EuroBioForum 2013 - Day 2 | Jami Taylor

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EuroBioForum 2013 2nd Annual Conference
27-28 May 2013 - Hilton Munich City, Munich, Germany
http://www.eurobioforum.eu/2013

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# KEYNOTE PRESENTATION #

Personalised medicine education & training
Macro challenges and the path forward

Jami Taylor
Senior Director, Global Access Policy at Janssen, the Pharmaceutical Companies of Johnson & Johnson
Vice-chair of the Education Committee of EPEMED

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http://www.eurobioforum.eu

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EuroBioForum 2013 - Day 2 | Jami Taylor

  1. 1. Personalised medicineeducation & trainingMacro challenges and the path forwardJami TaylorEuroBioForum Annual ConferenceMunich, Germany ▪ May 2013
  2. 2. www.janssendiagnostics.com
  3. 3. www.epemed.org
  4. 4. Macro challenges: An overview
  5. 5. 312Knowledge gaps are not clearly identifiedThe guiding lexicon is not yet standardisedThe technology is advancing rapidlyThree challenges that complicatepersonalised medicine education & training today
  6. 6. Identifying stakeholder knowledge gaps
  7. 7. Meeting the challenges of personalisedmedicine education and training in Europewill first require a clearer understanding ofwhere the gaps in knowledge lie, theextent of those gaps and their associatedimplications.
  8. 8. The evolving lexicon
  9. 9. PersonalisedmedicinePrecisionmedicineP4medicineIndividualizedmedicineStratifiedmedicineTargetedtherapyTerms used to describe this trend in medicine have yet to bestandardised or fully clarified
  10. 10. Personalised medicine confounds familiar categories, and assuch will continue to drive a new vocabulary in medicineaiming to capture the phenomena it enablestherapeutics diagnostics theranostics?+e.g.,
  11. 11. Rapidly advancing technology
  12. 12. “One could argue that these technologiesare advancing so rapidly that what weteach today will be obsolete by the timepersonalised medicine is in commonpractice.”- Kenneth Cornetta, MD & Candy Gunther Brown, PhDAcademic Medicine. 2013;88(3):309-313.
  13. 13. The path forwardStarting options for consideration
  14. 14. Assessing the knowledge gaps
  15. 15. • Using a range of tools, conduct a series of personalisedmedicine knowledge audits among key stakeholders• Analyze information collected, identify needs• Develop personalised medicine education strategyaccording to the audit’s findings; refine continually basedon built-in feedback mechanisms, new information andinsightsRecommendations for managing knowledge gaps:
  16. 16. Personalised medicine knowledge auditsamong key stakeholdersPatients & patientadvocacy groups.Medical school studentsMedical societies &guideline committeesPracticing cliniciansSurveysInterviewsfocus groupssocial listening
  17. 17. Managing a lexicon in flux
  18. 18. • Allow for a multiplicity of terms while striving for somestandardisation• Be open to introducing new terms as the technologyevolves and as older terms prove inadequate• As a community, push for clarity as new terms areintroduced; test new terms vigorously within and beyondthe community to determine which best illuminate theconcepts at handRecommendations for managing the lexicon:
  19. 19. Keeping pace with the technology
  20. 20. Recommendations for educating amid rapid change:• More powerfully and consistently conveythe larger vision of personalised medicineand its transformative potential• Create resources to help stakeholders keep pacewith advances in personalised medicine technologyAnd more fundamentally:• Draw from best practices used in other high-tech fields
  21. 21. Creating resources to inform stakeholders of new advances in real-time
  22. 22. Drawing on best practices in other high-tech fields- Steve JobsCo-founder, Apple1955-2011Simple can be harder than complex:You have to work hard to get yourthinking clean to make it simple.But it’s worth it in the end becauseonce you get there, you can movemountains.
  23. 23. Conveying the larger vision
  24. 24. A vision for all patients, everywhere…
  25. 25. Thank you

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