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Human Rights of Older Persons 
In Long-Term Care 
Marrakech, 29 November 2014
NHRIs 
 State funded bodies, independent of government 
 Broad mandate to promote and protect human 
rights 
 Accredited by reference to UN Paris Principles 
 NHRIs as a bridge 
 Global network of NHRIs - ICC
ENNHRI 
 Supporting NHRIs 
◦ Accreditation and Establishment 
◦ Capacity building – NHRI Academy 
 ENNHRI Working Groups 
◦ Legal, Disability, Asylum and Migration, Human Rights in 
Economic Crisis, Business and Human Rights 
 Engagement with international and regional 
human rights mechanisms 
◦ EU, Council of Europe, OSCE, UN
ENNHRI Project - Planning 
 Mapping of ENNHRI members’ work (Sept 2013) 
 ENNHRI members’ project survey (May 2014) 
 Planning meeting (June 2014) 
 UN OEWG on Ageing (July 2014) 
 Stakeholder conference (October 2014)
ENNHRI Project - Objectives 
 Introduce human rights standards and HRBA to 
long-term care of older persons 
 Increase awareness of the human rights of older 
persons living in or accessing long-term care 
 Strengthen the capacity of NHRIs to monitor and 
support human rights based policies
ENNHRI Project - Scope 
 Human rights relevant to older persons in long-term 
care, with emphasis on residential care 
◦ Relationship with home care and informal care 
◦ Financial limitations on older persons’ access to care 
◦ Working conditions of care staff 
◦ Diversity of older persons, discrimination and ageism 
◦ Lessons and synergies from CRPD 
◦ Developments at the international level (OEWG)
ENNHRI Project – Activities 
2.5 years, from January 2015 
1. Desk-based Research 
2. Pilot Group Monitoring 
3. Recommendations 
4. Awareness-raising and Engagement 
5. Evaluation and Follow-up
1 - Desk-based research 
 Relevant human rights standards 
 NHRI methodologies 
◦ Monitoring 
◦ Participation 
 Structures required for human rights based 
approach to long-term care 
 Input from Advisory Group 
 Tools for use by all NHRIs
2 - Monitoring 
 Pilot Group of NHRIs 
◦ Review of legislation, policies, jurisprudence, 
recommendations, complaints received 
◦ Visits to residential care homes (NPM) 
◦ Interviews / focus groups (questionnaires) 
 Reports on national human rights situation
3 – Conclusions and Recommendations 
 Collation of national level reports 
 Identification of trends and conclusions 
 Elaboration of recommendations to address the 
human rights situation identified 
Input from Advisory Group
4 – Awareness-raising and Engagement 
 Awareness-raising 
◦ Relevant human rights standards 
◦ Human rights based approach 
 Participation, structures 
◦ Conclusions and recommendations 
 Engagement (national and European level) 
◦ Stakeholder meetings 
◦ Social policy makers 
◦ Service providers
5 – Evaluation / follow-up 
 Evaluation 
 Ensure medium to long term impacts 
 Clarify areas in need of continued work 
◦ Training? 
◦ Input to OEWG? 
◦ Relevance to other regions?
