergillus.org.uk/newpatients<br />Aspergillosis Patients Meeting<br />Format<br />10.00 Introductory talk<br />10.20 Steph Smith Appeal<br />10.40 Group discussion on problems you face using our service because of the distance involved<br />11.00-12.00 Social chat, cup of tea<br />12.00 Lunch served in this room<br />1-4pm Another Kingdon Exhibition<br />
  3. 3. www.aspergillus.org.uk/newpatients<br />Purpose of the Meeting<br />The principle purpose of these meetings is to give patients and their carers an opportunity to: <br />meet fellow patients for mutual support<br />ask questions of staff<br />for you to tell us how we can improve what we do: clinic or website<br />for us to tell you how we are trying to improve our service <br />
  4. 4. www.aspergillus.org.uk/newpatients<br />Staff present<br />Georgina, Marie & Debbie: Aspergillosis Specialist Nurses<br />Chris Harris: National Aspergillosis Centre Manager – in charge of centre admin, receives calls to clinic<br />Graham Atherton: Aspergillus Website, patient information, clinical support, this meeting<br />
  5. 5. www.aspergillus.org.uk/newpatients<br />Meeting Information<br />Newsletter given out at clinic every month<br />If you have a computer:<br />http://www.aspergillus.org.uk/newpatients/patientsmeeting.php<br />You will be able to find:<br />Past meeting minutes, archive of newsletters & video recordings of talks<br />Full details of this and more on our monthly newsletter available in clinic and at every meeting<br />
  6. 6. www.aspergillus.org.uk/newpatients<br />View Meeting via your PC<br />If you can’t make the meeting you can view it & listen in using our new computer facilities.<br />Go to http://www.livestream.com/nationalaspergillosiscentre<br />This will work with any modern internet browser or computer, no software downloads. You will probably need a broadband connection to the internet.<br />You can chat by text to other viewers during the meeting<br />
  7. 7. www.aspergillus.org.uk/newpatients<br />Asthma – UK hotspot (2004)<br />
  8. 8. www.aspergillus.org.uk/newpatients<br />Asthma – Scotland worst in UK<br />
  9. 9. www.aspergillus.org.uk/newpatients<br />Aspergillus & Scotland<br />Survey in 1999 - 74 per cent of homes in Scotland had significant levels of airborne Aspergillus compared with 9-29% in US (Piecková and Jesenská, 1999<br />Conditions are cool, dark, damp, buildings lack ventilation, ideal for mould & other asthma triggers e.g. bed mites, tobacco smoke, poor diet, Industrial irritants (air pollution)<br />Damp buildings are strongly linked to childhood asthma *World Health Organisation www.who.int <br />
  10. 10. www.aspergillus.org.uk/newpatients<br />History of Aspergillosis<br />John Hughes Bennett 1812-1875 Eminent Edinburgh physician<br />In his 1842 paper Bennett gave the earliest description of pulmonary aspergillosis. Bennett was one of the first to recognise the importance of the microscope in the clinical investigation of disease.<br />
  11. 11. www.aspergillus.org.uk/newpatients<br />John Hughes Bennett Laboratory<br />Originally opened in 1901 in honour of the man who first described pulmonary aspergillosis & leukemia<br />The new John Hughes Bennett Laboratory (JHBL) is situated on one floor of a new building (completed in 1997) on the site of the Western General Hospital, Edinburgh, Scotland.<br />
  12. 12. www.aspergillus.org.uk/newpatients<br />Contribution<br />Scotland is the birthplace of modern Aspergillus genetics<br />Guido Pontecorvo (“Ponte”), 1907–1999<br />1937 – Institute of Animal Genetics Edinburgh<br />1943 – fungal genetics – penicillin development<br />1945 – Lecturer in Genetics, Glasgow<br />1953 – comprehensively established Aspergillus as a model system to study micorbial & eukaryotic genetics<br />
  13. 13. www.aspergillus.org.uk/newpatients<br />Fungal Research Trust<br />A leading UK charity funding research into fungal diseases. Spends £400 000 p.a.<br />Established in 1991<br />>150 research papers published<br />Also funds much of our patient information services & Aspergillus Website<br />2008 – voluntary donations raised a few hundred pounds per year<br />2010 – voluntary donations raised now exceed £10,000<br />

×