Searching for quality information  via  Pubmed and other sources
Medical information on the Web <ul><li>Web : 1991 </li></ul><ul><ul><li>2010 : 200 million websites (Netcraft) </li></ul><...
 
Search tools <ul><li>Search engines </li></ul><ul><ul><li>Robots </li></ul></ul><ul><ul><li>Search on full text </li></ul>...
 
Databases <ul><li>Collection of information concerning a defined domain, organized and described with precise and specific...
Orphanet <ul><li>5 languages  / 5 700 diseases </li></ul><ul><li>Full text Encyclopaedia </li></ul><ul><ul><li>Review arti...
Organisation and indexation of the database Fabry disease   Alpha-galactosidase A deficiency   Research programs Clinical ...
PubMed <ul><li>Bibliographic database </li></ul><ul><li>19 million citations, 5 000 publications </li></ul><ul><li>Medline...
Thesaurus MeSH :  Me dical  S ubject  H eadings
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Searching for quality information via pubmed and other sources

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Many patients spend considerable amounts of time on the internet searching
for quality disease and treatment information. David Oziel walks through the
well know PubMed search engine and some of derivative websites which
enable users to sort through scientific publications for their disease.

David Oziel is a consultant in the field of Internet health information. He is specialized in databases, quality of medical information, disease classification, and Web 2.0 tools. He also teaches information management at Paris Universities.

His background includes biochemistry and information science studies. He participated to the creation of Orpha.net and was the responsible for the information of the rare disease database. During nine years, his areas of responsibility included relationship with the members of the Scientific Committee, database quality, training for Orpha.net teams in Europe and coordination of their activity.

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Searching for quality information via pubmed and other sources

  1. 1. Searching for quality information via Pubmed and other sources
  2. 2. Medical information on the Web <ul><li>Web : 1991 </li></ul><ul><ul><li>2010 : 200 million websites (Netcraft) </li></ul></ul><ul><li>Sources </li></ul><ul><ul><li>Public (universities, hospitals, medical libraries,…) </li></ul></ul><ul><ul><li>Private (labs, medical websites,…) </li></ul></ul><ul><ul><li>Publishers </li></ul></ul><ul><ul><li>Support groups </li></ul></ul><ul><ul><li>Individuals </li></ul></ul><ul><ul><li>… </li></ul></ul>
  3. 4. Search tools <ul><li>Search engines </li></ul><ul><ul><li>Robots </li></ul></ul><ul><ul><li>Search on full text </li></ul></ul><ul><li>Gateways </li></ul><ul><ul><li>Information evaluated, selected, organized </li></ul></ul><ul><ul><li>MedlinePlus (National Library of Medicine) </li></ul></ul>
  4. 6. Databases <ul><li>Collection of information concerning a defined domain, organized and described with precise and specific keywords. </li></ul><ul><li>Diseases </li></ul><ul><ul><li>NORD </li></ul></ul><ul><ul><li>Genetics Home Reference </li></ul></ul><ul><ul><li>Orphanet </li></ul></ul><ul><li>Scientific articles </li></ul><ul><ul><li>PubMed </li></ul></ul>
  5. 7. Orphanet <ul><li>5 languages / 5 700 diseases </li></ul><ul><li>Full text Encyclopaedia </li></ul><ul><ul><li>Review articles on rare diseases (500 in english, 300 in french) </li></ul></ul><ul><ul><li>Summaries (2 000 in english, french,…) </li></ul></ul><ul><li>Information on rare diseases / 36 countries : search programs, diagnosis tests, clinics, support groups,… </li></ul>
  6. 8. Organisation and indexation of the database Fabry disease Alpha-galactosidase A deficiency Research programs Clinical trials Drugs Clinics Diagnosis Texts on diseases Persons Anderson-Fabry disease Addresses Angiokeratoma, diffuse
  7. 9. PubMed <ul><li>Bibliographic database </li></ul><ul><li>19 million citations, 5 000 publications </li></ul><ul><li>Medline (1971) </li></ul><ul><li>PubMed (Pub lic Med line ): 1997 </li></ul><ul><li>2 millions of connexions a day </li></ul><ul><li>NLM (National Library of Medicine, 1836) </li></ul><ul><li>7 millions of documents </li></ul><ul><li>Biomedical domain </li></ul><ul><ul><li>Diseases, pharmacology, biology, care, public health, health economy, ethics,… </li></ul></ul>
  8. 10. Thesaurus MeSH : Me dical S ubject H eadings

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