Thank you 
Debbie Kohner 
Secretary General, ENNHRI 
ENNHRI@cntr.be

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WHRF - Human Rights of Older Persons by ENNHRI

  • 1. Human Rights of Older Persons In Long-Term Care Marrakech, 29 November 2014
  • 2. NHRIs  State funded bodies, independent of government  Broad mandate to promote and protect human rights  Accredited by reference to UN Paris Principles  NHRIs as a bridge  Global network of NHRIs - ICC
  • 3. ENNHRI  Supporting NHRIs ◦ Accreditation and Establishment ◦ Capacity building – NHRI Academy  ENNHRI Working Groups ◦ Legal, Disability, Asylum and Migration, Human Rights in Economic Crisis, Business and Human Rights  Engagement with international and regional human rights mechanisms ◦ EU, Council of Europe, OSCE, UN
  • 4. ENNHRI Project - Planning  Mapping of ENNHRI members’ work (Sept 2013)  ENNHRI members’ project survey (May 2014)  Planning meeting (June 2014)  UN OEWG on Ageing (July 2014)  Stakeholder conference (October 2014)
  • 5. ENNHRI Project - Objectives  Introduce human rights standards and HRBA to long-term care of older persons  Increase awareness of the human rights of older persons living in or accessing long-term care  Strengthen the capacity of NHRIs to monitor and support human rights based policies
  • 6. ENNHRI Project - Scope  Human rights relevant to older persons in long-term care, with emphasis on residential care ◦ Relationship with home care and informal care ◦ Financial limitations on older persons’ access to care ◦ Working conditions of care staff ◦ Diversity of older persons, discrimination and ageism ◦ Lessons and synergies from CRPD ◦ Developments at the international level (OEWG)
  • 7. ENNHRI Project – Activities 2.5 years, from January 2015 1. Desk-based Research 2. Pilot Group Monitoring 3. Recommendations 4. Awareness-raising and Engagement 5. Evaluation and Follow-up
  • 8. 1 - Desk-based research  Relevant human rights standards  NHRI methodologies ◦ Monitoring ◦ Participation  Structures required for human rights based approach to long-term care  Input from Advisory Group  Tools for use by all NHRIs
  • 9. 2 - Monitoring  Pilot Group of NHRIs ◦ Review of legislation, policies, jurisprudence, recommendations, complaints received ◦ Visits to residential care homes (NPM) ◦ Interviews / focus groups (questionnaires)  Reports on national human rights situation
  • 10. 3 – Conclusions and Recommendations  Collation of national level reports  Identification of trends and conclusions  Elaboration of recommendations to address the human rights situation identified Input from Advisory Group
  • 11. 4 – Awareness-raising and Engagement  Awareness-raising ◦ Relevant human rights standards ◦ Human rights based approach  Participation, structures ◦ Conclusions and recommendations  Engagement (national and European level) ◦ Stakeholder meetings ◦ Social policy makers ◦ Service providers
  • 12. 5 – Evaluation / follow-up  Evaluation  Ensure medium to long term impacts  Clarify areas in need of continued work ◦ Training? ◦ Input to OEWG? ◦ Relevance to other regions?
  • 13. Thank you Debbie Kohner Secretary General, ENNHRI ENNHRI@cntr.be

Editor's Notes

  1. Thanks to CNDH, and for inviting me to speak on behalf of ENNHRI Project from European NHRIs to: Clarify the human rights standards relevant to older persons in long-term care Collect evidence on the human rights situation of Older Persons in Long-term care, through monitoring by a pilot group Address concerns arising at a national and European level through introducing human rights to social and health policy Raise awareness of human rights standards, situation and human rights based approach for older persons, their families, service providers and carers In European context – although much diversity within Europe, appreciate very different to context in Morocco, South Africa and other examples we have heard about today Before describing the project, Explain a bit about NHRIs and ENNHRI, for those not familiar
  2. Contradiction in terms but mechanisms Control over budget, report to Parliament not government, freedom to address any human rights issues arising Different types – Ombuds, Commissions, Institutes All broad mandate – all human rights, C, P, E, S, R Different functions Promote – HRE, training, awareness-raising Protect – investigations, monitoring, complaints handling, advise government and Parliament Report to international HR mechanisms Independence, pluralism, impartiality, accountability Civil society and state National and International 4 regional networks in ICC – ENNHRI is wider Europe
  3. Mutual learning, peer support, good practices Working groups of staff experts in different areas of human rights Sharing of information on HR in various jurisdictions gives idea of systematic human rights abuses across Europe which require a regional response Important when engaging with international / regional mechanisms – as a network or individually
