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Early Pregnancy Clinical Study Group Presentation by the EPT

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A presentation by The Ectopic Pregnancy Trust to the Early Pregnancy Clinical Study Group, October 2010

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Early Pregnancy Clinical Study Group Presentation by the EPT

  1. 1. Research from a patient perspective<br />
  2. 2. Requirement<br />Where a lack of knowledge results in patients not receiving effective care.<br />EPT sees results of ineffective care and effective care<br />Need to look at <br />how research can improve outcomes for women<br />Reducing trauma associated with early pregnancy loss<br />Effective care includes physical and emotional outcomes<br />
  3. 3. Effective Care<br />Case 1 – Mrs A presents in EPU with pain and bleeding at 6 weeks pregnant. She is monitored and diagnosed with ectopic pregnancy. Treatment discussed and opted for methotrexate. Mrs. A. recovers well and conceives after 4 months of treatment. Emotionally and physically full recovery<br />Case 2 – Mrs B presents with pain and bleeding at 6 weeks pregnant. She is managed expectantly for ectopic pregnancy, and ruptures at 10 weeks. Physical recovery very long and emotionally still receiving counseling and does not want to conceive again.<br />
  4. 4. Patient access to EPT<br />EPT offers a variety of services: <br />Helpline – 2,000 calls<br />Website – 1.2mill hits<br />Moderated message boards – 16,000 messages <br />Emails<br />Buddy Service – 197 one-to-one help<br />Facebook – 1,000 members<br />Access information and gain support and reassurance<br />Research is essential for EPT to deliver its services<br />EPT has library of research it is aware of…<br />
  5. 5. Issues <br />Each case presents in a different way<br />Recent years seen:<br />Longer periods of diagnosis<br /> wider range of treatments available <br />Lack of consistency across hospitals<br />Need for research to define individualised diagnostic pathways and treatment options<br />Need to reduce the trauma<br />
  6. 6. Patient requirements<br />Feedback from helpline data and message boards<br />‘Survey monkey’ research<br />Summary:<br />Reduce patient fear<br />Fear and confusion during diagnosis<br />fear of treatment and potential impact<br />fear of conceiving in the future<br />Maximise future outcomes<br />
  7. 7. Most commonly asked questions<br />Why me? What did I do wrong? How could I have prevented this?<br />
  8. 8. Most commonly asked questions<br />Which treatment will help me recover most quickly – physically and emotionally?<br />
  9. 9. Most commonly asked questions<br />Which treatment method will optimise my chances of conceiving naturally in the future?<br />
  10. 10. Most commonly asked questions<br />Am I at a greater risk of early pregnancy complications after an ectopic?<br />
  11. 11. Most commonly asked questions<br />If I have surgery to my tube, am I likely to have further complications due to the scarring or damaged tube?<br />Why aren’t I being offered methotrexate? When is methotrexate most successful?<br />How soon can I try to conceive?<br />How long will it take me to conceive?<br />
  12. 12. Conclusions<br />Minimise the trauma associated with early pregnancy loss<br />Prioritise research to fill knowledge gaps<br />Information to enable individualised treatment plans<br />Minimise women’s anxiety and maximise future outcomes<br />

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