Second outreach meeting, London<br />Led by Graham Atherton<br />Supported by<br /> Georgina Powell, Marie Kirwan & Debbie...
Programme<br />2pm Graham Atherton: Welcome & Introduction<br />2.10 Phil Langridge: Active breathing techniques & exercis...
What is this meeting for?<br />For you to socialise with fellow patients<br />For you to receive support from NAC staff<br...
What can you do for us?<br />Feedback comments & suggestions on what we already do. <br />What isn’t working?<br />What is...
New Fungal Research Trust website<br />
New FRT fundraising campaign<br />To fund a Postdoctoral scientist who will carry out work to increase our understanding o...
Raising the money<br />Lewis Fraser Himalayan run (100 miles) in memory of Steph Smith. Target £10 000<br />Gem’s little G...
Current ideas<br />Campaign ribbons – cost us 75p each, donate what you can<br />Cook book<br />FUNGUIDE patient’s cookery...
Involving you in our work<br />The Fungal Research Trust have appointed a new trustee who is a patient<br />Derek Stewart ...
Thank You<br />“The best chance we have of beating this illness is to work together”<br />Living with it, Working with it,...
Programme<br />2pm Graham Atherton: Welcome & Introduction<br />2.10 Phil Langridge: Active breathing techniques & exercis...
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Aspergillosis Patients Support Outreach Meeting London June 2011 - Graham Atherton

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The second outreach Aspergillosis Patients Support meeting to be held outside of Manchester.
This is the introductory talk for the meeting given by Graham Atherton

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Aspergillosis Patients Support Outreach Meeting London June 2011 - Graham Atherton

  1. 1. Second outreach meeting, London<br />Led by Graham Atherton<br />Supported by<br /> Georgina Powell, Marie Kirwan & Debbie Kennedy<br />NAC Centre Manager Chris Harris<br />Talks given by Philip Langridge & David Denning<br />National aspergillosis centre<br />UHSM<br />Manchester<br />Support Meeting for Aspergillosis Patients<br />Fungal Research Trust<br />
  2. 2. Programme<br />2pm Graham Atherton: Welcome & Introduction<br />2.10 Phil Langridge: Active breathing techniques & exercise, benefits to patients (Physiotherapy)<br />2.45 Break: Tea & Coffee – your opportunity to chat with fellow patients and staff members<br />3.15 David Denning: ABPA & SAFS<br />4.00 Graham Atherton: Close<br />
  3. 3. What is this meeting for?<br />For you to socialise with fellow patients<br />For you to receive support from NAC staff<br />We are here to answer your questions, feel free to approach any one of us<br />We are here to listen about what we can do better<br />We can use these meeting to assess our service, to ask for more help with research<br />We occasionally feedback results of the research already in progress<br />Fundraising for research (Fungal Research Trust)<br />
  4. 4. What can you do for us?<br />Feedback comments & suggestions on what we already do. <br />What isn’t working?<br />What is working?<br />What do you need to know more about?<br />How can we improve?<br />What more can we do?<br />Help us with fundraising<br />The Fungal Research Trust<br />
  5. 5. New Fungal Research Trust website<br />
  6. 6. New FRT fundraising campaign<br />To fund a Postdoctoral scientist who will carry out work to increase our understanding of fungal diseases<br />1. Why Aspergillus causes disease, especially slowly progressive disease such as ABPA, bronchiectasis, chronic pulmonary aspergillosis and/or lung scarring.<br />2. What are protective factors for fungal infection? Why do some people with the same risk factors not get colonised or infected?<br />3. Why do fungi become resistant to antifungal drugs?<br />Target £150 000 which will fund research for 3 years<br />
  7. 7. Raising the money<br />Lewis Fraser Himalayan run (100 miles) in memory of Steph Smith. Target £10 000<br />Gem’s little Gems. Target £10 000 this year<br />Christmas raffle 2010 raised £1500<br />A patient raised £250 last year making and selling greetings cards <br />2010 raised approx £13 000<br />Can you help?<br />Your ideas & time will be the lifeblood of this challenge<br />Sign up for our newsletter<br />http://www.aspergillus.org.uk/newpatients/donations.php<br />
  8. 8. Current ideas<br />Campaign ribbons – cost us 75p each, donate what you can<br />Cook book<br />FUNGUIDE patient’s cookery book<br />Combining your recipes with ‘good news’ about fungi, how useful they can be<br />Any of your recipes including the use of any of the following:<br />Mushrooms, soy sauce, Quorn, Marmite, Stilton, Brie, camembert and so on<br />
  9. 9. Involving you in our work<br />The Fungal Research Trust have appointed a new trustee who is a patient<br />Derek Stewart is to put forward the patients’ point of view to the board on a regular basis, eg with regard to research interests<br />Elisabeth Kershaw is working on behalf of patients by assisting with the formulation of future research proposals<br />
  10. 10. Thank You<br />“The best chance we have of beating this illness is to work together”<br />Living with it, Working with it, Treating it <br />Fungal Research Trust<br />
  11. 11. Programme<br />2pm Graham Atherton: Welcome & Introduction<br />2.10 Phil Langridge: Active breathing techniques & exercise, benefits to patients (Physiotherapy)<br />2.45 Break: Tea & Coffee – your opportunity to chat with fellow patients and staff members<br />3.15 David Denning: ABPA & SAFS<br />4.00 Graham Atherton: Close<br />

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