  4. Most members working on HR of older persons With individuals – complaints, stakeholder meetings Addressing structural issues – investigations, research, advising government on policies and Parliament on new laws, reporting to international bodies Raising awareness Combination of full range of functions in mutually reinforcing manner Institutional experience in area Objectives, content, methodologies, outputs, outcomes Input from a variety of stakeholders OEWG Advisory Group – older persons representatives, OHCHR, CoE, EU Stakeholder conference Policy makers (national and European) Service providers OP representatives, Academics International mechanisms
  5. Overarching aim Improve the human rights situation for older persons in long-term care, with emphasis on residential care Social and health policy makers – quality of care, tick-box, instead of person-centred participatory approach , focusing on rights and choices of the individual For older persons and their families, for service providers, care-givers, policy makers and general public
  6. States’ human rights obligations in older persons’ long-term care, whether provided by public or private service providers Aware that many contextual considerations that cannot be separated from the application of human rights to long-term care Home care / informal care - And individual older persons’ choices of the care they receive Financial limitations, especially in context of economic crisis and impacts on public spending Care staff – migrant women with poor working conditions and little awareness of complaints mechanisms or fear of using them Not homogenous group – diversity in terms of ethnicity, religion, gender, sexual orientation. Multiple discrimination Also age discrimination in terms of difference of treatment between younger persons with disabilities and older persons in long-term care Many NHRIs IMMs – under article 33(2) Take into account developments, and also feed into debate through evidence collected
  7. Beginning in January 2015 Dependent on grant being finalized before end of year
  8. Through member surveys, discovered that many NHRIs, despite being HR experts, are not clear on how HR standards apply to older persons in long-term care No single HR convention Several different conventions apply, often with different interpretations Overlapping frameworks in Europe Luckily, several members have already carried out extensive work on HR standards – collect, translate, collate Also collect good practice methodologies for monitoring and awareness raising Collect techniques for ensuring the participation of older persons, particularly more difficult to reach groups, such as those with limited capacity or Alzeimers Not only information from NHRIs, also from other stakeholders, including NGOs, HR mechanisms, jursidprudence, academics Input from advisory group Materials for use more widely – and used for next stage of project - monitoring
  9. Representative group of NHRIs from various national contexts and care systems Each has different functions and local contexts, but all will Base monitoring on HR standards collected in desk-based research Have a minimum level of activities in common Review of national legislation, policy, complaints received, where relevant, follow-up on recommendations, Investigation in care home – some as NPM (OPCAT), enter without prior announcement (place of detention) Minimum questions to be included in interviews or focus groups with various stakeholders, including older persons, family members, care givers, service providers Reports at national level, setting out conclusions on human rights situations and recommendations on how to address this at the national level
  10. ENNHRI Secretariat will collect and translate the national level reports to identify trends that might be relevant across Europe Not a direct comparison, or ambition to provide an overview of all human rights challenges arising for older persons in long-term care throughout all of Europe However, use conclusions to elaborate recommendations that could help improve the human rights situation of older persons in long term care Again, advisory group will provide input to ensure that the conclusions and recommendations are objectively found to be representative of the combination of national reports
  11. Produce awareness raising materials – including in accessible, easy-read format Relevant human rights standards - Human rights based approach to care of older persons, including structures required and the necessary participation of older persons themselves in the choice and delivery of their care Conclusions and recommendations from the project – showing the human rights situation of older persons in long-term care in Europe And actions required to address concerns Engagement with policy makers at national and European level - In Europe, some competences lie with EU, and so European level engagement is critical - Stakeholder meetings - national and European level - Include Service providers, academics, caregivers, older persons representatives
  12. Might seem to be beyond the scope of the project, but want to be sure that impacts of project do not end after 2.5 years Clarify areas of work required Perhaps training materials or activities Perhaps input to OEWG Perhaps application to other regions – happy to come back and report at next HRWF!
  13. Any more info – contact me