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EPAD 2017 - Lydia Makaroff

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The role of civil society in health promotion and prevention campaigns on PCa
Lydia Makaroff, director European Cancer Patient Coalition (ECPC)

Published in: Health & Medicine
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EPAD 2017 - Lydia Makaroff

  1. 1. The role of civil society in health promotion campaigns for prostate cancer Dr. Lydia Makaroff, Director, European Cancer Patient Coalition @lydiamakaroff
  2. 2. Who are we? ▪ ECPC is the largest European cancer patients' umbrella organisation. ▪ Representing more than 400 organisations in 46 EU and non-EU countries. ▪ Our Vision ECPC works for a Europe of equality, where all European cancer patients have timely and affordable access to the best treatment and care available, throughout their life. ECPC believes that cancer patients are the most important partners in the fight against cancer and against all the cancer-related issues affecting our society. Policy makers, researchers, doctors and industry should recognise cancer patients as co-creators of their own health.
  3. 3. Civil society in health promotion campaigns ▪ Lead grass-roots mobilization and advocacy campaigns ▪ Support the wide dissemination of information ▪ Advocate and support health promotion/prevention programmes ▪ Contribute to putting knowledge and evidence into practice ▪ Raising awareness
  4. 4. Policy Patients and patient organisations must be involved in developing policies that result in improved survival and quality of life for people with prostate cancer
  5. 5. Patient-centered multidisciplinary care European institutions and Member States need to ensure that people with prostate cancer receive high quality, standardized, and integrated care with a focus on a patient- centred multidisciplinary approach
  6. 6. Survivorship Proper follow-up should be included in a personalized cancer survivorship plan, to empower individuals and ensure sure that each person has as much control as possible over their life
  7. 7. Advocacy ECPC will co-cost a Patient Advocacy Session at the European Association of Urology congress in 2018 to build the capacity of European prostate, kidney, and bladder patient advocacy groups to support their members and advocate for better care.
  8. 8. lydia.makaroff@ecpc.org @cancereu @lydiamakaroff European Cancer Patient Coalition Thank you

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